Bateman Horne Center
Facebook post:
https://bit.ly/3Yvek6W In recognition of National Family Caregivers Month, we're spotlighting essential resources for those supporting loved ones with ME/CFS, Long COVID and other infection-associated chronic conditions (IACCs). Today, we’re excited to...
RESTORE ME: A RCT of Oxaloacetate for Improving Fatigue in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Alan B. Cash, Suzanne D. Vernon, Candace Rond, Saeed Abbaszadeh, Jen Bell, Brayden Yellman, David Kaufman
*[Provisionally accepted, full text not yet available]*
Abstract
The...
This thread has news updates from the BHC.
For threads on useful resources provided by BHC see the Resources forum.
Ever-Growing Awareness by Lucinda Bateman, MD
Mar 2, 2022
https://batemanhornecenter.org/evergrowing-awareness/
Bateman Horne Center
· RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX
The guidebook is designed for the patient, their support network, and medical providers to:
- Understand ME/CFS and its defining characteristic of post-exertional malaise...
Copied post: USA: Massachusetts ME/CFS & FM Association news
Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid
https://sites.google.com/massmecfs.org/2021annualmeeting
"Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide as an expert in the diagnosis and treatment of ME/CFS. In this episode, Llewellyn King talks with Dr. Bateman about how she became involved in the...
A thread for general NIH news and discussion
See also: USA: NIH funding for ME/CFS research
Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue"
Shame about the title, yet again.
https://www.medpagetoday.com/publichealthpolicy/publichealth/70529
Background
Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) but there is insufficient research dissecting the nature of PEM from the patients’ perspective.
Methods
A PEM questionnaire administered to 150 ME/CFS patients...
Someone posted a link on twitter about a planned documentary called Relevium.
https://glematiroad.com/relevium-documentary
I don't know anything about this other than what I've read just now on this website, but I'm hopeful. If anyone on the forum has more info about this please share!
At...
"The Lady's Handbook for Her Mysterious Illness" author on the only recourse for ailing women who are being ignored
https://www.salon.com/2020/04/07/ladys-handbook-for-her-mysterious-illness-sarah-ramey-book/
Interesting Bateman Horne Center video update of research on developing a wearable device for measuring hours of upright activity. Duration about 19 minutes.
From the Bateman Horne Center website:
http://batemanhornecenter.org/2019-community-resources/#week8-communicate
Each week has downloadable PDF resources.
Are BHC involved with the CDC? Given the recent events and the MEAction call-to-action, it's clear that the CDC needs to be spoonfed and instructed with painful details about what to do. The goal of this project certainly aligns with that.
https://disruptingdisbelief.com
Recording of a meeting held earlier this month at Bateman Horne Center about clinical care of ME patients and progress at the clinic. Speakers are Lucinda Bateman and Suzanne Vernon along with executive director of the clinic Rob Ence. Big focus on education and training.
It's a pretty long...
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