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  1. TiredSam

    COMPare Trials, Ben Goldacre et al

    I did enjoy reading that post :thumbup:
  2. TiredSam

    My Label and Me: I’m not tired and lazy, I have ME

    He probably thinks GET and CBT will work just as well the second time around. Unfortunately having been misled by BPS activists as a child, it'll probably be impossible to convince him otherwise now until it's too late.
  3. TiredSam

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    His twitter spats generally end with him leaving a permanent record of his unpleasantness and making an increasing number of observers aware of what we've been up against. I'm always delighted when MS goes on twitter, because it's only a matter of time before he shoots himself in the foot and...
  4. TiredSam

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    And by the way, the only difference between the above scenario and the UK is that in the UK quackery is being carried out on an industrial scale with government approval and the purveyors are given knighthoods. All "inside medicine". Whether they belong there or not is another matter, but it's...
  5. TiredSam

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    There's an excellent doctor in my village who does a sideline in swinging pendulums and whatever that thing is called which measures electrical conductivity which the doctor says is diagnosing allergies. German doctors often dabble in a bit of quackery on the side, offer it to their patients and...
  6. TiredSam

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Actually no, it's the next response in the series. Response 1 - "Have you read the paper?" If they obviously have and you don't feel you can chance your arm with response one, then: Response 2 - "Have you spoken to any of the PACE researchers?" If they obviously have and you don't feel you...
  7. TiredSam

    Pacing - definitions and sources of information

    http://www.cfsselfhelp.org/library/topic/pacing
  8. TiredSam

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    If that happens in everyday life, the customer can take their custom elsewhere. I hear that in the UK doctor shopping is difficult, and having a monopoly or being in such a powerful position does bring out the worst in some people and they start taking liberties (sad pun intended). Fortunately...
  9. TiredSam

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    Things must have changed significantly since I last worked with programmers.
  10. TiredSam

    Trial By Error: Some Thoughts About an Upcoming Article

    Well it has been suggested that it's not helpful to carry on discussing it: And the conversation has now moved on to much more interesting matters:
  11. TiredSam

    Trial By Error: Some Thoughts About an Upcoming Article

    We aren't talking about the video.
  12. TiredSam

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Unfortunately I'm proof of this. I have been playing online chess obsessively since last April (as a way to pass the time and keep my spirits up since all my other hobbies have had to be cancelled). In that time my health has improved. So I obviously didn't have a medical condition and chess has...
  13. TiredSam

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    It was for me before I had ME. Fortunately I have a lot of willpower, so I persevered.
  14. TiredSam

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    There's always a nurse or two who need to sneak out for a smoke too and sympathise with the patients. Last time I was in hospital the nurse showed my neighbour where the small stone was you could put in the door to stop it closing so you could get back in after sneaking out for a smoke at night.
  15. TiredSam

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    Me too. I'm catching myself taking a sharp intake of breath just reading this thread. No desire to smoke, just seem to have retained the breathing associated with it.
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