1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 4
  1. Starlight
    Post

    Complete remission with histamine blocker in a patient with intractable hyperadrenergic postural orthostatic tachycardia syndrome secondary to PASC

    I was watching a really interesting thing about cat allergy this wk. It can be treated by the addition of egg powder to cats food as long as the...
    Post by: Starlight, Mar 27, 2024 in forum: Other health news and research
  2. Starlight
    Post

    Blood–brain barrier disruption and sustained systemic inflammation in individuals with long COVID-associated cognitive impairment, 2024, Campbell et a

    I wonder if anyone remembers research from the 1990s or early 2000s, possibly in Scotland, where something similar was proposed as the cause of...
    Post by: Starlight, Feb 22, 2024 in forum: Long Covid research
  3. Starlight
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    I might be completely wrong side out today but the acronym and trial title annoy me no end. Very crass for people who are bedbound housebound and...
    Post by: Starlight, Nov 28, 2023 in forum: ME/CFS research news
  4. Starlight
    Post

    Has anyone else here struggled with a persistent verruca?

    The duct tape worked very well for me.
    Post by: Starlight, Oct 16, 2023 in forum: Other specific illnesses
  5. Starlight
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    I found this twitter thread insightful, not able to delve into it now myself but thought people might be interested. At the end there is a link to...
    Post by: Starlight, May 13, 2023 in forum: ME/CFS research news
  6. Starlight
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Thank you for the years of excellent work you have done on our behalf. Very glad to contribute to the fund.
    Post by: Starlight, Oct 10, 2022 in forum: Fundraising
  7. Starlight
    Post

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    Do you have a link for where to make a donation for Keith. I meant to donate to him but forgot. Thanks.
    Post by: Starlight, Apr 28, 2022 in forum: Fundraising
  8. Starlight
    Post

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    Forgetting lots of things these days but would go mad if forgot this one. Tonight.
    Post by: Starlight, Apr 24, 2022 in forum: Fundraising
  9. Starlight
    Post

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    I'm late this year but will do later tonight or morning.
    Post by: Starlight, Oct 27, 2021 in forum: Fundraising
  10. Starlight
    Post

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    Thanks to everyone for all the extraordinary work ye do on behalf of all of us. It is really hugely appreciated.
    Post by: Starlight, Aug 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  11. Starlight
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    I was pleasantly surprised by how good this article is. I can't think of anything in it that I would fault. This is thoroughly researched and...
    Post by: Starlight, Aug 26, 2021 in forum: Resources
  12. Starlight
    Post

    Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times (Sean O'Neill)

    It was really good to read this today. A message went out that was positive from our viewpoint.
    Post by: Starlight, Aug 18, 2021 in forum: General ME/CFS news
  13. Starlight
    Post

    For faster progress in ME/CFS research, funders and researchers need to treat patients as partners, not subjects (Simon M blog)

    Thank you for such an excellent article and for such clarity that I can take it in with my very foggy head.
    Post by: Starlight, May 19, 2021 in forum: General ME/CFS news
  14. Starlight
    Post

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    I don't think they care about lies or morals or conscience..and people like that are probably considered to be sociopaths. They don't consider...
    Post by: Starlight, Apr 24, 2021 in forum: General ME/CFS news
  15. Starlight
    Post

    Scientists find new evidence linking essential oils to seizures

    I have used in the past ,in the early days of my sickness and found they caused a huge negative impact on my illness as did many household...
    Post by: Starlight, Apr 24, 2021 in forum: Other treatments
  16. Starlight
    Post

    Labelling Long COVID and ME/CFS symptoms in children 'mental health'

    I almost feel despair when I see their names associated with another study dealing with children , our most vulnerable when they are at their most...
    Post by: Starlight, Apr 19, 2021 in forum: General ME/CFS news
  17. Starlight
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    We all have skin in this game David, I feel your work is very important! We are all watching with you. I would like to think of any ways we could...
    Post by: Starlight, Apr 17, 2021 in forum: Fundraising
  18. Starlight
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    I'm following David Tullers work closely for years and I feel it will be so important for all of us. I'm really getting quite worried he won't...
    Post by: Starlight, Apr 17, 2021 in forum: Fundraising
  19. Starlight
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    It is hard to trust this as we have never had any reason to trust NICE or their duplicitous advisers in the past .I hope this won't be an even...
    Post by: Starlight, Mar 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  20. Starlight
    Post

    Heart Rate Monitor Factsheet - Workwell Foundation

    Are the heart rate monitors we can buy commercially even sensitive enough to maintain such a narrow margin of error? I've read up and some felt...
    Post by: Starlight, Mar 6, 2021 in forum: Monitoring and pacing
Showing results 1 to 20 of 74 Next >
Search Again
Page 1 of 4