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    The ME Show

    @Gary Burgess just listened to episode 3, brilliant!! You are a gifted interviewer, you asked all the right questions, nothing was left out. I am so grateful to you for your work. Unfortunately, I am not on I tunes and totally crap at IT with my brainfog but is there anywhere simple I can go to...
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    Blog: Beware of Aiding in the Burial of ME!

    Oh my God so well said. The negativity this week on forums by a minority was head wrecking and they are very vocal....the trouble is they sow seeds of doubt. Also as more signatures are needed for the Senate resolution to be passed, we all need to stick together. But no, nothing is simple in the...
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    Merryn Crofts - media and inquest

    Merryn's family are real heroes. Its so terribly sad but I am glad to see the truth being told.
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    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    Sorry to keep asking questions, is there a deadline for signatures?
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    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    I have in laws in the U.K but the thought of asking them to help nearly sends me into a crash....but I guess I should try, I might wait another while before I take it on....
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    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    How many MP signatures are needed for the debate to go ahead?
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    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Edinburgh was by far the best I have seen...it was brilliant. Just saw New York there, poor numbers....it didn't look like a great crowd. Its true we need our healthy friends but if they can't like an M.E related facebook post, there is little chance of them taking to the streets. Any post M.E...
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    Janet Dafoe - The Whitney Plea

    I think we should all do one and let M.E Action take it from there...we ain't got nothing to lose...
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    Janet Dafoe - The Whitney Plea

    Yes, lets all get our video clips sent to M.E Action..now is our chance
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    The ME Show

    Thank you Gary so much and also Jen and Robert, love that song so much.
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    Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Elizabeth Unger

    Absolutely ridiculous, Unger has no shame if she turns up at conferences this year still saying website is being updated. As we say in Ireland a shoe in the proverbial is what she needs. The CDC are partly responsible for the mess we are in, one would think it's high time to clean it up ....grrrrr
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    1st ME/CFS Canadian Collaborative Conference

    Ron Davis said at some point, I saw on a tweet earlier, we don't want to just treat this disease, we want to cure it. That statement used to fill me with hope in the past, not so much now.......it just seems a bit unrealistic.
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    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    That's hard to do. I don't post about M.E on my private facebook page only very rarely as I get no response and that hurts. People have no interest in M.E, have no idea of the suffering. So patients have to help themselves. As for 10% diagnosed, I question that. I diagnosed myself by googling...
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    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    The crowdrise is extremely slow....where are all the millions missing....even the smallest donation makes a difference...I hope it starts to rise...it feels like now is the time to push things forward...we need to seize the moment!
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    Wessley

    What a creep, he has zero remorse for all he has done and keeps driving it on.
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    Wessley

    @dave30th the weasel is out and dangerous
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    Wessley

    Prof Sir Simon Wessely is taking part in a three-lecture event at Seale Hayne, Newton Abbott, Devon UK. One of the lectures is on FND...........Functional Neurological Disorder............the new label given to UK ME patients. Can anyone attend? It is free...
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    Proposal for Canadian CRC to join forces with US NIH's 3 CRC's to research ME

    How about using the Canadian consensus criteria.....we know so much, yet so many physicians know nothing...grrr
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    Advocate Spotlight: Mary Dimmock

    An absolute legend, contributes so much to our cause.
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