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Thank you for this information. Some women report that HRT makes them have unbearably sore breasts and/ or uterine cramping. What sort of combination did you receive? Of the hormones? Thank you.

That is a brilliant idea!! Just brilliant.

Bravo. With this strong imagery and concise language, Veronica, you offer a fresh or insightful perspective on living with ME, and thereby invite the reader to see things in a new light and visualise that reality in a very powerful way. Also, it's extremely important to have patient voices...

Bravo and thank you to Chris. Will anyone act on his words?

Dr. Edwards, not wishing to change the discussion, but curious: what about fibromyalgia points being painful. A good number of pts seem to have this also. Dr. Moreau in Montreal said with his test he could determine who had this additional symptom and who did not. Secondly, what about autism...

Every time that I read Veronica's writing I am moved to tears by the time I reach the end of a poem. Such incredible beautiful writing, and encapsulating so much longing and unbearable suffering.

Curious what is the opinion of the science savvy folks on S4me about Dr. Wirth's thesis. For a layman like myself it does look very rational and seems to explain all the symptoms that appear. Would be grateful to hear what others think. Thank you

They said they are looking at approved drugs. Yes,Kitty, that is their plan. No timeline was offered, alas.

Also learned that they are not initiating at this moment any development of a new drug. They are focusing on repurposing approved drugs/ medications.

One of the founders, Dr. Wirth has worked closely with Dr. Scheibenbogen, apparently.

Not sure where to post this: list of clinical trials for LC and ME: https://crunchme.notion.site/4d00e39f9f874a4c85cb9046149aeba7?v=2c3284eb773a403e817db9598480a768

OMF just posted an interview with Dr. Systrom. Very discouraged here: gives the impression that Mestinon & LDN will help, and then doctors everywhere will be able to prescribe this off label. IN the USA many pts have tried the two already, years ago. CFS doctors were offering it to try. Pts did...

I have a few friends in the UK & Ireland who are on LDN, but it has not really helped, according to their reports. Folks are desperate and are willing to try almost anything. No substance so far touches the core problem of Exertion Intolerance. If trialling these 2 drugs is a way of learning how...

I have been in touch with pts in Germany, who were trying it, and also no decent results, and many side effects. If this is all that is on the table for trialing for this horrific illness, then heartbreak and tears. Best wishes.

OK, mea culpa for assuming what is available in the USA is also available in the UK. in the USA it is easily available. In the early 2000s it was truly widely prescribed by physicians dealing with chronic illnesses, ME and Lyme, etc. There were and are pharmacies ( I dealt with one in Forida)...

These 2 drugs IMHO will not result in much, and this is a waste of money. LDN is not tolerated by many pts due to side effects. Improvements are minimal, in those it helps. Most pts have tried and are trying LDN. I have not met a soul who has not tried LDN. This is not a solution. As for...

Another brilliant perceptive post dear Hubris. Thank you. Actually there isn’t enough work done on the effects of being forced into this kind of life and what it really does emotionally and mentally to a person who has to amputate every single human desire day after day because otherwise their...

You describe this very well and my daughter has used similar words. No one should have to have this happen to him or her. We don’t really live in a careful and caring world if young people are abandoned to lie in their sick beds for years on end. There is no urgency anywhere at all except in...

Thank you. From what I see it looks more like severe weakness, not fatgue: a complete inability to generate energy, and when after days and weeks of immobilization some energy is manufactured it is a tight rope walk because using/ overusing what is in the bank ( which you can’t see) leads to PEM...

Thanks Hubris: your comment is brilliant. My daughter was a criminal lawyer, and indeed the criminal's life is better than a pt with severe ME: which destroys not only your life, but if you are sick long enough and severely enough, it can start to fracture your personality. Because identity and...