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  1. Amw66
    Post

    New MEA Guide: ME/CFS The Ten Key Aspects of Management | 05 February 2020

    sounds like a dose of ACT therapy
    Post by: Amw66, Feb 6, 2020 in forum: General ME/CFS news
  2. Amw66
    Post

    Editorial: Functional Neurological (Conversion) Disorder: A Core Neuropsychiatric Disorder, 2020,

    This looks like the ACEs theorising writ large. Note the lack of modulation for these events - is rape/ abuse by a family member the same as by a...
    Post by: Amw66, Feb 4, 2020 in forum: Other psychosomatic news and research
  3. Amw66
    Post

    Editorial: Functional Neurological (Conversion) Disorder: A Core Neuropsychiatric Disorder, 2020,

    From Twitter this morning. Well entrenched attitude, new spin. @dave30th [MEDIA]
    Post by: Amw66, Feb 4, 2020 in forum: Other psychosomatic news and research
  4. Amw66
    Post

    Young carers awareness day Jan 30th : article- 'One day it just got too much': The hidden lives of young carers

    There has been some recognition and moves to support young carers in Scotland. A start...
    Post by: Amw66, Feb 2, 2020 in forum: General ME/CFS news
  5. Amw66
    Post

    Using adrenalin/epinephrine as a crutch ?

    My daughter terms it " false energy" . Payback is awful.
    Post by: Amw66, Feb 2, 2020 in forum: Home adaptations, mobility and personal care
  6. Amw66
    Post

    Seat for cooking

    Great timing, I was about to post the same query to enable my daughter to continue to dabble in cooking and baking when she is able. Thanks
    Post by: Amw66, Jan 30, 2020 in forum: Home adaptations, mobility and personal care
  7. Amw66
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Here pvfs is quite common in teenagers and many struggle with school. Key to this is a tight description of PEM. My son had pvfs, and missed...
    Post by: Amw66, Jan 28, 2020 in forum: ME/CFS research news
  8. Amw66
    Post

    Pathogens associated with triggering ME/CFS - discussion thread

    High ish strep in stool test for daughter. Practitioner advised that it seemed to correlate with both autism and anxiety in their experience (...
    Post by: Amw66, Jan 28, 2020 in forum: Possible causes and predisposing factor discussion
  9. Amw66
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    This on so many levels
    Post by: Amw66, Jan 25, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Amw66
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    I have not read the booklet yet, but it is my understanding that those with ME, such as @phil_in_bristol were involved in pulling it together....
    Post by: Amw66, Jan 25, 2020 in forum: Monitoring and pacing
  11. Amw66
    Post

    Efficacy, side effects and withdrawal effects of carnitine

    My daughter had a bad skin reaction to acetyl l carnitine. There was a suggestion this was due to having corn it ( common seemingly) , but she is...
    Post by: Amw66, Jan 22, 2020 in forum: Drug and supplement treatments
  12. Amw66
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    interesting - I admire Dr Myhill's perseverance.
    Post by: Amw66, Jan 20, 2020 in forum: General ME/CFS news
  13. Amw66
    Post

    B12/Folic Acid and D3/K2 Supplementation

    Sue Jacksons blog carrys a lot of info presented in an easy to understand way. B12 is a NO scavenger and this may be why it has an effect for...
    Post by: Amw66, Jan 20, 2020 in forum: Drug and supplement treatments
  14. Amw66
    Post

    B12/Folic Acid and D3/K2 Supplementation

    And urine
    Post by: Amw66, Jan 20, 2020 in forum: Drug and supplement treatments
  15. Amw66
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you for your amazing perseverance. From the parent of an adolescent this is priceless and will mean so much to so many.
    Post by: Amw66, Jan 19, 2020 in forum: Disease coding
  16. Amw66
    Post

    Blood pressure monitors and how to use them; taking a blood pressure measurement; continuous monitoring

    Our GP has 2 Omrons which are used by patients for a week at home to try and address white coat syndrome. You put your name on a list. It's...
    Post by: Amw66, Jan 19, 2020 in forum: Monitoring and pacing
  17. Amw66
    Post

    A System Theoretic Investigation of Cortisol Dysregulation in Fibromyalgia Patients with Chronic Fatigue, 2019, Padnekar et al

    Low T3 impedes cortisol clearance in liver. A low T3 state ( as opposed to low T3 syndrome) was suggested in a couple of papers- part of body...
    Post by: Amw66, Jan 18, 2020 in forum: 'Conditions related to ME/CFS' news and research
  18. Amw66
    Post

    A System Theoretic Investigation of Cortisol Dysregulation in Fibromyalgia Patients with Chronic Fatigue, 2019, Padnekar et al

    Urine , saliva and hair, but not serum. My daughter had slightly low cortisol serum levels a couple of years ago, which prompted endocrinologist...
    Post by: Amw66, Jan 18, 2020 in forum: 'Conditions related to ME/CFS' news and research
  19. Amw66
    Post

    Article: 'Is standing up for expertise a fool’s errand?' - Simon Wessely still being portrayed as the 'victim'

    Who was responsible ?
    Post by: Amw66, Jan 16, 2020 in forum: General ME/CFS news
  20. Amw66
    Post

    Use of antidepressants for/with ME/CFS?

    Does the impact of anti depressants vary with degree of severity? If you have less energy/ body resources to deal with side effects, does that...
    Post by: Amw66, Jan 16, 2020 in forum: Drug and supplement treatments
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