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  1. Lou B Lou
    Post

    The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland

    @Evergreen wrote: 'Regarding the bit on Luscombe - a dietitian: Quote from the Canary article: "Tellingly, the company [Vitality360]’s core...
    Post by: Lou B Lou, Apr 26, 2024 at 12:32 AM in forum: General ME/CFS news
  2. Lou B Lou
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    @Dania Ala Edit Add: Some important Reports by the ME charity for children/young people, The Tymes Trust: 'False Allegations of Child Abuse in...
    Post by: Lou B Lou, Apr 23, 2024 at 11:07 AM in forum: Recruitment into current ME/CFS research studies
  3. Lou B Lou
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    @Dania Ala - I know you have designed your study for a certain age range, 18-25, but I wonder if interviewing people with ME aged, say, 25 and...
    Post by: Lou B Lou, Apr 22, 2024 at 8:58 PM in forum: Recruitment into current ME/CFS research studies
  4. Lou B Lou
    Post

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    My father, age 91 had memory tests last year. He had very severe day to day memory dysfunction that the tests just didn't pick up. The consultant...
    Post by: Lou B Lou, Apr 21, 2024 at 7:58 PM in forum: Long Covid research
  5. Lou B Lou
    Post

    UK RCGP helps with supportive LC leaflet for GPs

    @Peter Trewhitt wrote: "Certainly this leaflet also provides ammunition to use against the College in relation to their position on ME and their...
    Post by: Lou B Lou, Apr 21, 2024 at 5:35 PM in forum: Long Covid news
  6. Lou B Lou
    Post

    UK RCGP helps with supportive LC leaflet for GPs

    I don't begrudge the LC people the leaflet at all. That's not the point I was making. But the RCGPs and NHS England have double standards. If...
    Post by: Lou B Lou, Apr 21, 2024 at 5:22 PM in forum: Long Covid news
  7. Lou B Lou
    Post

    UK RCGP helps with supportive LC leaflet for GPs

    A reminder that THIS is what the Royal College of GPs published in response to the 2021 NICE Guideline for ME. There is no mention of pacing or...
    Post by: Lou B Lou, Apr 21, 2024 at 4:42 PM in forum: Long Covid news
  8. Lou B Lou
    Post

    UK RCGP helps with supportive LC leaflet for GPs

    @dave30th
    Post by: Lou B Lou, Apr 21, 2024 at 4:35 PM in forum: Long Covid news
  9. Lou B Lou
    Thread

    UK RCGP helps with supportive LC leaflet for GPs

    I can't believe this! The Long Covid SOS group just tweeted this: The RCGPs helped them produce this leaflet for guidance for GPs for safe...
    Thread by: Lou B Lou, Apr 21, 2024 at 4:25 PM, 13 replies, in forum: Long Covid news
  10. Lou B Lou
    Post

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    Dr Strain's hopeful but delusive fantasy. Can't he do better than that? He's wasting time, funding, resources. For what? This does not deserve the...
    Post by: Lou B Lou, Apr 21, 2024 at 3:38 PM in forum: Long Covid research
  11. Lou B Lou
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    The Science Media Centre 2013 includes the ME/CFS related awards to Tom Feilden and Simon Wessely that the SMC nominated them for, under their...
    Post by: Lou B Lou, Apr 20, 2024 at 1:32 AM in forum: News from organisations
  12. Lou B Lou
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    'From Trotsky to Brexit to Orbán’s attack dog: The man leading Hungary’s fightback against the EU'...
    Post by: Lou B Lou, Apr 20, 2024 at 1:21 AM in forum: News from organisations
  13. Lou B Lou
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Dr William Weir (private ME Doctor) was a Consultant in Infectious Diseases at the Royal Free Hospital, London: "During my tenure as a consultant...
    Post by: Lou B Lou, Apr 19, 2024 in forum: General ME/CFS news
  14. Lou B Lou
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    And some people with ME are psychologists, there may be some on this forum, along with psychology graduates.
    Post by: Lou B Lou, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  15. Lou B Lou
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    @Dania Ala Sorry, but you keep missing or avoiding the points we make. You keep reassuring the members here who have commented on your proposed...
    Post by: Lou B Lou, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  16. Lou B Lou
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Interviews of 30 - 60 minutes, even with breaks, will exclude most severely sick ME sufferers. You sound over confident in your study design,...
    Post by: Lou B Lou, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  17. Lou B Lou
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Thank you for that Kitty. Is there a way to share this transcript beyond this forum? I want to show it to family members, but can't work out...
    Post by: Lou B Lou, Apr 19, 2024 in forum: General ME/CFS news
  18. Lou B Lou
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    'Never Events policy and framework Revised January 2018...
    Post by: Lou B Lou, Apr 19, 2024 in forum: General ME/CFS news
  19. Lou B Lou
    Post

    UK House of Lords/ House of Commons Questions

    And we trust the DHSC and NHS England to produce a workable, disinformation and spin-free document to educate Drs and other HCPs? When NHS...
    Post by: Lou B Lou, Apr 18, 2024 in forum: General ME/CFS news
  20. Lou B Lou
    Post

    The disappearance of ME/CFS

    @Tal_lula wrote: "I've noticed that my GPs have a lot of misconceptions about all of these services." Worrying, but probably common. Pain...
    Post by: Lou B Lou, Apr 13, 2024 in forum: Epidemiology (incidence, prevalence, prognosis)
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