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  1. TheBassist
    Post

    UK: Voting in government elections

    I’m lucky: I only have to cross the road to express my opinion
    Post by: TheBassist, Apr 2, 2024 in forum: General disability topics and advocacy
  2. TheBassist
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Your student seems to confirm that culture trumps all here?
    Post by: TheBassist, Apr 1, 2024 in forum: ME/CFS research news
  3. TheBassist
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I’m not happy to fund it. I assume they’ll be pleased to refund my money on account of insult offered to my friends on my coin? No, i imagine not
    Post by: TheBassist, Apr 1, 2024 in forum: ME/CFS research news
  4. TheBassist
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Without actually reading it, providing so many links strikes me as a classic “data dump”.
    Post by: TheBassist, Apr 1, 2024 in forum: ME/CFS research news
  5. TheBassist
    Post

    New German Trial for Rituximab? (High Dose)

    Oh boy. Here we go. I wish her a lot of luck, so far it doesn’t sound pleasant [MEDIA]
    Post by: TheBassist, Jan 30, 2024 in forum: ME/CFS research news
  6. TheBassist
    Post

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    The only question they should be asking is whether the images are representative
    Post by: TheBassist, Jan 13, 2023 in forum: ME/CFS research
  7. TheBassist
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Is this individual just another verbose woo menace?
    Post by: TheBassist, Nov 12, 2022 in forum: Blood (e.g. coagulation, cell stiffness)
  8. TheBassist
    Post

    Covid-19 vaccination experiences

    So far, at 4 hours later, not looking good. No sensation in lips or tongue, arm joint pain, sinus headache
    Post by: TheBassist, Dec 28, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  9. TheBassist
    Post

    Covid-19 vaccination experiences

    Update, I had it. The Pfizer as it turned out. Let’s see then
    Post by: TheBassist, Dec 27, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  10. TheBassist
    Post

    Covid-19 vaccination experiences

    Yes, negative.
    Post by: TheBassist, Dec 27, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  11. TheBassist
    Post

    Covid-19 vaccination experiences

    I’ve had a cold for over three weeks, sofa/bedbound for all that time. Atm it’s getting worse, not better, fatigue bad, and I have booster booked...
    Post by: TheBassist, Dec 27, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  12. TheBassist
    Post

    Dehydration-like feeling next day after exertion?

    I've been thinking hard, and I can feel it in my arms (d'oh!)
    Post by: TheBassist, Aug 5, 2021 in forum: Post-Exertional malaise and fatigue
  13. TheBassist
    Post

    Do all ME / CFS sufferers have low stamina?

    Sudden onset of problems walking was my first indication that something was going very wrong. Could barely move my legs. Stamina hasn’t proved so...
    Post by: TheBassist, Aug 5, 2021 in forum: Post-Exertional malaise and fatigue
  14. TheBassist
    Post

    Dehydration-like feeling next day after exertion?

    That said, I don’t crash hard. I don’t provoke the monster all that much on the whole.
    Post by: TheBassist, Aug 5, 2021 in forum: Post-Exertional malaise and fatigue
  15. TheBassist
    Post

    Mini-crashes in late afternoon / early evening?

    I take no chances. I rest in bed 4-6 times a day for 15-30 minute whether I need it or not. My symptoms are pretty stable day to day without...
    Post by: TheBassist, Aug 5, 2021 in forum: Post-Exertional malaise and fatigue
  16. TheBassist
    Post

    Dehydration-like feeling next day after exertion?

    Me too. Thirsty and noise sensitive
    Post by: TheBassist, Aug 5, 2021 in forum: Post-Exertional malaise and fatigue
  17. TheBassist
    Post

    Ear muffs for better rest

    Yep. They’re great. Not cheap for worthwhile ones. Mine are £350 sennheisers
    Post by: TheBassist, Aug 1, 2021 in forum: Neurological/cognitive/vision
  18. TheBassist
    Post

    Brain fog poll

    I too used to work in a situation that required razor sharp focus and memory (I’m a, or was a pro musician). Six months into the illness one night...
    Post by: TheBassist, Aug 1, 2021 in forum: Neurological/cognitive/vision
  19. TheBassist
    Post

    Brain fog poll

    Couldn’t put it better. The quick analogy I give to people is it’s like thinking with the handbrake on, but that barely scratches the surface
    Post by: TheBassist, Aug 1, 2021 in forum: Neurological/cognitive/vision
  20. TheBassist
    Post

    Let's talk wheelchairs and mobility scooters

    I’m right at the high end of moderate at the moment and feeling the moment approaching when a mobility scooter might be necessary. I can’t walk...
    Post by: TheBassist, Sep 9, 2020 in forum: Home adaptations, mobility and personal care
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