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  1. Rossy191276
    Post

    Metabolic features and regulation of the healing cycle—A new model for chronic disease pathogenesis and treatment, Robert K Naviaux, 2018

    Yes and from my understanding Naviaux’s hypothesis includes the suggestion that any initiating trigger likely needs resolving for CD-R problem to end
    Post by: Rossy191276, Aug 17, 2018 in forum: Other health news and research
  2. Rossy191276
    Post

    Metabolic features and regulation of the healing cycle—A new model for chronic disease pathogenesis and treatment, Robert K Naviaux, 2018

    But isn’t the point of this article hypothesising that the causal agent becomes the stuck on CD-R which is then activated by any stressor ( so...
    Post by: Rossy191276, Aug 16, 2018 in forum: Other health news and research
  3. Rossy191276
    Post

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    Whatever the mechanism I guess its likely that clonazapem is working in the same way. If these drugs are down regulating the clonally expanded T...
    Post by: Rossy191276, Aug 13, 2018 in forum: Drug and supplement treatments
  4. Rossy191276
    Post

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    Thanks everyone for your replies. Like many things in this illness it seems there are many possibilities to what could potentially contribute to...
    Post by: Rossy191276, Aug 12, 2018 in forum: Drug and supplement treatments
  5. Rossy191276
    Post

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    I think it definately must be the gaba effects @James Morris-Lent I just wonder how it is resulting in increased strength. I guess it is plausible...
    Post by: Rossy191276, Aug 11, 2018 in forum: Drug and supplement treatments
  6. Rossy191276
    Thread

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    I read where for Whitney Dafoe ativan increases his strength for a short period. I am also interested in this as clonazapem does the same for me....
    Thread by: Rossy191276, Aug 11, 2018, 45 replies, in forum: Drug and supplement treatments
  7. Rossy191276
    Post

    Muscle biopsy report - any thoughts?

    My muscle biopsy revealed: Selective type II atrophy- this finding is consistent with inflammatory and malnutrition disorders, both of which seem...
    Post by: Rossy191276, Aug 10, 2018 in forum: Laboratory and genetic testing, medical imaging
  8. Rossy191276
    Post

    How chronic administration of benzodiazepines leads to unexplained chronic illnesses: A hypothesis, 2018, LaCorte

    I was just about to start taking clonazapem again because it is the only drug I have found helpful throughout my time with illness. In searching...
    Post by: Rossy191276, Aug 2, 2018 in forum: ME/CFS research
  9. Rossy191276
    Post

    Machine Learning-assisted Research on ME/CFS

    @mariovitali I have low levels of albumin, transferrin, and ceruloplasmin. I note that these are all synthesised in the liver. Do you think these...
    Post by: Rossy191276, Jul 31, 2018 in forum: General ME/CFS news
  10. Rossy191276
    Post

    Reduced glycolytic reserve in isolated natural killer cells from ME/CFS patients: A preliminary investigation, Nguyen et al, 2018

    I had ‘moderately reduced glycogen levels’ on my muscle biopsy even though I eat quite a bit of carbs. I am wondering whether this might be a...
    Post by: Rossy191276, Jul 11, 2018 in forum: ME/CFS research
  11. Rossy191276
    Post

    Dysautonomia International Conference 2018 (Nashville, TN)

    Hi @JaimeS . Thank you for your attendance of this conference... I am wondering if muscle weakness/atrophy is ever mentioned as part of dysautonomia?
    Post by: Rossy191276, Jun 24, 2018 in forum: General ME/CFS news
  12. Rossy191276
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    Has anyone had muscle biopsy for muscle symptoms? If so what were findings...
    Post by: Rossy191276, Jun 21, 2018 in forum: General and other signs and symptoms
  13. Rossy191276
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    Does anyone who gets the internal vibration or external shaking also have muscle weakness as major symptom?
    Post by: Rossy191276, Jun 20, 2018 in forum: General and other signs and symptoms
  14. Rossy191276
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    @LightHurtsME I am the same regarding the external shaking... They can contribute to severe crashes for me I assume because body doesn’t have...
    Post by: Rossy191276, Jun 20, 2018 in forum: General and other signs and symptoms
  15. Rossy191276
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    Yes mine range from internal tremor where I can feel on inside but can’t see to severe external shaking episodes. I only get these in upper legs...
    Post by: Rossy191276, Jun 19, 2018 in forum: General and other signs and symptoms
  16. Rossy191276
    Post

    Respiratory Chain Enzyme Function Analysis in ME?

    Thank you @Mij I assume then that Ron Davis did these tests as part of severely ill study...Do you know if he has talked about results of this...
    Post by: Rossy191276, Jun 12, 2018 in forum: Laboratory and genetic testing, medical imaging
  17. Rossy191276
    Thread

    Respiratory Chain Enzyme Function Analysis in ME?

    Does anybody know if researchers have done any respiratory chain enzyme function analysis studies using muscle tissue in ME? The mitochondrial...
    Thread by: Rossy191276, Jun 11, 2018, 3 replies, in forum: Laboratory and genetic testing, medical imaging
  18. Rossy191276
    Post

    Intense 24/7 muscular weakness and fatigue anyone ?

    Hi @Gingergrrl Sorry for my slow response I haven't been on for a while...My doctor had health issues so its taken a while to get things moving...
    Post by: Rossy191276, Jun 9, 2018 in forum: General and other signs and symptoms
  19. Rossy191276
    Post

    Intense 24/7 muscular weakness and fatigue anyone ?

    Post by: Rossy191276, Jun 9, 2018 in forum: General and other signs and symptoms
  20. Rossy191276
    Post

    13th Invest in ME Research International ME Conference - 1st June 2018

    I think also all the severe patients in Stanford study had gene testing and none had known mito disease causing mutations. I think its also quite...
    Post by: Rossy191276, Jun 3, 2018 in forum: General ME/CFS news
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