Search results for query: migraine

  1. JemPD

    PEM-like descriptions and accounts in non-ME illnesses

    ...because they feel tired after doing … whatever… The term is nearly meaningless now. Just like every cold is the flu, every headache is a migraine, every lapse in concentration or forgotten birthday is brain fog, every blue day is depression… all tiredness after activity is now PEM <sigh>...
  2. forestglip

    Review Long-term neurological and cognitive impact of COVID-19: a systematic review and meta-analysis in over 4 million patients, 2025, Elboraay et al

    ...16% (95% CI [9.5-25.7%]), stress 15.9% (95% CI [10.2-24%]), depression 14.0% (95% CI [10.1-19.2%]), anxiety 13.2% (95% CI [9.6-17.9%]), and migraine 13% (95% CI [2.2-49.8%]). Significant heterogeneity was observed across all symptoms. Meta-regression analysis showed higher stress, fatigue...
  3. Yann04

    Coping with heat

    How long have you found it to last for you? The marketing seems to suggest a couple hours. (Which is longer than ice). But I assume it’s a safe bet given your experience the marketing is quite exaggerated?
  4. B

    Coping with heat

    If I could just find the energy I would like to make a migraine cap that is water cooled, then I could cool the water with fans to the air and get a nice chilled cap for as long as I want to run it. I saw someone do a similar thing converting a T shirt with water piping for computers and using a...
  5. B

    Coping with heat

    I use the phase change migraine hats and they don't unfortunately last very long. You would need a lot of this material to make something that lasted a long time. I equally struggle with the heat at the moment, it wipes me out completely. Unfortunately AC only really works when its a lot hotter...
  6. Snow Leopard

    I'm able to exercise but am still disabled

    Irritability in particular for me is a big warning sign!
  7. Peter T

    I'm able to exercise but am still disabled

    I find unexplained low mood and irritability is a precursor, analogous to a migraine aura, heralding the onset of PEM. Also increasingly I have noticed when I am doing too much I reach a point where I just want to cover my ears and scream if anyone talks to me.
  8. MrMagoo

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    ...I fill in the end of day check-in. Sometimes I can’t be bothered. I like having months worth of data where I can look back and see how many migraines I had, or crashes. I actually surprised a GP once as I was asked about migraine frequency and I pulled up the info right there - 16 in the past...
  9. S

    "Emergency departments aren’t trained for Long COVID — and patients are paying the price" (The Sick Times)

    I had to attend A&E with my partner who was in excruciating pain with a migraine that had him screaming on the floor. He usually has to be injected with morphine at that point. No ambulance would come out, so despite having severe ME, I had to crawl to my car, drive him to the hospital, and then...
  10. hotblack

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    Absolutely this. I didn’t get migraines until I had ME but do now, and although it may not be entirely linked (my mum developed them around the age they started for me) and I don’t always have visual auras, I do sometimes and there are a lot of similarities between those and the more general ME...
  11. Kitty

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    It's almost like some types of migraine and the alcohol hangovers friends and ex-partners have described. I've never had either, but I could see how acutely sensitive they were—I think it was worse than anything I've experienced. It was interesting how it began to fade after a number of hours...
  12. B

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    I had Botox for migraine treatment three months ago. It is about 40 shots of Botox down the neck into shoulder region, up and over the entire scalp and on forehead, nose etc. The treatment helped reduce frequency and occurrence of headaches hugely, unexpectedly eliminated my neuropathy on both...
  13. Peter T

    Q: Does ME/CFS change rate of caffeine metabolism?

    ...ME/CFS onset except as a stimulant to get through situations that required more physical activity, usually such would be followed by PEM and migraine type headaches, though it is not clear if the caffeinated drinks played a role in this or not. Some years into my condition (some 10+ years) a...
  14. Hutan

    The neurobiology of photophobia, 2020, Burstein et al

    Rami Burstein 1, Rodrigo Noseda 1, Anne B Fulton 1 Abstract Background: Photophobia is commonly associated with migraine, meningitis, concussion, and a variety of ocular diseases. Advances in our ability to trace multiple brain pathways through which light information is processed have paved...
  15. Andy

    Functional neurological disorder: Practical management 2025 Dworetzky & Baslet

    ...model with environmental factors contributing to and perpetuating the disorder is essential." "A detailed review of symptoms may uncover migraine or other chronic pain disorder, cognitive complaints such as ‘brain fog’, fatigue, and other neurological symptoms commonly experienced by...
  16. forestglip

    HERV Dysregulation in a Case of Myalgic Encephalomyelitis and Multiple Sclerosis Responsive to Rituximab, 2025, Martín-Martínez et al

    Symptoms/function before and after treatment with Rituximab. Bell went from 10 to 20, so not cured. The HERV that has previously been associated with MS, ME/CFS, and LC, HERV-W ENV, wasn't high in this patient. They then looked at HERVs across the whole genome and compared to 8 female ME/CFS...
  17. MSEsperanza

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    ...▪ Joint Hypermobility Syndrome (JHS) ▪ Interstitial Cystitis ▪ Irritable Bowel Syndrome (IBS) ▪ Mast Cell Activation Syndrome (MCAS) ▪ Migraine type headaches ▪ Postural Orthostatic Tachycardia Syndrome (PoTS) Edit: What evidence is there for MCAS, PoTS, Joint Hypermobility Syndrome (JHS)...
  18. Joan Crawford

    Trial Report Ubrogepant for the treatment of migraine prodromal symptoms: an exploratory analysis from the randomized phase 3 PRODROME trial, 2025, Goadsby et al

    I have a monthly injection of Ajovy (similar type of therapy) and it is remarkable the difference. Not only to my migraine frequency and severity but also to my balance, pain, fatigue etc. These types of interventions are life changing. They move migraine management from coping to prevention. I...
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