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  1. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    @Caroline Struthers why do they alternate between calling you Ms Struthers and Dr Struthers? (It's almost like they are addressing two different people.)
  2. Sly Saint

    Still to open Exploring Worry in CFS/ME, King's College London

    Chalder is regarded as one of their experts Our experts - South London and Maudsley (slam.nhs.uk)
  3. Sly Saint

    News from South Africa

    MELCuSA (ME and Long Covid Unite South Africa, formerly the ME CFS Foundation South Africa) https://www.iol.co.za/weekend-argus/news/pyjama-picnic-for-those-with-chronic-illnesses-will-be-sick-41ed931c-5082-4502-9f47-61c4a32d8ab0
  4. Sly Saint

    Review Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop

    given PG s affiliation with this group, what about the very out of date Cochrane review on CBT for CFS? ah........but then there was this reanalysis... Cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review...
  5. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Just thinking about this today. I think they said they are going to rewrite/update the comment by the editor at the top of this review. As she said in the current comment Publication of Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | Cochrane On the out of date review on CBT...
  6. Sly Saint

    Case Report: Recurrent cervical spinal stenosis masquerading as ME/CFS with orthostatic intolerance, 2023, C. Edwards, P. Rowe et al

    Charles C. Edwards III1 Charles C. Edwards II2 Scott Heinlein3 Peter C. Rowe4* Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, chronic, multi-system disorder that is characterized by a substantial impairment in the activities that were well tolerated...
  7. Sly Saint

    Increased risk of chronic fatigue syndrome following infection: a 17-year population-based cohort study, 2023, Chang et al

    Merged thread. Final publication Abstract Background Previous serological studies have indicated an association between viruses and atypical pathogens and Chronic Fatigue Syndrome (CFS). This study aims to investigate the correlation between infections from common pathogens, including typical...
  8. Dolphin

    Increased risk of chronic fatigue syndrome following infection: a 17-year population-based cohort study, 2023, Chang et al

    Preprint details in this post Final publication is linked in a post below - see here ********** Free: https://assets.researchsquare.com/files/rs-3289981/v1/55890598-6f0d-4f73-a9f4-5349e07baac0.pdf?c=1693414746 How post-infection status could lead to the increasing risks of chronic fatigue...
  9. Sly Saint

    Mast Cells in the Autonomic Nervous System and Potential Role in Disorders with Dysautonomia and Neuroinflammation 2023, Theoharides et al

    Abstract Mast cells (MC) are ubiquitous in the body and are critical for allergic diseases, but also in immunity and inflammation, as well as potential involvement in the pathophysiology of dysautonomias and neuroinflammatory disorders. MC are located perivascularly close to nerve endings and...
  10. Sly Saint

    Review Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop

    Patients with chronic fatigue syndrome benefit from cognitive behavior therapy https://www.news-medical.net/news/20231106/Patients-with-chronic-fatigue-syndrome-benefit-from-cognitive-behavior-therapy.aspx you can rate the article (so far it has 1 star)
  11. Sly Saint

    DEFENERGY app for Patients with Myalgic Encephalomyelitis, Fibromyalgia, and Persistent COVID

    https://www.archyde.com/defenergy-empowering-patients-with-myalgic-encephalomyelitis-fibromyalgia-and-persistent-covid-join-the-community-and-track-your-symptoms/ @Aroa
  12. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Myalgic encephalomyelitis research and treatment EDM (Early Day Motion) 31: tabled on 09 November 2023 Tabled in the 2023-24 session. This motion has been signed by 4 Members. It has not yet had any amendments submitted. Motion text This House commends current research being conducted by the...
  13. Sly Saint

    Sjögren's Saliva Gland Abnormalities Worsen Over Time, Study Shows

    Sjögren's Saliva Gland Abnormalities Worsen Over Time, Study Shows | Mirage News
  14. Sly Saint

    Amgen reports data from Sjögren’s Syndrome treatment trial

    Amgen reports data from Sjögren’s Syndrome treatment trial (clinicaltrialsarena.com)
  15. Sly Saint

    People with ME featured on TV programmes

    Location, Location, Location 8pm, Channel 4 Kirstie Allsopp and Phil Spencer are in Edinburgh helping house-hunters who want to be in the capital’s most popular enclaves. Kirstie is with Northern Irishman Rob and his Mexican wife Maria, who want out of their noisy rented tenement flat. Phil is...
  16. Sly Saint

    Is NICE losing its standing as a trusted source of guidance? 2023, Jonathan A Michaels, honorary professor of clinical decision science

    Recommendations must better reflect societal values and preferences The National Institute for Health and Care Excellence (NICE) develops healthcare guidance for the NHS, aiming to provide “the best care for patients, while ensuring value for the taxpayer.”1 Restricting access to effective...
  17. Sly Saint

    News from The Netherlands

    Grant for PhD researcher Braeden Charlton https://www.amsterdamumc.org/en/research/news/grant-for-phd-researcher-braeden-charlton.htm eta: PhD Immunology and infectious diseases for studying the cause of ME/CFS Unraveling the biomedical cause of the enigmatic disease ME/CFS...
  18. Sly Saint

    Review Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop

    the only reference to CFS I can find on their website (I haven't searched very thoroughly) is this members blog: My chronic fatigue journey https://www.sane.org.uk/how-we-help/sane-community/your-blogs/my-chronic-fatigue-journey curiously the link to the writers 'ongoing journey' takes you to...
  19. Sly Saint

    Review A systematic review of quantitative EEG findings in Long COVID, Fibromyalgia and Chronic Fatigue Syndrome, 2023, Silva-Passadouro et al

    Abstract Long COVID (LC) is a multisymptom clinical syndrome with similarities to Fibromyalgia Syndrome (FMS) and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). All these conditions are believed to be associated with centrally driven mechanisms such as central sensitisation. There...
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