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  1. Kitty

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's an interesting question, but I think there would be serious ethical issues – Covid survivors may still be experiencing their precipitating infection, they haven't been ill long enough to understand their own limits and symptom profiles, and they may still be capable of making a full...
  2. Kitty

    Research news from Bhupesh Prusty

    I wonder if he wants to communicate findings less formally than in a publication? On one hand, this could reduce the time it takes for findings to percolate through to us, simply because there are fewer hoops to jump through than normal scientific publishing – this might be important in raising...
  3. Kitty

    UK: Physios for ME

    I wonder whether it's helpful to compare the pacing phenomenon to the lives of people who're not ill? Every now and again my friend goes out with work colleagues and makes a night of it, knowing she's likely to pay for it with a hangover. Another does charity marathons, knowing that he's going...
  4. Kitty

    Shingles vaccines, chickenpox, Shingrix

    I've been advised that it's fairly unlikely I'd get shingles a second time, so it's one vaccine choice I don't have to make (unless the advice has changed by the time I get to 70). Mine only got diagnosed because I happened to have an appointment at the surgery to have stitches removed. There...
  5. Kitty

    e-coli infection and leaky gut

    Oh, that sounds awful, @Graham – I'm sorry to hear you've been so ill, and very much hope it doesn't happen again!
  6. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It may not be accurate anyway. The manufacturer of the Abbott test has said that it's designed to be used with venous blood only, not a fingerprick. They seem pretty angry about it being sold to the public, as the work to determine whether it's reliable as a home test, and if so to what degree...
  7. Kitty

    Coronavirus - worldwide spread and control

    I'm sorry to hear that he's ill, but it's possible he's done other MPs and staff a favour by highlighting the risks of reconvening parliament and stopping remote attendance. It seems particularly obtuse to replace a functioning system of digital voting with time-consuming, risky queuing.
  8. Kitty

    OMF to launch clinical trials on Mestinon & Kynurenine, post-COVID19 study

    It would still be important to know that it works, though, as it could provide some hard evidence of a metabolic trap. If the trap is real, there may be other, better ways to treat it; at the very least, we would know that it's worth channelling resources into further research.
  9. Kitty

    Coronavirus - worldwide spread and control

    As so many people appear to be asymptomatic, it would be difficult to achieve without a massive testing effort – far beyond the capacity available at the moment. A home kit similar to a pregnancy test would make it a lot easier, though it would presumably be hugely expensive to offer mass...
  10. Kitty

    Whitney Dafoe Updates

    Ironically I was prescribed this in 1976, as the GP believed I was mentally ill. I actually had ME, but wasn't diagnosed for another 20-odd years. It helped a lot with the relentless nausea I experienced at the start of the illness, which was later found to be due to gastroparesis. Obviously...
  11. Kitty

    INIM (NSU Institute for Neuro-immuneMedicine) webinar - 'Understanding ME/CFS Today: A Clinical & Research Approach' May 2020

    Sigh. I'd prefer them to investigate ME-specific issues – such as why the neck lymph nodes swell up after exertion in many patients – rather than start developing new theories about a very common and widespread problem, which could just as easily be connected to air pollution (or several dozen...
  12. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yup – it even led to Prof Garner saying early on that he didn't have post-viral fatigue, because the name isn't in any way descriptive of the condition. Using a name like post-viral syndrome could potentially help. The lack of specificity might signpost people to the fact that there's a whole...
  13. Kitty

    Psychedelic treatment of functional neurological disorder: a systematic review, 2020, Butler et al

    "We don't know how to treat these patients, so let's see if tripping out makes them forget about it. After all, we shut up lots of women in the 1970s and 80s by drugging them up with tranquillisers, and no-one criticised us for that – at least, no-one who matters."
  14. Kitty

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I couldn't work any of that out on the best cognitive day of my life, before I even got ME! :rofl: One of the reasons cognitive dysfunction is difficult to measure is that it's about the subtle falling apart of very basic skills. It includes things many women who've had severe PMS will...
  15. Kitty

    #mylastnormalphoto with an ME spin

    My 'last normal' photo is from school in 1975.
  16. Kitty

    CDC create new page on how people with ME/CFS can be supported for May 12 and link to it in their weekly e-bulletin

    Looks really good. They missed out the 'What can the government do to help?' section, though... ;)
  17. Kitty

    I got a virus, I didn't die, but I never recovered. Film for #MillionsMissing 2020

    This is fantastic – congratulations on a great job.
  18. Kitty

    UK: Free PIP webinar, 11-05-2020

    Benefits & Work is putting on a free 40-minute webinar or anyone applying for Personal Independence Payments during the lockdown: "FREE PIP CHANGES WEBINARS It is extremely difficult to work out what is happening to your benefits during the current emergency. Changes to PIP claims, assessments...
  19. Kitty

    Countess of Mar retires

    Oh, I hope she's retiring because she feels it's time, rather than because she's unwell – we have so much to thank her for.
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