I’ve had a cold for over three weeks, sofa/bedbound for all that time. Atm it’s getting worse, not better, fatigue bad, and I have booster booked this evening. I think I don’t dare take it
Sudden onset of problems walking was my first indication that something was going very wrong. Could barely move my legs. Stamina hasn’t proved so much of interest as I’ve never recovered the strength to test it
I take no chances. I rest in bed 4-6 times a day for 15-30 minute whether I need it or not. My symptoms are pretty stable day to day without proper crashes. There are no days when I can’t leave the bed, although it’s always a battle. I’m assuming those rests are what keeps me steady, although...
I too used to work in a situation that required razor sharp focus and memory (I’m a, or was a pro musician). Six months into the illness one night I was 15 minutes into a show staring at the music hopelessly lost, and it wasn’t even hard stuff. I was embarrassed, frustrated and terrified. How...
I’m right at the high end of moderate at the moment and feeling the moment approaching when a mobility scooter might be necessary. I can’t walk more than 50 to a hundred yards without needing to rest. Putting to one side the problem of living in a first floor flat, I’m terrified by the idea...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.