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  1. TiredSam

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Just posted on the German forum (thanks @diwa): https://ze.tt/ich-wollte-lieber-krebs-haben-dennis-lebt-mit-dem-chronischen-erschoepfungssyndrom/?fbclid=IwAR3TUiMPmGQXvwfSnv5WdtDS2i4wQta7cXSsW8sKZEr68Sgn62CLy7JFyx4 A good article in the German press about a young man in a terrible situation...
  2. TiredSam

    Everything you always wanted to know about non-cytolytic enterovirus but were too afraid to ask

    Marineland Cote D'Azure has a fine selection of rockhopper penguins, humbolt penguins and manchot royal: https://www.marineland.fr/en/dans-le-parc/animals/#Birds
  3. TiredSam

    ME Association magazine summer 2019

    I think it's an especially dangerous article for the newly ill to read, they need to be told to rest as much as possible rather than given a pep talk about attitude and getting up every day no matter what.
  4. TiredSam

    Article by Paul Worthley

    I think there's an unmentioned elephant in that jungle.
  5. TiredSam

    Dr Byron Hyde - Canada

    I got my diagnosis from the university hospital in Berlin, I had to wait 9 months for an appointment and do a whole load of exclusionary tests with a local GP before I was even allowed to go. Now that they don't see patients from outside Berlin, I don't know where I'd get a diagnosis from. I...
  6. TiredSam

    Dr Byron Hyde - Canada

    I can't turn on him because I never swore undying loyalty to his fan team in the first place. Just commenting on the agreed statement of facts, his level of organisation sounds absolutely appalling, which is disrespectful towards his clients and colleagues, and can have real, serious negative...
  7. TiredSam

    Dr Byron Hyde - Canada

    Don't know much about Hyde, but reading that list of agreed facts he sounds shockingly disorganized.
  8. TiredSam

    Bias in medicine - Sex and Race John Oliver

    I can watch the official video with the main segment in Germany no problem.
  9. TiredSam

    BBC Radio 4 More or Less - Mice in studies

    Thank you. I'm hoping that when I'm well enough, @Jonathan Edwards will join me on a tour of northern working mens' clubs to perform our "Snow White" sketch: https://www.s4me.info/threads/david-bell-about-slow-sepsis-in-me.1900/#post-33289
  10. TiredSam

    Testing Treatments: Better Research for Better Healthcare - book endorsed by NIHR

    @alex3619 - I seem to remember you have an interest in Gigerenzer?
  11. TiredSam

    Fundraising: Manchester (UK) Primary Care research: Exploring Trauma & Distressing Experiences Following Medical Encounters.

    I was teaching a lawyer last week, who was telling me about how she had fired a client, because the client never listened, never took her advice or stuck to what they agreed was the best approach, and kept doing google searches and coming to appointments with printouts supporting her view of...
  12. TiredSam

    Eye movement deficits in ME/CFS and sleep deprivation

    When I have PEM (not for a while now thankfully) I move my head instead of my eyes. Never really thought about why, I suppose it must be because moving my eyes becomes more effort than moving my head.
  13. TiredSam

    Testing Treatments: Better Research for Better Healthcare - book endorsed by NIHR

    Ben Goldacre's words have been quoted back to him many times, his hypocrisy (in not calling out his mentor Simon Wessely's defence of the PACE trial) is evident, but unfortunately no-one's interested. I'd be interested in your opinion of Gerd Gigerenzer's view (in his book "Risk Savvy") - he...
  14. TiredSam

    BBC Radio 4 More or Less - Mice in studies

    First half of this short podcast is a take on mice in scientific studies: https://www.bbc.co.uk/programmes/p07kv9ns
  15. TiredSam

    More PACE trial data released

    Funny you should say that, I think setting up McPsych is the overall plan.
  16. TiredSam

    The Mind-Body Syndrome Study (2019) Maroti et al

    Written by someone with pronounced stupidity that they devote a lot of time and intelligence dealing with. I am emotionally aware enough to realise that I need to stop reading this "study" after the first sentence.
  17. TiredSam

    ME Association magazine summer 2019

    Hi @NeilH, thank you for joining the forum and welcome :). I accept that your article was a personal account, and I agree with a lot of the very good points you make, about pacing, acceptance of your new life, and avoiding quackery and nonsense. I have read the whole article and don't mean to...
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