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  1. TheBassist

    UK: Voting in government elections

    I’m lucky: I only have to cross the road to express my opinion
  2. TheBassist

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I’m not happy to fund it. I assume they’ll be pleased to refund my money on account of insult offered to my friends on my coin? No, i imagine not
  3. TheBassist

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Without actually reading it, providing so many links strikes me as a classic “data dump”.
  4. TheBassist

    New German Trial for Rituximab? (High Dose)

    Oh boy. Here we go. I wish her a lot of luck, so far it doesn’t sound pleasant
  5. TheBassist

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    The only question they should be asking is whether the images are representative
  6. TheBassist

    Covid-19 vaccination experiences

    So far, at 4 hours later, not looking good. No sensation in lips or tongue, arm joint pain, sinus headache
  7. TheBassist

    Covid-19 vaccination experiences

    Update, I had it. The Pfizer as it turned out. Let’s see then
  8. TheBassist

    Covid-19 vaccination experiences

    I’ve had a cold for over three weeks, sofa/bedbound for all that time. Atm it’s getting worse, not better, fatigue bad, and I have booster booked this evening. I think I don’t dare take it
  9. TheBassist

    Dehydration-like feeling next day after exertion?

    I've been thinking hard, and I can feel it in my arms (d'oh!)
  10. TheBassist

    Do all ME / CFS sufferers have low stamina?

    Sudden onset of problems walking was my first indication that something was going very wrong. Could barely move my legs. Stamina hasn’t proved so much of interest as I’ve never recovered the strength to test it
  11. TheBassist

    Dehydration-like feeling next day after exertion?

    That said, I don’t crash hard. I don’t provoke the monster all that much on the whole.
  12. TheBassist

    Mini-crashes in late afternoon / early evening?

    I take no chances. I rest in bed 4-6 times a day for 15-30 minute whether I need it or not. My symptoms are pretty stable day to day without proper crashes. There are no days when I can’t leave the bed, although it’s always a battle. I’m assuming those rests are what keeps me steady, although...
  13. TheBassist

    Dehydration-like feeling next day after exertion?

    Me too. Thirsty and noise sensitive
  14. TheBassist

    Ear muffs for better rest

    Yep. They’re great. Not cheap for worthwhile ones. Mine are £350 sennheisers
  15. TheBassist

    Brain fog poll

    I too used to work in a situation that required razor sharp focus and memory (I’m a, or was a pro musician). Six months into the illness one night I was 15 minutes into a show staring at the music hopelessly lost, and it wasn’t even hard stuff. I was embarrassed, frustrated and terrified. How...
  16. TheBassist

    Brain fog poll

    Couldn’t put it better. The quick analogy I give to people is it’s like thinking with the handbrake on, but that barely scratches the surface
  17. TheBassist

    Let's talk wheelchairs and mobility scooters

    I’m right at the high end of moderate at the moment and feeling the moment approaching when a mobility scooter might be necessary. I can’t walk more than 50 to a hundred yards without needing to rest. Putting to one side the problem of living in a first floor flat, I’m terrified by the idea...
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