book

  1. Yann04

    Books about ME/CFS (to help people understand)

    I have a friend who asked me what book to read to understand ME/CFS and “the situation”. They are not a medical professional or psychiatrist, they are just an average educated person who wants to “learn about” ME/CFS. I really have no clue what to send them. I’d preferably like something that...
  2. Utsikt

    E-readers (Kindle, etc.)

    I wasn’t able to find a thread for E-readers specifically. This can be a general thread, but I’m also currently looking for recommendations and experiences. I want to try an e-reader because I like to read but I struggle to hold the book. I plan on propping it up with something or using a...
  3. Arvo

    ME/CFS in book on disability for young readers

    Just some small news that I found encouraging to see. In the first chapter of the new book How to be disabled and proud (or at least kinda sorta okay with it) by Cathy Rea, which is a guide for disabled kids/youngsters, ME/CFS is mentioned as an example of chronic illness. ("Chronic illnesses...
  4. J

    Medical Mysteries: After 18 years, a writer’s insights and farewell (On 'How doctors think' by Jerome Groopman)

    https://wapo.st/4iQGkKN Ask questions, especially ‘What else could this be?’
 Doctors increasingly face relentless time pressures, which may facilitate diagnostic errors. Common pitfalls include stereotyping, in which a doctor makes a snap judgment based on negative characteristics, and...
  5. Dolphin

    “When postviral goes viral”. Chapter in “How to be disabled in a pandemic” book

    Kornstein H, Rogers EL. When postviral goes viral. How to be disabled in a pandemic [Book]. New York Univ Press. 2025 Feb 25:191. https://nyupress.org/9781479830855/how-to-be-disabled-in-a-pandemic/...
  6. Sly Saint

    Book: Funktionelle neurologische Störungen (Functional Neurological Disorders)

    Chronische polysymptomatische Syndrome Chapter First Online: 31 December 2024 pp 177–186 translation Summary This chapter discusses a selection of polysymptomatic syndromes that are relevant in the neurological and neurorehabilitation context. All of the syndromes discussed here are the...
  7. Indigophoton

    Stuart Murdoch (of Belle and Sebastian)

    Several threads have been merged into this thread https://www.bbc.co.uk/news/amp/uk-scotland-44085954
  8. Dolphin

    Chronic Fatigue: The forgotten epidemic revived by Long Covid. Gatekeeper Press. 2024 Sep 5. [Book]. Walter Tarello

    Dr. Walter Tarello Gatekeeper Press, 5 Sept 2024 - Health & Fitness - 356 pages Chronic Fatigue is the authentic, fascinating and riveting account of the author’s journey in the ‘heart of darkness’ of modern medicine, the Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis...
  9. Sly Saint

    Book review: The Lady’s Handbook for her Mysterious Illness by Sarah Ramey

    review by Elke Hausmann GP full article here https://bjgplife.com/book-review-the-ladys-handbook-for-her-mysterious-illness/ see also thread https://www.s4me.info/threads/article-mystery-illnesses-are-on-the-rise-with-women-whom-doctors-are-dismissing-as-nervous-nellies-apr-2020.14536
  10. SNT Gatchaman

    Book: There’s Nothing Wrong With Her by Kate Weinberg

    Independent The Reading List: There’s Nothing Wrong With Her describes the unique hell of long Covid After writing a bestselling mystery novel, Kate Weinberg found herself in a plotless place with no neat, obvious ending: suffering the torturous, confusing ordeal of long Covid. Now she’s turned...
  11. Sly Saint

    UK: Reading Well books (formerly Books on Prescription): should books based on the deconditioning model of ME/CFS still be included?

    https://reading-well.org.uk/ this was the list of books for LTC in 2020 https://tra-resources.s3.amazonaws.com/uploads/entries/document/2311/RWLTC_booklist_overview.pdf which included Chalder and Burgess' book "Overcoming Chronic Fatigue" and advertises itself as A Books on Prescription...
  12. Wyva

    The Washington Post: How American health care has been failing women for centuries (review of a book written by Jennifer Lunden)

    Reading the opening chapter of Jennifer Lunden’s “American Breakdown: Our Ailing Nation, My Body’s Revolt, and the Nineteenth-Century Woman Who Brought Me Back to Life,” I recognized myself: a college student beset with debilitating fatigue and diagnosed with mononucleosis that was supposed to...
  13. T

    Understanding the Behavioral and Medical Impact of Long COVID, 2023, Jason & Lapp

    New academic book edited by Leonard Jason & Charles Lapp, "Understanding the Behavioral & Medical Impact of #LongCOVID: An Empirical Guide to Assessment & Treatment of Post-Acute Sequelae of SARS CoV-2 Infection"...
  14. Sly Saint

    Book: A Physiotherapist's Guide to Understanding and Managing ME/CFS, (Physios for ME)

    On sale 21st August 2023 Price: £26.99 https://www.hachette.co.uk/titles/michelle-bull/a-physiotherapists-guide-to-understanding-and-managing-mecfs/9781839971433/
  15. Sly Saint

    Book review: Manifesto for the weary: can rest be radical?

    Workplace culture in a capitalist society constantly demands more of us. A new book suggests that most revolutionary response could be to just stop Reviewed here Rest is Resistance: A Manifsto by Tricia Hersey (RRP: £16.99) A History of Fatigue: From the Middle Ages to the Present by Georges...
  16. Dolphin

    Chapter on CFS in a book on POTS, 2021, Newton

    The full book is available free here: https://www.researchgate.net/profile/Melvin-Lobo/publication/344873951_Postural_Tachycardia_Syndrome/links/5f959882458515b7cf9ce397/Postural-Tachycardia-Syndrome.pdf
  17. T

    Works of fiction where characters have ME/CFS

    I thought I would set up a thread on this
  18. Cheshire

    Long COVID survival guide, out Nov 8 2022

    The LC survival guide is a a peer-to-peer advice book, edited by Fiona Lowenstein. https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ Events will take place for its release (one of which will be hosted by @dave30th )
  19. Sly Saint

    The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever by Ryan Prior

    Book https://www.barnesandnoble.com/w/the-long-haul-ryan-prior/1140976265
  20. L

    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    https://www.theguardian.com/society/2022/oct/05/electrifying-book-about-women-with-disabilities-sells-for-six-figures?CMP=Share_iOSApp_Other
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