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Oh you make them bigger in the settings of the video. It would be a pity if you didn't see the film because of that.

OMG we did it‼️‼️ In this film for ME Awareness month, five medical doctors open up about living with PAIS/IACC conditions like ME, long-COVID, and chronic Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide! They speak candidly...

True, but that was also not the point of me posting it. Just that it was used and/or researched in different places. We'll see after the trial about the actual efficiency.

I can understand, but it is however interesting that several groups or MDs are testing the same drug at the moment. Especially considering the Norwegians are in the works of (eventually) conducting a placebo controlled trial.

The study by the Norwegians is talked about here around 12:40. They are also planning to do a placebo controlled trial:

Google translated:

"They all reported PEM, the frequency ranged from ‘every day’ to ‘few times a week’. They all reported school absence ranging from ‘several times a week’ to ‘few times a month’." Whoot? What kind of PEM is that? Several times a week. For me PEM takes a couple of days. They probably measured...

Hm strange. I'll consider posting it on my website.

Saris et al. here: https://www.linkedin.com/mwlite/feed/posts/anilvanderzee_appelman-w%C3%BCst-response-saris-pem-not-deconditioning-activity-7297967687480078336-xyYs?utm_source=share&utm_medium=member_android&rcm=ACoAAARREA8BzeyJJtciMwOrM0dNqu0SjEBHFxM

I responded to Ranque et al. here: https://www.linkedin.com/mwlite/feed/posts/anilvanderzee_response-appelman-deconditioning-ugcPost-7295075427931357184-cu3x?utm_source=share&utm_medium=member_android&rcm=ACoAAARREA8BzeyJJtciMwOrM0dNqu0SjEBHFxM

I thought some of the (preliminary) findings/science were presented too much as facts. Or it was simply not clearly stated that they are preliminary. There was however nothing pro BPS or anything that would give in that way a problematic impression of ME. I don't think your grandmother will be...

I thought the stories of the patients were really well portraited and from a patient perspective. The science bits were in my opinion often questionable. I thought that was really a pity. I therefore have mixed feelings about recommending it. If it were just to have a friend see what ME entails...

Besides some quirks overall a great response by Wüst et al. Honestly it's an important response by the right type of researchers to refute the claim of deconditioning. I'm a proud Dutchman!

He's BPS so he does a little of everything. I'm not too excited about it. Especially since he collaborates with COFFI for the Dutch biomedical research program. It's a loss lol.

Ruud Raijmakers en Jos van der Meer in the Dutch journal of Medicine: "The IOM also retired the term ‘chronic fatigue syndrome’ (CFS), replacing it with the suggestive name ‘systemic exertion intolerance disease’ (SEID)." "prognostic factors (recovery is limited when complaints are attributed...

Roundtable about the "Mechanical Basis Model/brain stem. Key to understanding ME. With Jeff Wood, Michael Vanelkzakker, Brayden Yellman and Thomas Varley...

This seems to be the paper? Still have to read it, but it looks interesting.

They've performed the same biopsies in people with ME now and are analyzing the data. I presume he's basing his comments on preliminary data.

If you're talking about Jos van der Meer. He received some badge of honor from them for his fight against homeopathy. The association against quackery referred to ME as a pseudo condition.

Co-occurrence of tethered cord syndrome and cervical spine instability in hypermobile Ehlers-Danlos syndrome. https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1441866/full Haven't read it yet so I can't comment on it.