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  1. Unable
    Post

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME - Crawley et al Jan 2020

    Interesting that there are a mix of positive and negative outcomes in that list. I would find those very hard to rank at one time. I would...
    Post by: Unable, Jan 8, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Unable
    Post

    Should rehabilitation goals reflect all aspects of functioning in relation to a biopsychosocial ICF perspective?, 2019, Riis-Djernaes et al

    Okay here’s something that struck me: Read the first arrow below, and tell me as a patient which would be the “Main Concept” for you? [ATTACH] I...
    Post by: Unable, Oct 8, 2019 in forum: Other psychosomatic news and research
  3. Unable
    Post

    Should rehabilitation goals reflect all aspects of functioning in relation to a biopsychosocial ICF perspective?, 2019, Riis-Djernaes et al

    Why are such studies (with loads of self-important words) given funding? I mean I know people want to improve what they can do, but this whole...
    Post by: Unable, Oct 8, 2019 in forum: Other psychosomatic news and research
  4. Unable
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Duplication is not a problem I think. An astute individual finding a new topic that interests them, will want to explore that topic from a...
    Post by: Unable, Oct 7, 2019 in forum: Advocacy Projects and Campaigns
  5. Unable
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    [ATTACH] Yes, it says that at the top of the questionnaire, but the headers for each of the tick boxes says “usual”... why does it not just say...
    Post by: Unable, Sep 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Unable
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    I searched online to find the questionnaire, and looked at several places where it is available. All use “usual”. I think were that changed, it...
    Post by: Unable, Sep 2, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Unable
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    Just to clarify, this questionnaire, by its very nature, is setting patients up to declare a full recovery on a treatment that has zero effect.
    Post by: Unable, Sep 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Unable
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    I cannot see how this scale could EVER be taken seriously. Look at the instructions, and think like a patient. To what should the patient be...
    Post by: Unable, Sep 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Unable
    Post

    Early warning signs of brain injury fatigue: It's like a switch is flipped

    This is interesting. I can have occasional short term episodes where my coordination becomes like some-one with cerebral palsy. Or so it feels to...
    Post by: Unable, Aug 30, 2019 in forum: Other health news and research
  10. Unable
    Post

    More PACE trial data released

    Ah! Interesting... .I hadn’t quite realised that.
    Post by: Unable, Aug 25, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Unable
    Post

    More PACE trial data released

    I wonder how well the physical function ratings tally with actual function as would be measured by a 6 minute walking test? I would have thought...
    Post by: Unable, Aug 25, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Unable
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I have those Sony ones. And yes they are pricey, but they are quite amazing I think! Although mine do have buttons on the left ear pad. One to...
    Post by: Unable, Aug 23, 2019 in forum: Hypersensitivity and Intolerance Reactions
  13. Unable
    Post

    More PACE trial data released

    Rather telling @Barry - not much difference is there? Imagine being shown those 4 graphs with no labels, and being told you could pick your...
    Post by: Unable, Aug 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Unable
    Thread

    Hopeful Medicine - Concerning article on NHS 10 yr plan,by DietDoctor.com

    https://www.dietdoctor.com/low-carb/for-doctors/hopeful-medicine “Motivation is the key to lifestyle changes Healthcare professionals do rightly...
    Thread by: Unable, Jul 30, 2019, 2 replies, in forum: Other health news and research
  15. Unable
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I doesn’t feel like more sound. I think it genuinely is a noise “cancelling” effect, like the head phones somehow reduce the sound. With my ones...
    Post by: Unable, Jul 22, 2019 in forum: Hypersensitivity and Intolerance Reactions
  16. Unable
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I’ll need to check the model, but they are Sony & more expensive than I would have paid, but they are good. (Edit - my husband bought them for me....
    Post by: Unable, Jul 14, 2019 in forum: Hypersensitivity and Intolerance Reactions
  17. Unable
    Thread

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I have just discovered the bliss offered by noise cancelling headphones!! I had thought they would only be good for the really severe, and so had...
    Thread by: Unable, Jul 11, 2019, 135 replies, in forum: Hypersensitivity and Intolerance Reactions
  18. Unable
    Post

    Weighted blankets

    If weight was added to the edges of the sheets you use, would that help the sheets feel heavier? Maybe someone could roll up some material to...
    Post by: Unable, Jul 11, 2019 in forum: Home adaptations, mobility and personal care
  19. Unable
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Oh but if they tried this, then the homeopathists would claim high success: “Homeopathy found to be every bit as successful as the highly...
    Post by: Unable, Jul 2, 2019 in forum: General ME/CFS news
  20. Unable
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    So which would patients prefer: a false hope that will certainly be dashed (and the patient blamed), or an honest appraisal of the situation?...
    Post by: Unable, Jun 20, 2019 in forum: General ME/CFS news
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