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Probably repeating Carson fron his SMC comment that got it wrong about self diagnosis. Thus is misinformation spread.

The preprint thread here: Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al For media coverage go to this thread: DecodeME in the media

This thread is closed. Please use the following threads. Some posts have been moved to the media thread. The preprint thread here: Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al For media coverage go...

On Channel 4 news now.

We now have several threads. Please try to post on the relevant one. They are listed here: 2025 DecodeME News Alert thread

Simon McGrath has written an article for the DecodeME website explaining the research. Thread here: DecodeME blog: X marks the spot where ME/CFS biology can be discovered

The preprint is now published. Thread here: Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al For media coverage go to this thread: DecodeME in the media

Here's the thread: Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al

We need someone to find the preprint and make a thread.

Thread on the research.

The guide is 2 pages with bullet point lists and warning against psych and exercise treatments. It also lists good resources for more information. Apart from stating unequivocally that ME/CFS is a neurological disease, I think it's very good.

I watched the first 5 minutes which is all I have the energy for this evening. I got the impression Oonagh was doing her best, possibly through brain fog, finding it hard to express herself clearly. She probably realises in hindsight a shorter really well prepared interview with reminder notes...

https://www.s4me.info/threads/uk-government-delivery-plan-for-me-cfs-published-22nd-july-2025.45222/post-630235 David Tuller has interviewed Oonagh Cousins of #ThereForME about the UK government delivery plan:

Thanks, it was all a very long time ago.

So true. The lack of belief, understanding and acceptance cost me the goodwill of colleagues, some friendships and my marriage. There were no good resources back then to explain convincingly the effects of the illness. I hope we can do better with our fact sheets. The whole concept of activity...

I was really bad at pacing for the years I was working. Some big things had to go immediately, mostly enjoyable things like tap dancing classes, hiking with friends and even going on holiday and doing active stuff with my children. Those were sad but not difficult decisions because I simply...

I think we have to wait and not expect leaks.

Thanks, mods have already been considering how to manage this. We will try to ensure threads are focused and links provided between threads. Since we don't know yet how significant the results are, it's hard to know how the discussions will go. Mods will probably do some rearranging if there's a...

Go to this thread to discuss the news. A new thread will be posted in the ME/CFS Research section when the preprint is available.

I do share the concern expressed by others about the abstract conclusion, particularly the bit I've highlighted in bold: The highlighting of HPA axis function dysregulation as a finding of note rings alarm bells for many of us because the UK therapists organisation, BACME, that causes us so...