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  1. JemPD
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Its absolutely not an excuse! But in answer to that question - yes often they do, at least according to the autistic people i know. And it...
    Post by: JemPD, Apr 22, 2024 at 7:18 PM in forum: General ME/CFS news
  2. JemPD
    Post

    Article The Times 'Parents accused of faking their child's Long Covid' (talks about FII accusations in ME/CFS)

    I know right. I was actually glad to see it in print, because when i told someone close to me about them using such things to discredit...
    Post by: JemPD, Apr 22, 2024 at 5:37 PM in forum: General ME/CFS news
  3. JemPD
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I think there is lack of awareness in psychology field generally that there would be any potential for harms, outside of downright abuse by a...
    Post by: JemPD, Apr 22, 2024 at 5:33 PM in forum: General ME/CFS discussion
  4. JemPD
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I think part of the problem is that for a healthy person lots of bustle & noise & clatter is unpleasant, but nurses (in general, as evidenced by...
    Post by: JemPD, Apr 22, 2024 at 4:00 PM in forum: General ME/CFS news
  5. JemPD
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    brief article about this here Article The Times 'Parents accused of faking their child's Long Covid' (talks about FII accusations in ME/CFS) |...
    Post by: JemPD, Apr 22, 2024 at 1:18 PM in forum: Recruitment into current ME/CFS research studies
  6. JemPD
    Thread

    Article The Times 'Parents accused of faking their child's Long Covid' (talks about FII accusations in ME/CFS)

    image copied from MEA facebook page. Article apparently in print edition 17/4/24
    Thread by: JemPD, Apr 22, 2024 at 1:16 PM, 3 replies, in forum: General ME/CFS news
  7. JemPD
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Edited to add: Cross posted with @Trish I do have a concern I'd like you consider please @Dania Ala I'm pointing this out because you seem to...
    Post by: JemPD, Apr 22, 2024 at 1:09 PM in forum: Recruitment into current ME/CFS research studies
  8. JemPD
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    the challenge with 'well-washing' is that 'well' has 2 meanings, particularly once you use the term in the past tense... So you could say...
    Post by: JemPD, Apr 22, 2024 at 9:12 AM in forum: General Advocacy Discussions
  9. JemPD
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    love that!
    Post by: JemPD, Apr 21, 2024 at 10:23 PM in forum: General Advocacy Discussions
  10. JemPD
    Post

    Some items on gaslighting

    id actually caution against that... at least in UK if your advocate writes it down then fine, but you writing it down, if they are already leaning...
    Post by: JemPD, Apr 20, 2024 at 11:38 PM in forum: Resources
  11. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    :thumbup::) No worries at all, its reaaalllly confusing. which of course suits them down to the ground I'm sure they do it on purpose...
    Post by: JemPD, Apr 20, 2024 at 8:59 PM in forum: Work, Finances and Disability Insurance
  12. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I hear what you're saying, & they could undoubtedly turn the currently proposed SDG into something akin to 'if you dont qualify for the SDG then...
    Post by: JemPD, Apr 20, 2024 at 6:53 PM in forum: Work, Finances and Disability Insurance
  13. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    thats a relief, i also didnt pay much attention to the fit note detail back then because its a long way from applying to me, unfortunately. ETA:...
    Post by: JemPD, Apr 20, 2024 at 3:01 PM in forum: Work, Finances and Disability Insurance
  14. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    That wasnt new information for me though, i'm sure i've read that before so it must have been proposed somewhere? Does anyone else remember it?
    Post by: JemPD, Apr 20, 2024 at 2:53 PM in forum: Work, Finances and Disability Insurance
  15. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    my bolding So you didnt have to start a new claim? It was just the old previous claim continuing but it had to be re-entered into the system by...
    Post by: JemPD, Apr 20, 2024 at 2:52 PM in forum: Work, Finances and Disability Insurance
  16. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Regarding Sunak's speech & the announcements in the press in last couple of days... I appreciate this is just a 'lets vilify the...
    Post by: JemPD, Apr 20, 2024 at 2:28 PM in forum: Work, Finances and Disability Insurance
  17. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Toa Fogger's quote was about the rules surrounding automatic qualification for the benefit without an assessment. So while i agree with...
    Post by: JemPD, Apr 20, 2024 at 2:20 PM in forum: Work, Finances and Disability Insurance
  18. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    It all makes me livid. But for me one of the most grotesque comments/plans is that they're proposing giving 'medical treatment' instead of...
    Post by: JemPD, Apr 20, 2024 at 2:11 PM in forum: Work, Finances and Disability Insurance
  19. JemPD
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    That Monbiot interview was wonderful, thanks so much to both of you I agree it'd have broken the flow, but I hope you'll be able to convey that...
    Post by: JemPD, Apr 19, 2024 at 10:34 PM in forum: News from organisations
  20. JemPD
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    oh, @Dania Ala i forgot to say that these videos that @NelliePledge linked to in the quote below are really excellent and would help you learn a...
    Post by: JemPD, Apr 19, 2024 at 9:28 PM in forum: Recruitment into current ME/CFS research studies
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