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sounds like a dose of ACT therapy

This looks like the ACEs theorising writ large. Note the lack of modulation for these events - is rape/ abuse by a family member the same as by a stranger? does anger have the same effect on a 2 year old as a 7 year old as a 16 year old? Do male and females have different responses to different...

From Twitter this morning. Well entrenched attitude, new spin. @dave30th

There has been some recognition and moves to support young carers in Scotland. A start https://www.carersuk.org/scotland/help-and-advice/social-security/young-carers-grant https://young.scot/get-informed/national/how-to-sign-up-for-the-young-carers-package If anyone knows someone this could...

My daughter terms it " false energy" . Payback is awful.

Great timing, I was about to post the same query to enable my daughter to continue to dabble in cooking and baking when she is able. Thanks

Here pvfs is quite common in teenagers and many struggle with school. Key to this is a tight description of PEM. My son had pvfs, and missed most of a year of school and left early following year. No PEM in terms of fatiguability - totally fatigued, headaches etc , but he would probably gave...

High ish strep in stool test for daughter. Practitioner advised that it seemed to correlate with both autism and anxiety in their experience ( anxiety pre ME and definite autistic traits) . Seems a potential chicken/ egg scenario?

This on so many levels

I have not read the booklet yet, but it is my understanding that those with ME, such as @phil_in_bristol were involved in pulling it together. Can @phil_in_bristol confirm how many people other than very mildly affected contributed? My concern is similar to the Oxford Brooke's NICE...

My daughter had a bad skin reaction to acetyl l carnitine. There was a suggestion this was due to having corn it ( common seemingly) , but she is fine with corn. We think it must be bleached in manufacture , she has had issues with bleached food since around age 4. Seems to be the...

interesting - I admire Dr Myhill's perseverance.

Sue Jacksons blog carrys a lot of info presented in an easy to understand way. B12 is a NO scavenger and this may be why it has an effect for some. https://livewithcfs.blogspot.com/2014/04/vitamin-b12-and-mecfs.html?m=1 Certain genetic expressions also control the rate of B12 use / need for...

And urine

Thank you for your amazing perseverance. From the parent of an adolescent this is priceless and will mean so much to so many.

Our GP has 2 Omrons which are used by patients for a week at home to try and address white coat syndrome. You put your name on a list. It's used where it's thought there may be a problem, and if there is intermittent use is encouraged if people can't/ don't have a monitor of there own. As...

Low T3 impedes cortisol clearance in liver. A low T3 state ( as opposed to low T3 syndrome) was suggested in a couple of papers- part of body shutting down, like a hibernation " dauer" response. Liver is key to many processes which are out of whack - bile, lipids, hormones, gut dysbiosis...

Urine , saliva and hair, but not serum. My daughter had slightly low cortisol serum levels a couple of years ago, which prompted endocrinologist to try hydrocortisone. . Not tested since then .

Who was responsible ?

Does the impact of anti depressants vary with degree of severity? If you have less energy/ body resources to deal with side effects, does that make them greater?