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Thanks for posting, @John_Lobb. So it looks like they are getting active again in trying to make the app more acceptable at least to some patients. I notice that there is no mention of ensuring the resources they include are NICE ME/CFS guideline compliant and supported by high quality evidence...

We have multiple threads about LP. This one is particularly relevant I think: LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English It links to a Norwegian website where people told their experiences of LP. This is my summary...

I have now skimmed through the whole article, reading some parts, skimming over others. It's a turgid judgemental ramble through the author's interpretations of managing ME/CFS to avoid PEM in terms of moral virtues and failings. All leading up to the 'punch line' on page 17. It's a recovery...

Thanks for pointing out that this was just the same thing they did in the Walitt infamous intramural study. I should have guessed from Walitt and Nath being authors. (If I hadn't wasted so much effort fighting impossible battles with Cochrane and other BPS rubbish, I might have more capacity to...

This looks potentially interesting as a test in ME/CFS that can be used once this is established with healthy volunteers as here, and replicated.

What a strange abstract. I have no idea what to make of it. Nor whether to expend energy learning more.

Thread with a review of Suzanne O'Sullivan's latest book: https://www.s4me.info/threads/suzanne-o%E2%80%99sullivan%E2%80%99s-new-book-%E2%80%98the-age-of-diagnosis%E2%80%99-and-her-curious-characterisation-of-long-covid-as-a-psychosomatic-condition.43490/

Ah, OK, I didn't get as far as the biology section.

I've watched about the first half. The presenter speaks clearly but too fast. Her rapid and almost continuous hand gestures, and the highlighting of each word in the subtitles as she reads the script are visually hard to cope with. I ended up covering the bottom half of my screen to get rid of...

Thank you, @ME/CFS Science Blog. Your summaries are really valuable.

Thread here: Preprint ME/CFS and PASC Patient-Derived Immunoglobulin Complexes Disrupt Mitochondrial Function and Alter Inflammatory Marker Secretion, 2025, Prusty et al Do feel free to join the discussion.

I think that's really important. It would be interesting but impossible to do a retrospective study of prognosis during and after phases in medical approaches. Exercise therapy, general advice to exercise, lack of support and patient blaming forced pwME to be more active and crash more from...

Is this your own summary? If not, can you add a link to the source?

Some posts have been moved to this thread: General news about Fabricated and Induced Illness syndrome (FFI)

The Cleveland Clinic gives a brief overview of bradypnea It lists normal breathing rates for different ages, and possible causes. I agree with SNT Gatchaman that it would be sensible to ask your doctor to refer you for a sleep study, and also to check you for any underlying condition that may...

That is such a powerful and heartbreaking image. Thanks for sharing your poem Veronica.

I hope someone will contact them quickly to ask them to add that people who are not getting enough nutrients and have been refused tube feeding should also be invited to take part.

The application form makes it pretty clear they intend non members to be clinicians. Applicants are asked to fill in their employment details and what kind of clinician they are. I hope someone will ask them to open it to pwME and carers. I asked last year for their conference and was told it...

BACME survey: UK BACME tube feeding survey 2025, closes 30th September 2025