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  1. cassava7
    Post

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    I'm not sure "activity management" implies GET here, there's no mention of graded activity or exercise. This is what the paper suggests: It would...
    Post by: cassava7, Sep 28, 2020 in forum: General ME/CFS news
  2. cassava7
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    I haven't checked but the paper was accepted on July 30, a week before @Esther12 created this thread. The original PDF file on the KCL website is...
    Post by: cassava7, Sep 20, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. cassava7
    Post

    Public The Lancet changes editorial policy after hydroxychloroqiune Covid study retraction, 2020

    Citing the relevant editorial change: Will this change really help mitigate scientific misconduct? I doubt these measures are strong enough. 1....
    Post by: cassava7, Sep 20, 2020 in forum: Other health news and research
  4. cassava7
    Post

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    This honestly is an excellent account of the multiple facets of PEM, especially with regards to the diversity of its symptoms. That is, each of...
    Post by: cassava7, Sep 18, 2020 in forum: ME/CFS research
  5. cassava7
    Post

    A general thread on the PACE trial!

    It seems times might be changing, oddly enough! [MEDIA]
    Post by: cassava7, Sep 8, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. cassava7
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I would be more cautious on this link. Confounding symptoms between long Covid and ME Aside from the (possibly long-term) pathologies induced...
    Post by: cassava7, Aug 31, 2020 in forum: Long Covid news
  7. cassava7
    Post

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Thank you for your explanation! In the case of this study, the lead author Marco Castori is a member of the medical & scientific board of the...
    Post by: cassava7, Aug 30, 2020 in forum: 'Conditions related to ME/CFS' news and research
  8. cassava7
    Post

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    I'm confused: do you mean that it is likely these patients presented with fatigue then were diagnosed with EDS-HT/JHS? I agree the risk of...
    Post by: cassava7, Aug 30, 2020 in forum: 'Conditions related to ME/CFS' news and research
  9. cassava7
    Post

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    I'm not sure what this tells us, especially with the direction of the association. The authors screened for CFS in EDS-HT/JHS, but they conclude...
    Post by: cassava7, Aug 30, 2020 in forum: 'Conditions related to ME/CFS' news and research
  10. cassava7
    Thread

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome...
    Thread by: cassava7, Aug 30, 2020, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. cassava7
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Now published, thanks to @Grigor for noticing it. https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full
    Post by: cassava7, Aug 29, 2020 in forum: ME/CFS research
  12. cassava7
    Post

    Chloroquine and Hydroxychloroquine as treatments for Covid-19

    A very rigorous systematic review from French researchers on the use of HCQ and HCQ+AZT for the treatment of COVID19....
    Post by: cassava7, Aug 28, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  13. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    While this is the purpose of Jonathan Edwards’ request, research is not — and should not be — the primary concern here. The primary issue is the...
    Post by: cassava7, Aug 26, 2020 in forum: ME/CFS research news
  14. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    Re-read too with less brain fog and yes, the wording of your request is clear: There are in fact multiple issues at play: 1. Unproven claims of...
    Post by: cassava7, Aug 25, 2020 in forum: ME/CFS research news
  15. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    @Jonathan Edwards: in a similar vein as @strategist's question, could you please clarify your request? Specifically, which of these points would...
    Post by: cassava7, Aug 25, 2020 in forum: ME/CFS research news
  16. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    Thank you. Dr VanElzakker specifically addresses structural issues and CCI from 43:08 to 48:26 here: [MEDIA] He acknowledges -- with no caveat...
    Post by: cassava7, Aug 25, 2020 in forum: ME/CFS research news
  17. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    Oops, did he? Could you please link to a resource where he mentions his new position? I haven't been following his work closely. EDIT: I found...
    Post by: cassava7, Aug 25, 2020 in forum: ME/CFS research news
  18. cassava7
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    Drs Nancy Klimas and Michael VanElzakker's positions, from the Invest in ME Research 2019 conference (starts from the question about Jen Brea's...
    Post by: cassava7, Aug 25, 2020 in forum: ME/CFS research news
  19. cassava7
    Post

    Health and wellness coaching positively impacts individuals with chronic pain and pain-related interference, Rethorn et. al, 2020

    Other than fact that this is a non-controlled study with subjective outcomes, 206 patients (49.16%) dropped out of the program within the first 6...
    Post by: cassava7, Aug 23, 2020 in forum: Other psychosomatic news and research
  20. cassava7
    Thread

    Health and wellness coaching positively impacts individuals with chronic pain and pain-related interference, Rethorn et. al, 2020

    Rethorn ZD, Pettitt RW, Dykstra E, Pettitt CD (2020) Health and wellness coaching positively impacts individuals with chronic pain and...
    Thread by: cassava7, Aug 23, 2020, 8 replies, in forum: Other psychosomatic news and research
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