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Dissociation is clearly, oh so clearly, a neurological process. Common in LC, I've seen so much of it. Rarely talked in other communities but common with brain fog and I think common with us, too. It seems to be an immunological response. If neurology could make serious progress and end most of...

Maybe a concern, but the smugness of this letter suggests they could not possibly see us as a threat, their opinion of us is far too low for that. This is a conquest paper, they own us and are saying it plainly, will not be letting go. It's normal that more will become involved as the field is...

As far as I can tell, this site is basically the bible for many physicians and the rest think it's amazing. Outside of our little bubble, I've never seen it described any other than profusely gushing and praising. Fortunately I don't see it discussed too often, but it is always in a beloved...

Very much. The issue was never whether MS is psychological, the issue always was that before a diagnosis could be confirmed, most pwMS have had their symptoms dismissed as psychological. Until recently, the diagnosis could only be made once the disease had progressed. So in a sense it's true...

Not strictly COVID but I talked with my parents recently about the uptick in respiratory viruses, especially with my mother having lung issues (that predate COVID). The flu is also especially bad but my father said he won't take the vaccine because the last time he had a horrible reaction, was...

This is really all why the whole "correlation is not causation" is so important. Especially using such loose criteria that they miss 90%+ of the features. Building an entire discipline out of "akshualy" predictably leads to absurdity and failure. This is seriously beyond absurd and into...

Obviously there will be no objections from the crowd who chastises long haulers for seeking expensive untested treatments abroad. In fact I pretty much expect the usual anger at taking hope away from people if anyone doesn't think this is the greatest thing ever, of which they will see no irony...

Clearly, studies don't even have to be predictive, they'll be reported as such anyway. There will need to be laws against this, academia is not able to police themselves here. Purely associative studies can be presented as determinant, even when the associations happen after the illness, with...

No idea who is behind this but the idea seems coherent: Mod note: We have made a thread to discuss this app here: Monitoring app: Eureka Health

Copied post No idea who is behind this but the idea seems coherent:

Given how inaccessible dental health is to many pwME, probably, but no one would ever know. Do they even do basic research in dentistry? Probably but only very specific, or about procedures. My father found a pretty good compromise for that, I'll be seeing a dental hygienist next week who has a...

You can definitely say that Chalder and her colleagues mastered the art of producing research, as in the equivalent of movie production in the getting funding and approval and executing the thing. They simply never had to bother beyond that because it turns out that no one cares whether the...

Yup. The latest reply was just silly anyway, it added nothing at all. Just to get the last word, because they treat this as a debate and debates are for entertainment so they scream loud enough to feel smug about having shouted the most. It's easy to understand stuff like Enron or how the...

Oh wow. The big guns are coming out, folks. We, OK some in the UK, depending on territory and other arbitrary factors, may, just may, soon, OK soon-ish, get some "specific management attention", and maybe some more MBA management buzzwords, too. You know how long we've been begging for attention...

I feel like it should be pointed out that the RECOVER initiative has hired at some point a communications director, which may or may not be the case. There is someone in charge of communicating what this giant secretive project is doing. Seriously. I guess it's only for communications within...

Rorschach patterns but it's for the doctors. Basically.

Odds are very good that this is the "pattern". Learning only works when you have quick and accurate feedback about how close you are to the real answer. If no one knows the clear answer learning on the job does not work because the process of learning is not operational. This is why and how...

It's free. People rarely refuse free stuff. It has to be extremely bad for people to be offered free stuff and think it's not even worth their time. You can see this everywhere, offer free stuff to people and even if it's useless they'll take it anyway. Likely to throw it away soon enough but...

I remember ozone therapy being popular in wellness stuff for decades. A "case study" of 200 patients with no controls is not serious. Even a properly controlled double-blinded trial is basically the most unreliable form of evidence used by any profession, literally no other expert profession...

It's really wild that news that not only plastic nanoparticles but all sorts of industrial chemicals have been found in every human tissue, including placental tissue, and barely anyone knows about it. And yet environmental causes of illness and disease are basically treated as a joke, the...