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  1. John Mac

    Open Medicine Foundation (OMF)

    From an email newsletter
  2. John Mac

    Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population: Kitami, Fukuda et al 2020

    Are these profiles causing the sleep disruption or are they being caused by the sleep disruption?
  3. John Mac

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    https://globalnews.ca/news/7457827/montreal-chronic-fatigue-syndrome-breakthrough/ https://montreal.ctvnews.ca/montreal-researchers-develop-new-test-to-diagnose-chronic-fatigue-syndrome-1.5185761
  4. John Mac

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    That was just the discovery cohort
  5. John Mac

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

  6. John Mac

    Special ME/CFS journal issue: Chronic Fatigue Syndrome: Medical, Nursing and Public Health Management

    Special ME/CFS journal issue: Chronic Fatigue Syndrome: Medical, Nursing and Public Health Management https://naac-mecfs.org/special-me-cfs-journal-issue-chronic-fatigue-syndrome-medical-nursing-and-public-health-management/
  7. John Mac

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance Link requires a login but I was able to access it with a google search of "chronic fatigue syndrome" and within last 24 hours. https://www.bmj.com/content/371/bmj.m4356.full.print
  8. John Mac

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Treatment Guidance for ME Proposes Curbs on Graded Exercise Therapy A login required to read the whole article https://www.medscape.com/viewarticle/940671
  9. John Mac

    CDC Awards Medscape Education Three Contracts to Develop Medical Education Programming Addressing Major Public Health Needs

    Programs will Focus on Cancer, Mold Infections and Chronic Fatigue Syndrome https://finance.yahoo.com/news/cdc-awards-medscape-education-three-130000803.html
  10. John Mac

    News from The Netherlands

    Dutch conference on ME/CFS 19 november 14:15 - 18:00, Online Today, little is known about the causes, diagnosis and treatment of ME/CFS. Therefore ZonMw is working on a Dutch research agenda on ME/CFS, together with scientists, practitioners and patients. During a national conference on ME/CFS...
  11. John Mac

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    From the ME Association website
  12. John Mac

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Stop telling people with ME to increase their exercise, new guidance says Graded exercise therapy is currently listed on the NHS website as a 'specialist treatment' for ME and chronic fatigue syndrome Needs a subscription to read the full article...
  13. John Mac

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    Paper now published https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02583-7
  14. John Mac

    Open A Trial of Solriamfetol in the Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Joel L Young, 2020

    https://www.clinicaltrials.gov/ct2/show/NCT04622293 https://thejewishnews.com/2020/10/07/new-hope-for-chronic-fatigue-sufferers/
  15. John Mac

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid: what teachers and pupils need to know https://www.tes.com/news/long-covid-what-teachers-and-pupils-need-know A discussion of Jo Daniels' defense of CBT for ME/CFS and CBT has been moved here: https://www.s4me.info/threads/jo-daniels-on-cbt.17799/
  16. John Mac

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Long Covid: what teachers and pupils need to know https://www.tes.com/news/long-covid-what-teachers-and-pupils-need-know (Split thread: Jo Daniels is quoted, defending CBT for ME/CFS and for Longcovid. Her quotes come towards the end of the article.)
  17. John Mac

    Changes in DNA methylation profiles of myalgic encephalomyelitis/chronic fatigue syndrome patients reflect systemic dysfunctions, Helliwell et al 2020

    https://clinicalepigeneticsjournal.biomedcentral.com/articles/10.1186/s13148-020-00960-z
    • John Mac
    • Thread
    • dna epigenetics helliwell me/cfs methylation new zealand sweetman tate
    • Replies: 10
    • Forum: ME/CFS research
  18. John Mac

    Effect of disease duration in a randomized Phase III trial of rintatolimod, an immune modulator for [ME/CFS], 2020, Mitchell et al

    Lipkin et al released a study in 2015 that showed different immune signatures depending on illness duration i.e less than 3 years compared with more than 3 years. https://advances.sciencemag.org/content/1/1/e1400121
  19. John Mac

    Pressure Point Threshold and ME/CFS comorbidity as Indicators of Physiotherapy Response in Fibromyalgia. Falaguera-Vera et al. 2020

    Merged thread My bolding https://www.mdpi.com/1660-4601/17/21/8044
  20. John Mac

    Re-analysis of genetic risks for Chronic Fatigue Syndrome from 23andMe data finds few remain, Bedford et al, 2021

    Preprint https://www.medrxiv.org/content/10.1101/2020.10.27.20220939v1 Threads on genetic risks listed here: https://www.s4me.info/threads/evidence-for-a-genetic-component-in-me-cfs-discussion-thread.16117/#post-277072
    • John Mac
    • Thread
    • 23andme bastian greshake tzovaras bedford genetics me/cfs nancy klimas snp
    • Replies: 9
    • Forum: ME/CFS research
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