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  1. Mfairma
    Post

    Rice cookers?

    I have one of the mid-range Zojirushi, a 5 cup Micom. Zojirushi is often regarded as the best brand for rice cookers in the US, but some of the...
    Post by: Mfairma, Feb 23, 2024 in forum: Home adaptations, mobility and personal care
  2. Mfairma
    Post

    Rice cookers?

    I’ve found a rice cooker to be very helpful. I use it most often for steelcut oats. Cleaning is very minimal with white rice. More so with brown...
    Post by: Mfairma, Feb 23, 2024 in forum: Home adaptations, mobility and personal care
  3. Mfairma
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Holy hell. This is more nakedly preposterous than I could have imagined. To not define, identify, and measure the cardinal symptom of the illness...
    Post by: Mfairma, Feb 22, 2024 in forum: ME/CFS research
  4. Mfairma
    Post

    Moving from laptop/computer to iPad/tablet - did it help?

    I use my phone for most things and one small adaptation that helps is that I sew ribbon into a band along the back of the case for my fingers to...
    Post by: Mfairma, Sep 12, 2023 in forum: Home adaptations, mobility and personal care
  5. Mfairma
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Yeah, I agree, it’s a product of larger forces, and maybe we need this kind of thing as a general kind of statement, maybe the value is more...
    Post by: Mfairma, Jul 30, 2023 in forum: ME/CFS research news
  6. Mfairma
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Patients pursuing treatments that may leave them worse off doesn't bother me, in and of itself, and I think generally that there is value to the...
    Post by: Mfairma, Jul 30, 2023 in forum: ME/CFS research news
  7. Mfairma
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I imagine it’s probably a factor in most debilitating illnesses, even those with treatments. But I do agree it seems like it’s worse in this...
    Post by: Mfairma, Jul 10, 2023 in forum: ME/CFS research news
  8. Mfairma
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Happened to me as well, many years ago, but didn’t recur with other or the same antibiotics over the next couple years. That seems to be the norm...
    Post by: Mfairma, Jul 9, 2023 in forum: ME/CFS research news
  9. Mfairma
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    The zealousness, in this space and others, really bothers me. There’s significant risk of harm with treatments like this. I don’t think, as Trish...
    Post by: Mfairma, Jul 9, 2023 in forum: ME/CFS research news
  10. Mfairma
    Post

    JupiterDX App for MECFS/LC

    I missed that. Thanks!
    Post by: Mfairma, May 23, 2023 in forum: Monitoring and pacing
  11. Mfairma
    Post

    JupiterDX App for MECFS/LC

    I’d love to see technology that could aid in helping me pace. But I’m skeptical that current tech has the value we’d like it to have. Pedometers,...
    Post by: Mfairma, May 23, 2023 in forum: Monitoring and pacing
  12. Mfairma
    Post

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I think the history, science, and personal narratives are persuasive when they’re given a chance. Social media thrives on strong reactions to...
    Post by: Mfairma, May 17, 2023 in forum: General ME/CFS discussion
  13. Mfairma
    Post

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Reddit definitely tends regressive, and I don’t disagree that the views aren’t representative of what doctors think generally, but I wanted to...
    Post by: Mfairma, May 17, 2023 in forum: General ME/CFS discussion
  14. Mfairma
    Post

    Research news from Bhupesh Prusty

    For anyone that can’t listen to the podcast, this bit is from 40 minutes in: “We found that there is something which is normally there in every...
    Post by: Mfairma, Apr 14, 2023 in forum: ME/CFS research news
  15. Mfairma
    Post

    Best chopping tool/food prep gadget?

    Cuisinart and Kitchenaid both now offer food processors that have dicing attachments that process vegetables into 10 and 8mm cubes, respectively....
    Post by: Mfairma, Mar 27, 2023 in forum: Home adaptations, mobility and personal care
  16. Mfairma
    Post

    Preprint: Treatment of Long COVID symptoms with triple anticoagulant therapy 2023 Laubshder, Pretorius et al

    Can anyone give some context for understanding the Patient Global Impressions of Change scale used (attached below)? I find the wording confusing...
    Post by: Mfairma, Mar 21, 2023 in forum: Long Covid research
  17. Mfairma
    Post

    'Believe ME' | BBC Horizon, 27 June 1988

    The interview with McEvedy at 19:12 was galling. I transcribed it for those that won't be able to watch: Colin McEvedy: “It did seem that there...
    Post by: Mfairma, Apr 22, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Mfairma
    Post

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    I understand why people think positivity will ease the transition for the newly and more severely ill. I’m sure for many it does. The longer you...
    Post by: Mfairma, Aug 13, 2021 in forum: General ME/CFS news
  19. Mfairma
    Post

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    Well said. I hadn’t thought about Lonesome Friends too deeply, but I like your interpretation. He certainly seems like he was an uncommonly...
    Post by: Mfairma, Apr 14, 2021 in forum: Relationships and coping
  20. Mfairma
    Post

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    Thank you. I took it after reading about Abelardo Morell in National Geographic in 2012. His work is incredible. I thought at the time that camera...
    Post by: Mfairma, Apr 9, 2021 in forum: Relationships and coping
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