Search results

How do you define brain fog. I wouldnt say I necessarily always feel foggy, it's often more a lack of energy. I can't read a long complex book because I don't have the energy.

You sound like you're saying that ME is psychological and we just need to believe that we've taken a drug that works.

Hiya does anybody know where I can access the recording of this conference??? @It's M.E. Linda ?

Hancock saying that they can start vaccinating people next month. This seems hugely over-optimistic to me?? What do you all think??? @Jonathan Edwards @Snow Leopard

I have a question that I hate to ask as it might come across unkindly, but... Does the team putting together the submission need to be made up of entirely British members? If it isn't, is there a risk that NICE might throw it out? I don't know anything about how NICE works but just want to make...

Will Esther Crawley no longer be allowed to conduct her Lightning Process trials? Subsequent posts on the Lightning Process have been moved https://www.s4me.info/threads/lightning-process.5809/

Or, more evidence of doctors attributing patients' symptoms to their thoughts and beliefs?

Yes this is what I've read too, about dosing, which is why I only take 0.6 mg.

Oh... Also just realised I forgot to give an option for "I am on pain meds but it's not enough to control my pain and my doctor won't do anything more to help me"... so this is a pretty useless poll really...

Oops, I think I didn't think aspects of this poll through very well. Unfortunately, the text of poll options can't be edited. Thankfully, this is a very informal poll and not being used for any higher purpose, just for gaining a general idea of how many of us are on sleep meds! (Though the...

@perchance dreamer @Braganca @leokitten I have added additional options to the poll, so you may wish to update your choices (and, if appropriate, remove your vote from 'other med not listed here')

I don't think anyone gets prescribed barbiturates outside of end-of-life care. In the UK

Ok will do

The reason I made the poll is because I'm concerned that the draft guideline doesn't say anything about prescribing pain meds. Your paracetamol isn't on prescription, so, there'd be no worry that you might lose access to it. (However, I suspect that this poll will under-represent the number of...

Done. That was my intention but I forgot the setting!

I'll make another category Trish, thanks for the feedback

I am curious about this, especially because the draft nice guidelines don't say anything about pain medication. Forgot to say in the title - if you don't have ME yourself, please feel free to answer regarding your loved one who has ME. If there's any options I've omitted to include then please...

Just curious, especially because the draft nice guidelines don't say anything about sleep medication. Please tell me if there's an option that I should have included but forgot.

I just want to say a massive Thank You to the members of this forum who are co-ordinating and putting together the S4ME response to the consultation. A huge task, especially when many (or maybe all) of them are unwell themselves.

Yes really important that the response emphasises things which SHOULDN'T be changed.