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  1. petrichor
    Post

    A new consensus? - ME/CFS skeptic blog

    I get the impression that the distinction between "supportive CBT" and "pace-style CBT" may not be as clear as it seems. Both of them would still...
    Post by: petrichor, May 18, 2023 in forum: ME/CFS research
  2. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Yes, I read that and wasn't impressed with that. Diagnostic criteria referring to instruments doesn't mean they're "proven", nor does being...
    Post by: petrichor, May 16, 2023 in forum: Other reviews with a public consultation process
  3. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    I think it's good IQWiG acknowledged how small the effect sizes are in the press release. I think that's something obvious but it's also very...
    Post by: petrichor, May 16, 2023 in forum: Other reviews with a public consultation process
  4. petrichor
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Thank you for engaging on the forum and getting involved in this @sarahtyson. Apologies if I missed anything in this thread, since I haven't read...
    Post by: petrichor, May 10, 2023 in forum: ME/CFS research news
  5. petrichor
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    They say a difference of 6 is considered a clinically relevant effect for the CIS-20, and they cite this paper for that statement. I don't see...
    Post by: petrichor, May 9, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. petrichor
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Can they at least give an explanation as to why it's okay to write a review with a clinically unimportant "non-zero" effect as the effect of...
    Post by: petrichor, Apr 25, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  7. petrichor
    Post

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    Good to hear
    Post by: petrichor, Apr 12, 2023 in forum: News from organisations
  8. petrichor
    Post

    OpenAi's new ChatGPT

    I've seen it pointed out that it can make responses that sound very plausible and as if it knows what it is talking about, but are still wrong or...
    Post by: petrichor, Dec 6, 2022 in forum: Other health news and research
  9. petrichor
    Post

    Basic questions on terms and methodology used in clinical trials

    It notes that "Regarding the hypothesis formulation, a two-sided test problem is traditionally assumed. Exceptions include non-inferiority...
    Post by: petrichor, Nov 24, 2022 in forum: Trial design including bias, placebo effect
  10. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    That's understandable. Unfortunately I don't know German, so I would struggle to submit my own comment, but it would be good if anyone can...
    Post by: petrichor, Nov 14, 2022 in forum: Other reviews with a public consultation process
  11. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    As suggested by @MSEsperanza I will also post the comments that I put in the pdf too, so they're easier to view and refer to, which follow on from...
    Post by: petrichor, Nov 13, 2022 in forum: Other reviews with a public consultation process
  12. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    This is the draft of comments I've written up. It got a bit long, so I put some of the less important or more duplicated points in an attached...
    Post by: petrichor, Nov 10, 2022 in forum: Other reviews with a public consultation process
  13. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    This all looks correct, great work. It looks like they relied on the PEM survey referred to in the iqwig preliminary report to determine how many...
    Post by: petrichor, Nov 1, 2022 in forum: Other reviews with a public consultation process
  14. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    I don't think that's exactly what they're saying here, although it sort of is. That's how it's categorized in table 54. So if it's a randomized...
    Post by: petrichor, Oct 18, 2022 in forum: Other reviews with a public consultation process
  15. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    I've had a not super thorough look at the google translated document (so I may be mistaken about some aspects). There's probably a lot to say...
    Post by: petrichor, Oct 15, 2022 in forum: Other reviews with a public consultation process
  16. petrichor
    Post

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    They didn't find a clinically relevant effect size for GET vs SMC for the primary outcomes so I assume they saw no point in including a...
    Post by: petrichor, Oct 14, 2022 in forum: Other reviews with a public consultation process
  17. petrichor
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think at this point everyone has heard the counter arguments. Perhaps one or two responses are fine. But besides that I do not see any point in...
    Post by: petrichor, Oct 10, 2022 in forum: Long Covid news
  18. petrichor
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    If Garner is just trying to get a reaction, as appears to be the case in above tweeting, it's better to just ignore him
    Post by: petrichor, Oct 9, 2022 in forum: Long Covid news
  19. petrichor
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    In some previous instances when they've used the #maddoxprize tag it's been in various instances of scientists facing hostility, which is the...
    Post by: petrichor, Oct 9, 2022 in forum: Long Covid news
  20. petrichor
    Post

    Suzy Weiss Manifesto on “Spoonie” Culture

    It's very annoying for people to take such predictable stances and arguments like that, but at the same time think that they're being so brave by...
    Post by: petrichor, Sep 10, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
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