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Thank you, it is, makes me worry they'll miss something. I don't understand why this isn't researched more, Gastro problems seem very common with people with ME/CFS.

Thank you, will have to have another word with the Paediatrician about nausea meds, he recommended peppermint oil capsules. They all seem adverse to giving medication, all very well for them to say the symptoms will improve when the condition improves. Good idea re: lots of calories...

She has seen a dietician, don't think she understood the condition very well so the advice was very basic, keeping a food diary was one. She takes pictures of her food on her phone as a record. I had been giving her Chocolate Complan in the morning and the Dietician advised against using that...

It's mainly nausea, lack of appetite, stomach pain after eating at times and cramps with diarrhoea but those seem to be the go to drugs despite saying they don't work.

I had to convince the CFS physiotherapist she's had these symptoms in varying degrees for 6 years and they consistently continued after school was closed due to Covid-19, it was one lesson she did at school. Completely agree, the brain fog is horrible for concentration/remembering and indeed...

My daughter is 15, she has had ME/CFS now for 6 years. Gastro problems have always been a big part of her symptoms (stomach pain, lack of appetite, nausea, diarrhoea/cramps IBS type). She's got swallowing problems (waiting for a Paediatric SALT appointment) and she will have a Calprotectin...

I have put up a poll on Twitter and will send any results to cfs@nice.org.uk along with the comments I receive in relation to the positive or negative results of "interventions" people have received. It's worth a try, I'm not sure what response I'll get. It's a basic poll. As said in the e-mail...

@adambeyoncelowe @Amw66 This is the response I received (to clarify I was the one who posted that on Twitter):

This is the Memorial list of people we've lost to M.E/CFS. I think a visual list of people who have died with a short description next to their picture would be very powerful. Age. Cause of death. Anything they were involved in (books, advocacy etc). A slideshow if you will. The number shocked...

Horses can't talk is that it? He's taking the word Horse literally?

@inox Technically correct but I doubt it will blow up in anyones face but his. Sharpe seems to have a very sensitive ego.

Is it the name change of the Department of Health?? The Department of Health and Social Care (DHSC) didn't fund it but the Department of Health (DH) did???

What doesn't make any sense is that The Department of Health (and Social Care) state in an FOI reply that they have contributed £200,000 which is included in the MRC figure. In a response to an FOI requesting how much they have contributed to the PACE Trial funding for Queen Mary University of...