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    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I believe that worsening of health (permanent or otherwise) is a symptom and doctors should have the basic respect for their patients to believe their symptoms. That episode is called Darmok.
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    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I'm disappointed that Jonathan Edwards didn't mention that exercise harms ME patients, sometimes indefinitely as in my case.
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    Pain in ME–what helps you and what can I do?

    I have to be careful with painkillers because I have an extremely low threshold for injury and can easily exert myself. The pain is localized and accumulates the more I use that part of my body. I call it PERI - Post Exertional Rheumatic Injury. The damage can be permanent. I use to take...
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    Action for ME: GP home visits under threat

    Last time I had a home visit was about 5 years ago and my GP told me that GET was the best evidence-based treatment for ME.
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    Complex Regional Pain Syndrome (CRPS), what to do?

    CRPS is a wastebasket diagnosis.
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    Neurasthenia: Modern Malady or Historical Relic?, 2019, Overholser et al

    Neurasthenia is seen as psychosomatic. Associating it with ME is one of Wessely's tricks.
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    What paper found 25% of patients are housebound/bedbound?

    They conflate chronic fatigue with ME and use no control group.
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    New video: What is ME?

    I would drop this line because CFS means something different and is too easily conflated with fatigue.
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    Non-Allergic Rhinitis

    In my parents house me and my brother would have a runny nose all the time that got worse in winter. Later in 2004 I got a Flixonase nasal spray to control this symptom. When we moved out our symptoms cleared up. I strongly suspect it was an allergy to specific moulds.
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    Forward-ME Group Minutes - 10th July 2019

    My carers are like this. Whilst giving me my black top Carer Z placed the bag on the inside of my sleeping bag, when I told her not to she said I should have grabbed the bag off her (it's too heavy for me), she claimed to know lots of people with my condition who do more than me and that I was...
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    #MEAction Advocates will Speak at Stanford MEDx Conference this Weekend (Sun 22 Sep 2019)

    I listened from 22:30 (UK time) onward and there was nothing about ME.
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    ME/CFS success story: Lightning Process on Youtube 2019

    Phil Parker says he wouldn't question homoeopathy curing cancer:
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    United Kingdom: National Health Service (NHS) news

    NHS Blunders Saw 621 Patients With Wrong Body Parts Amputated, Surgical Tools Left Inside Them, And Other 'Never Events' https://www.huffingtonpost.co.uk/entry/nhs-never-events-patients-wrong-body-part-amputated_uk_5d7f50d5e4b03b5fc88656b6
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    Design Your Own ME Hospital

    There would be a tilt-table to diagnose those with POTS/OI.
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    ME/CFS Epidemiology - sex ratios, female predominance

    Just found this: https://ourworldindata.org/gender-ratio#sex-ratio-at-birth Interesting.
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    Design Your Own ME Hospital

    If money were no object, describe your perfect ME hospital. For example, I would build sound proofed rooms.
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    Receiving medical records in the UK - what is included?

    I advise you to covertly record GP appointments in the future.
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    Modern-Day Relics of Psychiatry, 2019, Tripathi et al

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5205970/?page=1 Here's a paper on Neurasthenia from 1904. The cure is claimed to be exercise after a period of rest.
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    ME/CFS success story: Lightning Process on Youtube 2019

    Phil Parker tries to silence critics with threats of legal action, let's not stoop to his level.
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