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  1. Mij

    Covid-19 vaccination experiences

    I get viral re-activations continuously, I even had fever sores on my lips the day of my Pfizer and a continuing vestibular virus for over a year. I had zero reaction to the first Pfizer except a sore arm. A couple of healthy friends had a fluey/achy-type reaction for 24 hrs after...
  2. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Dr. Nancy Clancy on exercise rehab: "giving someone an exercise prescription where they get their maximum heart rate and have them walk for a period of time . . . take 60-70% of that and have them do 20 minutes a day . . . come into the PT clinic once to train them so they can have a...
  3. Mij

    Hybrid immunity

    Now Published: Tolerance of Covid-19 vaccination in pts with SLE(Lupus) in the international VACOLUP study: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(21)00221-6/fulltext
  4. Mij

    Hybrid immunity

    @MeSci You might be interested in Dr. Laurent Arnaud's study trying to identify potential side effects of COVID vaccinations in lupus patients and providing regular updated summaries. https://maladie-autoimmune.fr/vacolup/
  5. Mij

    Hybrid immunity

    "What happens when previously infected individuals are vaccinated? The observations in several studies, including those by Stamatatos et al. and Reynolds et al., are that an impressive synergy occurs—a “hybrid vigor immunity” resulting from a combination of natural immunity and vaccine-generated...
  6. Mij

    Problems with accessiblity for people who use wheelchairs

    Persons with disabilities have lived experience and should be at the forefront of decision making.
  7. Mij

    Covid-19 vaccination experiences

    Nice to see you back again :) I get my second dose of Pfizer on the 27th. I'll be thinking of you.
  8. Mij

    Covid-19 vaccination experiences

    They're advertising vaccines as 'treatment' for ME? Who are 'they'? I'm not understanding what she wrote.
  9. Mij

    Lightning Process - discussion thread

    Trouble concentrating is a common problem for those with anxiety, they continue to contradict themselves.
  10. Mij

    Covid-19 vaccination experiences

    Perhaps you can call your local pharmacist and ask for information on how you can get a vaccine? They are very informative. I had put off my vaccine for months until my local pharmacist informed me that I can book home visits which I wasn't aware of because it isn't advertised on our public...
  11. Mij

    Oxidative Stress, ROS and Herpes Viruses

    LIVE now: "Bridging Cellular Biology with Co-Infection Studies to Investigate the Regulation of Chronic Viral Infection"
  12. Mij

    "My experience of chronic fatigue syndrome" anonymous 16 year old

    Comparing seeking help for a broken bone and a complex medical condition is not a very good analogy.
  13. Mij

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    You just have to Google "PEM" and the only hits you get are from the ME community and research. And yet they continue to describe PEM and recommend pacing as though they figured it out on their own.
  14. Mij

    "Cooling Paper" technology

    The paper can reduce a room's temperature by up to 10 degrees Fahrenheit, making it a radical but effective alternative to today's air conditioners, which consume a lot of power. Zheng and his colleagues found that the cooling paper can reduce a room’s temperature by as much as 10 degrees...
  15. Mij

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    I don't think I've ever seen a pwME in a wheelchair suffering from 'extreme tiredness'. Tiredness is a lack of sleep. I believe 90% of the population would be in wheelchairs if this was the case.
  16. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Lifemark Canada post-covid rehabilitation and recovery program acknowledges that exercise is not a 'medicine' for ME/CFS or post-viral syndrome , but still believe exercise can be safe and appropriate for post-viral syndrome states. "While exercise can often help, we recognize it is not a...
  17. Mij

    Covid-19 vaccination experiences

    My sister's first shot a few months ago was AZ, today she got a Pfizer b/c they ran out of AZ. She is over the moon as though she won the lottery lol
  18. Mij

    Isoflavone diet ameliorates experimental autoimmune encephalomyelitis through modulation of gut bacteria, 2021, Samantha N Jensen et al

    Full Title: Isoflavone diet ameliorates experimental autoimmune encephalomyelitis through modulation of gut bacteria depleted in patients with multiple sclerosis Abstract The gut microbiota is a potential environmental factor that influences the development of multiple sclerosis (MS). We and...
  19. Mij

    Covid-19 vaccination experiences

    Both nurses who came to give me my Pfizer got migraines after their Pfizer jab.
  20. Mij

    News from Canada

    “It’s an invisible illness, it’s much like … chronic fatigue syndrome, (that is) myalgic encephalomyelitis,” says Susie Goulding, a floral designer based in Oakville, Ont. She’s a COVID long-hauler who founded COVID Long-Haulers Support Group Canada, which has almost 14,000 members" "Still, it...
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