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You do have to be able to engage your muscle, which is why it’s of limited use as you get severe, but possibly ok for what you’re describing. I have daily episodes of not being able to get up, or getting frozen on the spot. It wouldn’t do anything in these circumstances because it increases the...

The Abstract seems to read differently now? It sounds interesting to me, though I’m not well enough to read the whole thing atm. I think it’s in a different academic space than people are used to here. Eg my other half wrote this publication on co-constructed research for the Arts and...

I did ask them about this and took a screenshot of them saying to me “To clarify, you are welcome to use the product to try it out, but when returning it, the product should not be damaged, show signs of use, or appear worn.” I definitely wouldn’t buy if this wasn’t the case, and suggest if...

A friend of mine who has MS recently posted a video of her walking well with an exoskeleton. This seems to be something some people with MS and Parkinson’s are exploring, but I’m not seeing ME chatter about it. Pic from website This is the main one I’ve seen and the one she has...

Yes of course we need to be careful, just like we wouldn’t blindly accept something a human medic or scientist said, I think most pwme are beyond that from our experience. But we could miss useful insight from being too cynical. The training is from all sorts of sources, but also includes...

I’m basing it on hearing about these. We dismiss the potential of AI for ME at our peril I think. It contains enormous volumes of medical information about the human body, more than human specialists can, and can potentially spot connections we are missing. This will include false positives...

Interpretation does need to be taken with a slight pinch of salt, but it’s also important to understand that “AI” isn’t a static entity. The model out this week has very low error rates on health bench marks, on the graph it’s essentially the difference between last week (white) on ChatGPT vs...

I explored the issues with this method in response to the previous paper here: https://tipsforme.wordpress.com/2016/10/24/learning-how-to-die/

@richie this is a GPT5 answer to your question: This is the analyse of the whole paper by the new GPT5 (hallucination is meant to be very low for health now with this model), is there anything new here? This is the view of a customGPT I created: Pathway-to-patient map (compressed view) 4...

I’m not up to reading this discussion or the paper but I put it through Google LM Notebook: Video (language a bit exaggerated): https://notebooklm.google.com/notebook/1e5d9261-37bf-43da-b8a4-63c831980a14?artifactId=d7f17a74-9b5a-43f5-9770-425e0e2fe26f Audio...

My original query was: Investigate the credibility that Methylene blue helps mitochondria function to the extent that it is clinically useful for neurological and neuroimmune conditions such as epilepsy, myalgic encephalomyelitis, mitochondrial myopathy, mitochondrial triggered atypical periodic...

I’ve just seen it suggested to improve mitochondrial function in neurological conditions on a video. I outsourced the rabbit hole to Perplexity deep research but I’m still a little unsure whether it is a viable idea requiring better evidence or a quack idea, probably leaning towards insufficient...

Sorry I didn’t keep this thread going. Are there similar threads? I’m assuming you’re probably using ChatGPT scheduled task feature or similar to keep up with relevant research these days? I can’t read very much so I find the Google lm notebook podcast feature useful when there’s new ME papers...

A similar tool is elicit.org

https://consensus.app/search/ :thumbup: Ask questions of research papers and also get a synthesise summary But PACE stretches its evaluation limits:

https://glass.health/ai/ I’m not a medic so I didn’t go further.

I’m getting quite obsessed with the AI Revolution stuff and thought it could be worth starting a thread to share resources which could be applied to ME in some way. I know some of the ME researchers do keep up with the forum. It might be that some others on the forum have skills to use existing...

Something you all could help me with is compiling the research data that we want Grace to access. Go to this members only thread to discuss the Grace project.

I’m creating a ME advocacy AI bot called Grace, a specialist in doing the tasks we need with instructions not to do stuff against our best interests (eg she should refuse to promote GET or argue for the old NICE guidelines). Read more or listen to explanation and audio versions of bot...