...because they feel tired after doing … whatever…
The term is nearly meaningless now.
Just like every cold is the flu, every headache is a migraine, every lapse in concentration or forgotten birthday is brain fog, every blue day is depression… all tiredness after activity is now PEM
<sigh>...
...16% (95% CI [9.5-25.7%]), stress 15.9% (95% CI [10.2-24%]), depression 14.0% (95% CI [10.1-19.2%]), anxiety 13.2% (95% CI [9.6-17.9%]), and migraine 13% (95% CI [2.2-49.8%]).
Significant heterogeneity was observed across all symptoms. Meta-regression analysis showed higher stress, fatigue...
How long have you found it to last for you?
The marketing seems to suggest a couple hours. (Which is longer than ice). But I assume it’s a safe bet given your experience the marketing is quite exaggerated?
If I could just find the energy I would like to make a migraine cap that is water cooled, then I could cool the water with fans to the air and get a nice chilled cap for as long as I want to run it. I saw someone do a similar thing converting a T shirt with water piping for computers and using a...
I use the phase change migraine hats and they don't unfortunately last very long. You would need a lot of this material to make something that lasted a long time.
I equally struggle with the heat at the moment, it wipes me out completely. Unfortunately AC only really works when its a lot hotter...
I find unexplained low mood and irritability is a precursor, analogous to a migraine aura, heralding the onset of PEM. Also increasingly I have noticed when I am doing too much I reach a point where I just want to cover my ears and scream if anyone talks to me.
...I fill in the end of day check-in. Sometimes I can’t be bothered. I like having months worth of data where I can look back and see how many migraines I had, or crashes. I actually surprised a GP once as I was asked about migraine frequency and I pulled up the info right there - 16 in the past...
I had to attend A&E with my partner who was in excruciating pain with a migraine that had him screaming on the floor. He usually has to be injected with morphine at that point. No ambulance would come out, so despite having severe ME, I had to crawl to my car, drive him to the hospital, and then...
Absolutely this. I didn’t get migraines until I had ME but do now, and although it may not be entirely linked (my mum developed them around the age they started for me) and I don’t always have visual auras, I do sometimes and there are a lot of similarities between those and the more general ME...
It's almost like some types of migraine and the alcohol hangovers friends and ex-partners have described.
I've never had either, but I could see how acutely sensitive they were—I think it was worse than anything I've experienced. It was interesting how it began to fade after a number of hours...
I had Botox for migraine treatment three months ago. It is about 40 shots of Botox down the neck into shoulder region, up and over the entire scalp and on forehead, nose etc. The treatment helped reduce frequency and occurrence of headaches hugely, unexpectedly eliminated my neuropathy on both...
...ME/CFS onset except as a stimulant to get through situations that required more physical activity, usually such would be followed by PEM and migraine type headaches, though it is not clear if the caffeinated drinks played a role in this or not.
Some years into my condition (some 10+ years) a...
Rami Burstein 1, Rodrigo Noseda 1, Anne B Fulton 1
Abstract
Background:
Photophobia is commonly associated with migraine, meningitis, concussion, and a variety of ocular diseases. Advances in our ability to trace multiple brain pathways through which light information is processed have paved...
...model with environmental factors contributing to and perpetuating the disorder is essential."
"A detailed review of symptoms may uncover migraine or other chronic pain disorder, cognitive complaints such as ‘brain fog’, fatigue, and other neurological symptoms commonly experienced by...
Symptoms/function before and after treatment with Rituximab. Bell went from 10 to 20, so not cured.
The HERV that has previously been associated with MS, ME/CFS, and LC, HERV-W ENV, wasn't high in this patient. They then looked at HERVs across the whole genome and compared to 8 female ME/CFS...
I have a monthly injection of Ajovy (similar type of therapy) and it is remarkable the difference. Not only to my migraine frequency and severity but also to my balance, pain, fatigue etc. These types of interventions are life changing. They move migraine management from coping to prevention. I...
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