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  1. M

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    Ok I have more to say. This part is particularly cruel and insensitive: and then this indicates where they are going with this...
  2. M

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    I have no words. Edit to add: 1) interestingly her editors and reviewers are located in Israel. Does that mean anything? 2)Helen Payne published this last year: Medically Unexplained Symptoms and Attachment Theory: The BodyMind Approach This article discusses how The BodyMind...
  3. M

    Food Implications in Central Sensitization Syndromes, 2020, Aguilar-Aguilar

    “Central sensitization syndromes (CSSs) or functional somatic syndromes include different chronic and acquired disorders related to an unknown etiology, such as fibromyalgia (FM), chronic fatigue syndrome (CFS), multiple chemical sensitivity (MCS) and irritable bowel syndrome (IBS).” Cannot get...
  4. M

    Aripiprazole - Abilify

    it is difficult @Andy i am not sure i can give much detail here, but i agree with you. My response to Jonathan above explains a bit but it’s complicated.
  5. M

    Aripiprazole - Abilify

    I am not one who accept this, however i am being perceived as trouble maker by suggesting it is time we get clinical trials. Of course it will take time to set trials, and of course it will need funding. Bureaucracy and push back from the supplier of service (admin) will make this difficult. And...
  6. M

    Aripiprazole - Abilify

    Agreed.
  7. M

    Aripiprazole - Abilify

    Here’s the answer you’d get: “we don’t have the money for that. No funding. Clinical trials are very complicated. It would take too long.” Chances are, these physicians do not have the relevant training and support to conduct clinical trials, for many reasons, including the fact that they never...
  8. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Totally agree with you, and in my view it also means that everybody (the counsellor, the nurse, the naturopath, the physio and sometimes the doctor) decide what needs to be done, and it's devastating. It’s basically a relinquishment of responsibilities, either conscious or not. This model of...
  9. M

    Research news from Bhupesh Prusty

    Can i feel concerned about this tweet?
  10. M

    Research news from Bhupesh Prusty

    Well, for the end of 2020 i will take the optimism and (metaphorically) run with it. It’s been a bad year and we need very good news soon...
  11. M

    Measuring improvement and deterioration in ME/CFS (2020) Kirke

    It’s on Sci-Hub, well done @Karen Kirke and thank you!
  12. M

    BMJ Rapid Response: Dr Nina Muirhead

    Thank you so much @EducateME I will be sharing on Social Media.
  13. M

    Tomorrow:Long COVID Joint Research Forum Dec. 9 and 10

    The tweet would have been helpful if he had replied to the twitter account attached to the organizer. As it is right now it may well not be seen where it matters.
  14. M

    Tomorrow:Long COVID Joint Research Forum Dec. 9 and 10

    There is a world web based conference tomorrow and Thursday, discussing Long Covid. I would have loved to attend but it will be 3 AM where I am and therefore will prioritize my sleep. What I am most curious about is them modelling the Long-Covid management with Chikungunya. No mention...
  15. M

    Covid-19 vaccines and vaccinations

    it is not recommended to get a vaccine if you have an active infection, even if it’s a cold.
  16. M

    A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomics Working Group of EUROMENE, 2020, Pheby et al

    Well, the last 2 sentences are worth it to me, as this is now part of scientific literature. This work needs to be done. While it may not bring heartwarming feeling of a biomarker or a target drug, simply stating that patients are not receiving care is important. We cannot have accurate...
  17. M

    Rituximab and placebo response

    This thread reminds me that it would be nice to have a drug trial going or at least in the works.
  18. M

    BPS attempts at psychologizing Long Covid

    I wonder what the group of physicians who got long COVID and wrote a letter to editor in a sci journal would have to say about this article? Would they appreciate the suggestion that they may catastrophize too? I am so fed up with the gaslighting.
  19. M

    Possible involvement of the autonomic nervous system in cervical muscles of patients with ME/CFS, Matsui et al, 2020/1

    Here is what the first 2 sentences say, under ‘background’: occasionally affects the lives...? Oh really? And the list of symptoms... cervical stiffness... really? Which criteria do they go by? vertigo... would be uncommon, why name it up front, could it be you selected it because it fits what...
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