brain donation

  1. Dolphin

    Open US: Brain Donor Project

    https://www.healthrising.org/blog/2024/05/27/nih-chronic-fatigue-fibromyalgia-long-covid-brain-funding/ The NIH Wants Your Brain The NIH is looking for ME/CFS and fibromyalgia brains to better understand these illnesses The NIH wants your brain – it really does. (Not right now – later.) I...
  2. B

    UK brain banks that accept ME/CFS donors

    Dr. Naomi Harvey shared the responses from brain banks which accept ME patients in the UK. London, Kings College Brain Bank: “In general, our brain bank would be able to accept donations from patients with ME/CFS and there is a research interest locally. However, we have suffered severely with...
  3. Hutan

    Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

    https://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-370 Open access Luis Nacul, Dominic G O’Donovan, Eliana M Lacerda, Djordje Gveric, Kirstin Goldring, Alison Hall, Erinna Bowman & Derek Pheby Abstract Background Our aim, having previously investigated through a qualitative...
    • Hutan
    • Thread
    • biobank brain brain donation nacul pheby post-mortem
    • Replies: 8
    • Forum: ME/CFS research
  4. Hutan

    Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS, 2010, Lacerda et al

    An old thread, but the idea of a post-mortem biobank is often discussed on the forum, and this study was linked in one such discussion. https://jcp.bmj.com/content/63/11/1032 Not open-access Sci-hub link: https://sci-hub.wf/10.1136/jcp.2010.082032 Abstract Background Myalgic...
    • Hutan
    • Thread
    • biobank brain brain donation charles shepherd lacerda nacul peter spencer pheby post-mortem
    • Replies: 1
    • Forum: ME/CFS research
  5. Andy

    Open ME Association: The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation

    "The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in the UK. Our long-term aim is to establish a national ME/CFS Post Mortem Tissue Bank where greater numbers of samples can be collected and stored for...
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