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UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

I had a look at the webpage on which the Benefits and Work article is based, and it doesn't actually mention ME/CFS as such. That seems to have...

Post by: Tao Fogger, Mar 14, 2024 in forum: Work, Finances and Disability Insurance
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UK Covid data

My understanding is it's a representative sample of the population who are being tested. If 1% test positive, that can be extrapolated to 1% of...

Post by: Tao Fogger, Feb 3, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
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UK Covid data

It's run by the UKHSA now, here https://ukhsa-dashboard.data.gov.uk/

Post by: Tao Fogger, Feb 2, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
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UK Covid data

https://www.gov.uk/government/news/ukhsa-and-ons-release-latest-winter-covid-19-infection-study-data So it seems they are still doing the random...

Post by: Tao Fogger, Feb 2, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
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UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

In response to point (ii), the first question is "In what capacity are you responding to this survey?" with the following options as responses An...

Post by: Tao Fogger, Aug 9, 2023 in forum: News from organisations
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How can we tell the UK/local prevalence of Covid these days?

They are still updating the data at https://coronavirus.data.gov.uk/ I'm not sure how complete it is, of course. The Zoe study is also still...

Post by: Tao Fogger, Jun 26, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
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Closed UK: DecodeME updates, was recruitment thread.

I also have been invited under the new criteria. Like Peter, I assume I was excluded originally because of other conditions. Similarly, I have...

Post by: Tao Fogger, Jun 26, 2023 in forum: Recruitment into current ME/CFS research studies
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Long Covid in the media and social media 2023

Full access in UK

Post by: Tao Fogger, May 23, 2023 in forum: Long Covid news
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United Kingdom: Science Media Centre (including Fiona Fox)

The section that mentions ME is the second half of a paragraph, and doesn't say much. The full quote is: "Another example relates to the activism...

Post by: Tao Fogger, Jul 22, 2022 in forum: News from organisations
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Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

Moved posts The new update seems to be up on youtube now [MEDIA]

Post by: Tao Fogger, Nov 23, 2021 in forum: ME/CFS research news
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UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

They have now https://www.nice.org.uk/guidance/ng206/documents/minutes-31

Post by: Tao Fogger, Oct 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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Safety and efficacy of ampreloxetine in symptomatic neurogenic orthostatic hypotension, 2021, Horacio Kaufmann et al

This was the company's news release on the phase III trial, published 15/9/21 on their website...

Post by: Tao Fogger, Oct 18, 2021 in forum: Other health news and research
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House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

the (uncorrected) transcript is now up online...

Post by: Tao Fogger, Oct 12, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

They did at least admit that the delay was caused by the protestations of clinicians about removing GET. IF only they could get their heads round...

Post by: Tao Fogger, Oct 12, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

There should be a transcript on Hansard tomorrow, assuming it's the same as for the House of Commons.

Post by: Tao Fogger, Oct 12, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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COVID-19 infection alters kynurenine and fatty acid metabolism, correlating with IL-6 levels and renal status, 2020, Thomas et al

From the little I read of the paper (very little - I don't have the brain cells to make sense of it), it certainly seems quite a leap to draw the...

Post by: Tao Fogger, Sep 3, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
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COVID-19 infection alters kynurenine and fatty acid metabolism, correlating with IL-6 levels and renal status, 2020, Thomas et al

No comments on it, but top of page 6 in the indented paragraph: "Although no significant changes were noted in methionine levels, increases in...

Post by: Tao Fogger, Sep 3, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
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GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

I'd love to believe that to be true, but, two of the references on the Wikipedia page about gaslighting are these: It may not have been in...

Post by: Tao Fogger, Sep 2, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
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NICE ME/CFS guideline - draft published for consultation - 10th November 2020

I'm not sure if it's just me, but, in the current guidelines, on the interactive flow chart, I can't actually access the sections on CBT and GET....

Post by: Tao Fogger, Mar 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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BPS attempts at psychologizing Long Covid

I'm inclined to think that the 'trauma' that doctors speak of here is not so much childhood trauma, so much as the trauma of being psychologised...

Post by: Tao Fogger, Nov 30, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid

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