Although I can understand why unrefreshing sleep might be mentioned so frequently, how often is it a feature in other illnesses? A very quick Google presents this study suggesting around 10% of all people would report it.
Prevalence and Correlates of Nonrestorative Sleep Complaints, 2005...
Abstract
In neurons of the mammalian central nervous system (CNS), axonal mitochondria are thought to be indispensable for supplying ATP during energy-consuming processes such as neurotransmitter release. Here, we demonstrate using multiple, independent, in vitro and in vivo approaches that the...
"To Secretary of State for Health and Social Care Victoria Atkins MP
I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National Health Service (NHS) protocol to...
Trial By Error: Leading FND Site Confirms Criticisms on Prevalence Outlined in Our Letter to NeuroIogy Journal
https://virology.ws/2024/02/13/trial-by-error-neurosymptoms-org-faq-on-fnd-prevalence-confirms-criticisms-outlined-in-our-letter-to-neuroiogy-journal/
A typo in the title @dave30th ...
"We claim that FND symptoms have no physical cause, yet here are some people who, when investigated properly, are found to have physical explanations for the symptoms. Don't worry though, we'll still call it FND, even though this ruins our software/hardware dualistic explanation"
Abstract
Objective:
Neuroimaging studies have identified alterations in both brain structure and functional connectivity in patients with functional neurological disorder (FND). For many patients, FND emerges from physical precipitating events. Nevertheless, there are a limited number of case...
Just laughable, and morally offensive. "Let's lie to patients so that they answer our questionnaire in such a way that they indicate a non-existent treatment effect".
Abstract
Objective:
Limited research has directly investigated whether and how placebo effects can be harnessed for the treatment of functional neurological disorder (FND), despite a long-standing and controversial history of interest in this area.
Methods:
A small exploratory study was...
"Post-COVID condition or long COVID is a novel multisystem condition"
Novel if you ignore ME/CFS.
"Chronic Fatigue Syndrome/Myalgic Encephalitis"
And they can't even get the name right.
Well, if he has moved on to other things (he now appears to have his own lab, with lab news dating back to April 2019 - https://faculty.sites.uci.edu/esfandyarpourlab/ ) then I don't understand why Ron should then feel such reluctance to continue to investigate the nanoneedle.
Well, I don't think it is made clear whether there was one or two grants, "Rahim Esfandyarpour needed to not only get one of his grants funded to get tenure at the University of California at Irvine where he was working, he needed to get an NIH grant funded.". If there were two, with one needing...
Trial By Error: Unconvincing Response to Letter on FND Prevalence Inflation
https://virology.ws/2024/02/12/trial-by-error-unconvincing-response-to-letter-on-fnd-prevalence-inflation/
In those quoted comments Whitney pins all the blame on the NIH but doesn't explain why further funding from the OMF wasn't forthcoming - perhaps he will in his blog.
It doesn't appear to be indexed on PubMed, which is probably why I did not pick up on it when it was published.
This is it on the journal page, https://connect.springerpub.com/content/sgremdr/early/2023/06/26/emdr-2022-0060 - on my screen, to read the abstract, you need to click on the very...
I think Charles is being generous here. I was also at this workshop. My initial understanding of the workshop was that there would be far more opportunity for attendees to input into what they considered to be important directions to research. Instead we had a series of presentations by...
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