Search results

Would a white 15 or 20foot shipping container be suitable? The former cost around £3000 delivered in the UK. Personally I would stress over the multiple odors generated with multiple finnishes and preservative so would aim to keep it very simple. You can buy already insulated internally but...

We have just been through the reassesment and even the assessor agreed their script did not capture the reality of how cfs effects daily activity. They did not wish to discuss reliability repeatedly etc as it was off script. Saying ME was not an option it was called cfs . So I suggest you need...

We use it for assistance at the airport discreetly on our cabin bag. It helps with customs and the scanner search process expecially when brain fogged out. They are just that bit more understanding . Never made the slightest difference elsewhere.

With all the pip news i may have missed it. But any news on DHSC delivery plan on ME/CFS April 10, 2025 MPs were told end of June according to the MEA news page for 10 April. I Maybe cynical and it does not state in what year.

For the last month I have found ORS wonderful in reducing my calf cramp, dorsa flexion following an ankle injury 5 years ago and general widespread joint pain. The calf pain was diagnosed as over training syndrome but to me it felt like being held at the get-set moment permanently. I started...

Not only that but private landlords now see PIP claimants as a undesirable risk on top of the renters reform act. Historically PIP and state pension represented stability for payments. A couple one is an oap with wife on PIP working a few hours are soon to find notice to quit as house is going...

I printed off strips of my responces and pasted onto the form. Another time I just referenced the question and responded on a sheet of a4. My hand writing is illegible and spelling terrible so I apologised and trusted Word to sort it. DWP did not quible. You should be able to request an...

Gradually I have become used to 18 hours a day being flat. This gives me the remaining 6 hours as being fairly capable. Usually the transition from flat to vertical has very minor problems. But every time I have an MRI I experience a wobbly and weak transition and need a good minute before...

Thank you for doing this work as it should be my ICB by distance and postcode. Unfortunately, my surgery falls into Mid Essex making Southend the recommended clinic. I have been attempting for over a year to get to the Suffolk service which is way more easy to access but the Surgery and clinic...

A slight update was that my full blood count taken on the day showed absolutely normal as usual but slightly elevated cholesterol. I was aware of Jonathan’s ladder analogy but this is like finding an extra ladder extension with the overshoot. It enables super man mode. I still recall in 2003...

….leading to an ‘incapacity to proceed’. I carefully don’t qualify whether mentally or physical and end the sentence in a finality tone. Is this a mic drop Moment? It seems to convey to doctors this is a serious enough problem to me which seems to elicit their curiosity. Of course incapacity...

Just got off the phone to a friendly Dwp 2nd line agent after one hours wait. I was chasing up an award letter as the Blue badge expires and the local council has written saying they need 12 weeks processing time. Apparently DWP have just started looking at review forms sent in last January...

But are we guilty of looking at the negative side only in Jonathan’s equation? We all have varying levels and duration of pem - muscular failure being but one part. But do we not have a complimenting recovery mechanism leading to those very rare ‘good days’ or even run for England hours which...

To help with the DWP battles so many of us face for years Just because we don’t fit the expected norm.

Re “plantar flexion contractures”. We both have Plantar issues as we spend around 18 hours per day horizontal. Could you provide any further source information?

My partner has ME and has a very long history of utis’ every six weeks. The usual antibiotics from the gp became ineffectual or caused hives. A chance meeting on a plane with a consultant led to asking her gp for something called Hiprex. The gp really did not want to prescribe it at £16 a month...

https://www.bbc.co.uk/news/health-69040592 A little late to the party at least for this forum members

While I relate to many symptoms above, my wife has other experiences. Could we consider starting multiple threads on the lesser symptoms occasionally to bring out the differences or commonality between sufferers? For instance the International criteria lists poor breathing / breathlessness, what...

Just wanted to add my experience. I have long had low spo2 down to 83 on odd nights on my Samsung watch. The gp ridiculed these recordings as not accurate. For my part when I awake I know how the previous night has been by how challenged I feel once I get up. So low spo2 equals a bad me type...

I initially thought it was total consumption but even that would be out at 6 am. but the IHD says cost now per hour at £1.76. Our cheap rate is 14.84 so about right. The actual displayed consumption was 8.80 kW at 06.49 am. I had the presence to take a picture showing the red led on and the...