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  1. Mij

    Covid-19 vaccination experiences

    Did you have a viral infection at the time you were vaccinated? I was vaccinated with several vaccines during a viral infection when I got ME. I'm not vaccinated yet, but have no problem getting the doses once my current viral infection is gone.
  2. Mij

    Covid-19 vaccines and vaccinations

    https://www.healthline.com/health-news/can-we-mix-and-match-covid-19-vaccines-experts-say-not-yet#Not-the-first-time-vaccine-mixing-is-attempt I've read that they've also had better outcomes mixing vaccines for the Ebola virus.
  3. Mij

    Canada - Unknown brain disease in New Brunswick

    It is the same cluster in the same province.
  4. Mij

    Covid-19 vaccination experiences

    @Binkie4 It appears that the COV study is referring to side-effects of the vaccine. This doctor was speaking specifically about improved efficacy of mixing doses because Canada has put another pause on AZ.
  5. Mij

    Covid-19 vaccination experiences

    On state news this morning (CBC), an infectious disease doctor was saying that mixing vaccines could be more beneficial than administering the same vaccine. He mentioned another type of vaccine for a different illness that did just that. I didn't hear too well on what that illness was.
  6. Mij

    MEAction 2021 MECFS researchers video with R Davis,Prusty

    He's offering what he has, but making it appear that it’s more than what it is. I would rather hear that they're making progress in treating symptoms than getting people's hopes up and continue to say "cure". I feel it diminishes the seriousness of this illness.
  7. Mij

    How characteristic are elevated monocytes for pwME?

    Mine are generally on the low/normal side. They don't represent how I feel.
  8. Mij

    Iron deficiency and dysregulation

    If your GP goes strictly by reference range then you might be in trouble if you're not receiving your lab results. A ferritin reference range of 12 to 150 ng/mL is not a good indicator. Anything below 20 is the first sign that I don't feel right. I feel best at 50+. Maybe it's just me...
  9. Mij

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    How is it that some of us have more 'available energy' on some days and not so much on others? Why is it that sometimes when I start out on my walks my legs are not wanting to hold me up and wobbly? It's like I have MS legs. Then as I get going, my gait becomes smoother and I'm able to...
  10. Mij

    Iron deficiency and dysregulation

    @Arnie Pye Apparently, copper deficiency is rare. It goes to show that our minerals, amino acids and fatty acids are not being absorbed properly. I had the profile of someone who was malnourished despite eating a very healthy diet and drinking fresh veggie juices every day. I took...
  11. Mij

    Iron deficiency and dysregulation

    The odd thing is that my periods were always light too. Since menopause, my ferritin is now steady at 95. My GP kind of laughed when I was surprised to see my ferritin so high, not understanding that my periods were always light. I should also add that my copper (ceruloplasmin) which...
  12. Mij

    Iron deficiency and dysregulation

    My sister has Hashimoto and takes iron regularly to keep her ferritin in range.
  13. Mij

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    I have experienced, ME loss of available energy (for lack of a better explanation) and need to lie down, very low ferritin fatigue (weepy type of tired fatigue), and now menopause full stop unable to walk another step fatigue. They ALL feel different. My healthy (now 60 yr old)...
  14. Mij

    Iron deficiency and dysregulation

    A doctor finally tested my ferritin a few years into ME and my level was at 4. I took iron supplements regularly for years. My doctor didn't understand why my levels dropped so quickly and later realized that I had absorption issues, and undiagnosed h pylori. I felt a different type of...
  15. Mij

    Detox and other diets as for chronic illness treatments, and doctors who promote them.

    There is nothing remarkable. "Is Long-Covid stirring up other underlying chronic infections?" Dr. Hyman going to try to sell you his books by subscribing to his newsletters on 'treatment' and lifestyle changes, and how he cured himself of 'CFS' that could help LC pts.
  16. Mij

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    Virios currently holds 20 patents that include composition of matter, a unique synergy patent and method of use patents for FM, IBS & CFS patents. as well as Functional Somatic Syndrome (recently renamed the Somatic Symptom Disorder (SSD). These additional chronic conditions represent a...
  17. Mij

    Detox and other diets as for chronic illness treatments, and doctors who promote them.

    Moved from this thread: FraudListing.com: a project to keep track of quack treatments for ME Gotta love our local doctor calling out Dr. Hyman pseudoscience guru hyped-up 'detox' programs :laugh:
  18. Mij

    Impaired Endothelial Function in Patients With Postural Tachycardia Syndrome, 2021, Abby H Chopoorian

    https://pubmed.ncbi.nlm.nih.gov/33486983/ A research team led by finds endothelial dysfunction plays a key role in postural tachycardia syndrome, leading the way toward targeted treatment for this poorly understood condition...
  19. Mij

    Long Covid & ME/CFS: Information & Management by Dr Charles Shepherd

    "7. In cases where symptoms have persisted for more than three months, and are consistent with those of ME/CFS, a diagnosis of Long or Post-covid ME/CFS should be considered. The diagnosis should be confirmed through the process of a careful clinical assessment". "Long Covid and ME/CFS Where...
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