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Like Ravn says, the Norwegian term is "kronisk utmattelsessyndrom" which is nearly a word-for-word translation from English. Fatigue can be used in Norwegian, and is worse/more pathological than "utmattelse" but at least to me it would have sounded weird with "kronisk fatiguesyndrom", especially...

I wonder if this, just like food allergies, can be worsened by exercise (for some, food allergies are only triggered together with exercise, possibly due to changes in the epithelium barrier of the intestinal wall that has similarities with the blood brain barrier). Have thought about how...

I think I've seen two other health care personell with a (surgical) mask on the last three weeks at the hospital. Not easy for CVs at all :(

What is "it"? I thought they only tested mice and human cell lines, not actual allergic humans? There are many environmental factors that can contribute to allergies, and even within diet there are plenty of nutrients involved in barrier tissue health not just fibre and the microbiome such as...

Assuming they track it in any meaningful way. We're familiar with the "Patient stopped coming, presumed to have recovered" idea :grumpy:

How can they have a clear explanation of the pathophysiology if the condition for the lay person when there is none even for those of us who aren't "lay persons"? It also seems weird to me to not include a dietitian in this, when physios, OTs and psychologists are included. You know, given the...

For this study data was also collected in 2019, but as far as I know metabolomics has not been done. I think it is planned, but when it's only recently been done for the last data collection it could take a while. In response to the pandemic participants were also asked to contribute to an extra...

It might be still possible, at least in Norway some of our long-running cohort studies have pre-pandemic blood available for metabolomics. The one I'm most familiar with has focused mostly on lipids though, with blood sampled in 2006-2008.

I think a problem is we are taught to write this way at university, to "tell a story". The whole "present the background in a nuanced manner" is not really cutting it, readers won't bother. It's boring. Also don't overstate the limitations, you wouldn't want anyone to think what you did was...

"Unsupervised" would mean that when performing the analysis the program does not know what group a sample belongs to. They've used both supervised and unsupervised methods in this paper.

As has been discussed on here before, those of us with a gradual onset might have had something going on in our bodies in advance of symptoms occuring. Maybe an infection weeks/months prior started it all, and it took a while for the cummulative effects of activity to show? It's difficult to...

And there's the organisation "Voices for Recovery" which sounds similar to Recovery Norway and is about spreading hope and the lightning process. Page 1057-1096.

The Royal College of Psychiatrist mentions Recovery Norway in their stakeholder comment (the pdf says page 1077 of 1342, I think it is the second commentary table), but I think that's it of the official documents.

The paper with signatures from the founding meeting of Recovery has also been posted online, and I'm sure we are all shocked that Live Landmark was one of the signatories ;)

I'm not sure about the timeline, but Recovery has been in contact with the Ministery of Health and also out National Institute of Public Health previously sand if that ended with everyone happy and an agreement to work togther should something like this start is (unfortunately) not surprising...

Thanks! In this case I think it would have taken time for the persons to admit they were ill. My mother, the old nurse, had some comments about how we have forgotten about convalesence and the stupidity of going back to work too soon.

My mother told me of some local politicians that had been struggling post-covid, and have become unable to work. I wonder hoe this looks in other parts of Norway now. Too bad there are no statistics.

Psychologist and pwME Frøydis Lilledalen wrote a brilliant opinion piece that was published yesterday :) On becoming ill, being misbelieved and tone-policing. Stolthet og fordom – mitt møte med ME Pride and prejudice - my encounter with ME

I also associate flowers with death, although this is not specific for forget-me-nots. Probably a bit colored by growing up around people who had the view flowers were for funerals, and especially old people who would exclaim "I'm not dead yet!". Also stories about old people who would get sent...

A problem for me with a lot of this litterature (that I've read at least) is that what is considered abuse or an adverse event has been decided in advance, and someone who has experienced the "wrong" type of abuse or adversity is not recognized.