Search results

  1. Arvo

    IACFSME 2021 Virtual Conference

    Bookmarked. Thank you for sharing, glad that someone is looking at this.
  2. Arvo

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    Lol, thanks! A clear sign I need to take a rest and put my feet up, I knèw it was next month the first time I saw it, and then somehow after the next views I thought it was today. (I even checked it before my post.) Well, I don't have to explain to you how that happened...:rolleyes:
  3. Arvo

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    This looks like it will happen today right? Is this good? My uneducated guess says it seems so.
  4. Arvo

    UK House of Lords/ House of Commons - relevant people and questions

    By "It" you mean the roundtable? I'm not very familiar with UK political structure, but I find it rather encouraging for a "Parliamentary Under-Secretary for Health and Social Care" to specifically mention that it is expected by them that NICE will be following its own rules and protocol...
  5. Arvo

    UK House of Lords/ House of Commons - relevant people and questions

    Do I understand it correctly that this is an answer from Mrs. Churchill/her departement? Because then I also like the reminder that NICE is "responsible for developing its guidelines in line with its established methods and processes".
  6. Arvo

    The role of lifetime stressors in adult fibromyalgia: systematic review and meta-analysis of case-control studies, Kaleycheva, Chalder et al, 2021

    Completely. They are literally saying that because the "structural pathology" is unclear, it is therefore non-organic, the patients having bodily sensations which do not result from physical disease, but which the patients respond to as if they did. The long, horrific history of psychiatry and...
  7. Arvo

    Harassment claims in the media and social media.

    Thanks for the hearty laugh this morning @Dx Revision Watch and @SNT Gatchaman! It was very welcome.
  8. Arvo

    Patient management of post-viral fatigue syndrome,1990, Ho-Yen

    Another important thing about Ho-Yens paper is that he rightly points out that nothing about Wessely et al's proposed approach was "new" but it was "no more than the conventional view". Ho-Yen seems to be explicitly talking about the treatment of patients with PVFS: "patients have been told...
  9. Arvo

    Patient management of post-viral fatigue syndrome,1990, Ho-Yen

    I consider this paper the origin of the BPS's "boom-bust" claim. It was written in response to Wessely and Chalder's first published paper about CBT for ME ("Management of chronic (post viral) fatigue syndrome", 1989) Wessely and Chalder (together with David and Butler) had set out their CBM...
  10. Arvo

    General practitioners' experience of the chronic fatigue syndrome, 1991, Ho-Yen and McNamara

    I didn't have this one in my collection yet, thanks!
  11. Arvo

    What we're not being told about ME - UnHerd (Tom Chivers)

    The end goal always is and always has been to sell the CBT product as a viable treatment option. A lot of theater (creating the Oxford criteria under which they could do their research, so CDC CFS became in essence CF and included psychiatric disorders, "researching" patient groups to point out...
  12. Arvo

    Harassment claims in the media and social media.

    O gods, and I didn't even mention that my mother was there too... :rofl: Edited to ps: He probably would have thought it was hysterical.
  13. Arvo

    Harassment claims in the media and social media.

    Off topic but posted for the amusement of readers: I once had a very vivid dream of being killed by overripe, mushy banana: it was slowly being pushed in my ear by a bear.
  14. Arvo

    What we're not being told about ME - UnHerd (Tom Chivers)

    I can only speak for the earliest years (<1993), but while technically true it is not in two of her earliest papers about the therapy to explicitly explain thoughts like thinking you have ME b/c of symptoms as a "distortion of reality"*, I fail to see a big difference in effect between that and...
  15. Arvo

    BMJ editorial: Long covid clinics should be run as research hubs

    Problematic piece. Some of its arguing mirrors the arguments made by Wessely and Sharpe in the early stages of BPS takeover. E.g. Calling it something already familiar while downplaying and vaguely generalising it, using phrases like "unclear aetiology" while ignoring a shit-ton of concrete...
  16. Arvo

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    Ah, yes, thanks @Simbindi , I see I was looking at a "petition update" page, which by itself isn't very persuasive. I thought it was a second one, I already signed this one yesterday. Original page: Petition · Don't let vested interests perpetuate harmful treatments for ME/CFS! · Change.org...
  17. Arvo

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    I'm not sure what the petition is for, apart from venting. It doesn't have a goal like e.g. #ReleaseTheGuidelines based on clear arguments like it's not in patients interest and against NICE procedure to do this, and it was forced from outside against scientific analysis. What does it want to...
  18. Arvo

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Indeed. I would not call this "opaque". Jonathan Edwards is presented as an expert in clinical trials, and then by (weirdly) placing the word NICE instead of e.g. "those" in his remark it refers (or seems to refer) directly to the NICE review being "deeply flawed". Even more so because the...
  19. Arvo

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    "CBT....should only be offered to support patients in dealing with the anxiety of being ill." (Italics mine) If that is what the end text will say then the BPS crew has had their weasle point put in. That's will be the angle. Or, if not altered, then it will be the angle in the expected media...
  20. Arvo

    The chronic fatigue syndrome; psychiatric aspects, 1991, K.E. Hawton et al.

    CORRECTION ( @FMMM1 ): She was health minister and vice prime minister for 8 years until 2002 after which she took positions as president of the dutch health council comittee (in which capacity in '05 she undertook the media campaign with grotesque and stigmatising disinformation to accomodate...
Back
Top Bottom