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How would leave a patient with minor UARS who's predominant ME/CFS symptom is PEM/PENE with delayed 48 - 72 onset plus the usual OI/POTs? Feels like it's a co-morbity or possibly enhances susceptibility, just as appears to be the case for EDS and hEDS. PEM or at least PENE is generally...

It seems very good for HRV - The averaged HRV readings whilst asleep seem to be helping me to gradually improve my HRV. I didn't manage that when I only had Visible.

I may be able to help towards this - I intend to write a full review of Visible as I think I’ve found out why it doesn’t quite work as intended. I’m crashed at the moment, but I’ll come back to this

I think it's probably daytime HRV dropping, as it isn't simply aligned with Heart Rate or movement. As if to demonstrate how messed up I am, I did a breathing exercise today. My Heart Rate predictably dropped, but so did my HRV from 10ms to 9ms then 8ms. Possibly because I was focussed on the...

So firstly, I spent a few days preparing myself for a visit to a UK store on a Saturday to make sure I was comfortable with it before purchasing. I tried to call in advance to confirm that I could make sure of this in the store and they confirmed that after checking size, I would be able to try...

A rare moment where the LEDs are actually visible whilst working.

Hi all. I’ve made the plunge and invested in an Oura Ring 4. Reason was, I lacked confidence in the HRV readings taken by my Visible App and armband each morning - I wanted to see in more detail what is going on overnight. It’s early days, but I’ve seen some very revealing trends (that I...

Is anyone aware if Dr Stanimira Lazarova still leads at Epsom and St. Helier please? If not, does anyone know who has replaced her please? Can find no record of her or or any current org structure / clinical lead for the specialism'. Only Bansal is listed under Fatigue, but I think that is...

Has the ME Association just become a glossy magazine subscription to help people with ME pass the time and ‘feel’ supported? Like “Caravan Owners Weekly” or something? What would it take for a significant part of their 5,000 members, and where are these members anyway? None on here (prepared...

Am I the only paying MEA member remaining within this community:(? So is it “last one out turns off the lights”? Will be sure to update when the Winter magazine arrives.

I’m inclined to agree as otherwise it becomes one of your day’s dominant activities, surely? Might be worth using the Visible Profile->Send Us A Message feature if you feel up to it. If not, I would be happy to do that for you :)

Finally, is there any journal out there covering the full day including Prague Questioning pease, or do we only have our own notes for that part?

Hypothesis that journalists were remote and locked out for Prague session.

Might I take full responsibility for this totally unnceptable misspelling of her surname, on my very first and every subsequent X post of the afternoon

That wasn't really the issue that caused the lock out, and apologies if I gave that impression on Xitter. What I think happened was that on three occasions in the afternoon, attendees accidentally pressed the "Mute All" button, which resulted in everyone including CR 4 being muted. Chat was...

So - Someone I spoke to on another forum said to find a specialist consultant at the Royal London, but reading above leaves me feeling quite vulnerable. I'm looking for a thread advising recommended consultants or specialists in and around London that ARE good for ME/CFS. Is there any thread...

Thanks MrMagoo. I think I did in fact properly understand that, but thank you for clarifying. My confusion is that the daily score seems rather random, and though I guide myself using it, and pace correctly, the outcome for the next day seems just as likely to be worse, equal or the same, when...

Hi all. Reading through this, I feel like I'm late to the party, and many of the guests have already gone home! I've been using Visible Plus, with the Polar armband for around three weeks now. I feel like I learned a fair bit about myself in the first few weeks. Firstly, I was amazed at which...