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  1. allyann
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    News from Australia

    I did a private submission over zoom. It was easier than I thought. Disability Advocacy services are also funded to help people with their...
    Post by: allyann, Oct 18, 2021 in forum: Regional news
  2. allyann
    Post

    Australia’s National Health & Medical Research Council’s ME/CFS Advisory Committee’s final report released

    I am looking forward to reading those submissions when they are finally published!
    Post by: allyann, Jul 15, 2019 in forum: General ME/CFS news
  3. allyann
    Post

    Australia’s National Health & Medical Research Council’s ME/CFS Advisory Committee’s final report released

    I was rapt that they read and took on board the submissions to the Joint Parliamentary Committee by Emerge and ME/CFS Legal Resources Australia...
    Post by: allyann, Jul 15, 2019 in forum: General ME/CFS news
  4. allyann
    Post

    Australia’s National Health & Medical Research Council’s ME/CFS Advisory Committee’s final report released

    A huge thank you to our advocacy organisations and patient reps on the Committee. And thank you to those who helped promote the public...
    Post by: allyann, Jul 12, 2019 in forum: General ME/CFS news
  5. allyann
    Post

    Who is advising the Australian government on ME and CFS research and treatment guidelines?

    Updated version is here: https://nhmrc.gov.au/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome I am also guessing the NHMRC will update...
    Post by: allyann, Oct 3, 2018 in forum: General ME/CFS news
  6. allyann
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    @dave30th I know you can't see this as you are blocked - I really think paranoia is setting in. [MEDIA]
    Post by: allyann, Jul 15, 2018 in forum: General ME/CFS news
  7. allyann
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    Whatever name is finally selected we need to have a plan to migrate people diagnosed with CFS to the new name. In Australia it is extremely hard...
    Post by: allyann, Jul 6, 2018 in forum: General ME/CFS news
  8. allyann
    Post

    Hospitalized Patient w/ Severe ME Looking For Treatment Guidelines

    How is it going @Paradoxfloss. Have you been able to contact the advocacy agency Greg mentioned? I have been thinking of you and hoping that the...
    Post by: allyann, Dec 28, 2017 in forum: Advocacy Action Alerts
  9. allyann
    Post

    Decreased connectivity and increased BOLD complexity in the default mode network in individuals with CFS, 2018, Shan et al

    Interesting conclusion: In conclusion, the DMN in CFS/ME is abnormal with more irregular activity, weaker connectivity, and more complex...
    Post by: allyann, Nov 21, 2017 in forum: ME/CFS research
  10. allyann
    Post

    13 Nov 2017 | Tuller & Lubet: 'Trial By Error: The Surprising New BMJ Best Practice Guide'

    and the reference to this study has also been removed: 282. Moss-Morris R, Sharon C, Tobin R, et al. A randomized controlled graded exercise...
    Post by: allyann, Nov 14, 2017 in forum: General ME/CFS news
  11. allyann
    Post

    13 Nov 2017 | Tuller & Lubet: 'Trial By Error: The Surprising New BMJ Best Practice Guide'

    Under Evidence Scores in the new version this has been removed: Graded exercise therapy and overall improvement: there is poor-quality evidence...
    Post by: allyann, Nov 14, 2017 in forum: General ME/CFS news
  12. allyann
    Post

    13 Nov 2017 | Tuller & Lubet: 'Trial By Error: The Surprising New BMJ Best Practice Guide'

    Apparently there is new version of the document (updated in the last month): Update: Nov 13th We wrote this post based on a version of the guide...
    Post by: allyann, Nov 14, 2017 in forum: General ME/CFS news
  13. allyann
    Post

    Using Heart rate monitoring to help with pacing.

    If a heart rate monitor was to listen for the second when a it goes above a limit it could be going off every few seconds if your heart rate is...
    Post by: allyann, Nov 7, 2017 in forum: Monitoring and pacing
  14. allyann
    Post

    Using Heart rate monitoring to help with pacing.

    I have just brought the Fitbit Ionic. It was pricy but I have programmed an app for it that checks for heart rate zones based on the principles of...
    Post by: allyann, Nov 6, 2017 in forum: Monitoring and pacing
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