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  1. belbyr
    Post

    Metrodora Clinic news and discussion (Salt Lake City area)

    Laura Pace is there and she is an outstanding gastro doctor that has done many presentations for dysautonomia international.
    Post by: belbyr, May 20, 2023 in forum: USA clinics and doctors
  2. belbyr
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    That twitter post helped make a lot of sense. Autoimmunity of some sort has to be 'part of' the big picture. My autoimmune friends go through...
    Post by: belbyr, May 13, 2023 in forum: ME/CFS research news
  3. belbyr
    Thread

    Stage 2 kidney disease

    I just had an appointment with my nephrologist because back in 2018 an ER doctor saw some slightly increased protein in my urine. Local...
    Thread by: belbyr, May 12, 2023, 0 replies, in forum: General and other signs and symptoms
  4. belbyr
    Post

    Research news from Bhupesh Prusty

    I just watched it, and it was very rushed. I had trouble following along but caught some of the gist of it. I still feel in the dark though. I...
    Post by: belbyr, May 11, 2023 in forum: ME/CFS research news
  5. belbyr
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    What is concerning to you?
    Post by: belbyr, May 8, 2023 in forum: ME/CFS research news
  6. belbyr
    Post

    USA: NIH National Institutes of Health news

    Maybe I'm missing something but what are the 'possible treatments'? Is it ivig?
    Post by: belbyr, May 6, 2023 in forum: News from organisations
  7. belbyr
    Post

    mTOR activation, ATG13 inactivation and suppression of autophagy

    https://www.healthrising.org/blog/2022/07/06/apamycin-resurgence-doctor-chronic-fatigue-syndrome/ I felt this story was kind of far fetched like...
    Post by: belbyr, May 4, 2023 in forum: Possible causes and predisposing factor discussion
  8. belbyr
    Thread

    mTOR activation, ATG13 inactivation and suppression of autophagy

    Split from USA: NIH National Institutes of Health news Avik Roy and Gunnar Gottschalk presented their hypothesis on a NIH ME/CFS working Group...
    Thread by: belbyr, May 3, 2023, 7 replies, in forum: Possible causes and predisposing factor discussion
  9. belbyr
    Post

    USA: NIH National Institutes of Health news

    Feels good to see some of this hard data come out. Who thought the NIH would be the ones to help CFS patients and researchers find some leads...
    Post by: belbyr, May 2, 2023 in forum: News from organisations
  10. belbyr
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    To add: It seems the NIH has decided to take this same study and run it in Gulf War Syndrome patients. My gut feeling is they wouldn't be doing...
    Post by: belbyr, Apr 30, 2023 in forum: ME/CFS research news
  11. belbyr
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I agree with some of the sentiment above. I think Nath knows the controversy surrounding CFS. He’s knows he’s very outnumbered by physicians who...
    Post by: belbyr, Apr 30, 2023 in forum: ME/CFS research news
  12. belbyr
    Post

    Preprint [Preprint] Exosome-associated Mitochondrial DNA Elevated in... ME/CFS and Stimulates... Microglia to Secrete IL-1β, 2023, Theoharides, Natelson et al

    https://www.cell.com/cell-reports/pdf/S2211-1247(22)01653-9.pdf Do we need anti anxiety meds 24/7?
    Post by: belbyr, Apr 27, 2023 in forum: ME/CFS research
  13. belbyr
    Thread

    Preprint [Preprint] Exosome-associated Mitochondrial DNA Elevated in... ME/CFS and Stimulates... Microglia to Secrete IL-1β, 2023, Theoharides, Natelson et al

    Exosome-associated Mitochondrial DNA is Elevated in Patients with ME/CFS and Stimulates Human Cultured Microglia to Secrete IL-1β...
    Thread by: belbyr, Apr 27, 2023, 13 replies, in forum: ME/CFS research
  14. belbyr
    Post

    Research news from Bhupesh Prusty

    I don’t really know. I ‘think’ there are many different diseases that need to be excluded before CFS is made the diagnosis. I have a gut feeling a...
    Post by: belbyr, Apr 26, 2023 in forum: ME/CFS research news
  15. belbyr
    Post

    Research news from Bhupesh Prusty

    I know how you feel. I think there is hope to hold out for with the NIH paper, if Prusty is a let down. I'm convinced Nath and his team have found...
    Post by: belbyr, Apr 25, 2023 in forum: ME/CFS research news
  16. belbyr
    Post

    Symptom persistence and biomarkers in post-COVID-19/chronic fatigue syndrome – results from a prospective observational cohort 2023, Scheibenbogen et

    The low incidence of POTS is surprising to me. I know Klimas, Rowe, Systrom, and probably others would say the prevalence is much much higher.
    Post by: belbyr, Apr 25, 2023 in forum: Long Covid research
  17. belbyr
    Post

    High body temperature

    I get this and I personally think it is related to the high levels of norepinephrine I have from POTS. Typically when I feel my heart rate is...
    Post by: belbyr, Apr 24, 2023 in forum: General and other signs and symptoms
  18. belbyr
    Post

    News from Scandinavia

    I was wondering where Jonas disappeared to over the last 1-2 years, or so? There's a strong convergence of neurological-inflammation that seems...
    Post by: belbyr, Apr 24, 2023 in forum: Regional news
  19. belbyr
    Post

    Severe difficulties with eating in ME/CFS

    I have something strange to add. As stated before my worst symptoms are gastro issues that keep me house/bed bound and therapies/medications just...
    Post by: belbyr, Apr 21, 2023 in forum: ME/CFS research
  20. belbyr
    Post

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    I sure hope Prusty and Nath can make some jaw dropping presentations soon because I am feeling raked over the coals. I hate seeing $ for...
    Post by: belbyr, Apr 20, 2023 in forum: Long Covid news
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