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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

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    Joint Hypermobility, autonomic hyperactivity: Relevance to neurodevelopmental disorders, 2014, Eccles et al.

    From twitter - abstract only . Full paper may be interesting https://jnnp.bmj.com/content/85/8/e3.40 Please edit thread title / move to another category if appropriate
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    In what way does this constitute research. Is the idea generally that you try and disprove your hypothesis, not go out if your way to reinforce it ? ( Sorry, relatively new to this)
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    But given that there is also the 80% recover " naturally" when looking at essentially " fatigue", that perhaps would undermine a whole lot more? ....
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    Whether to have a flu vaccination

    It emphasises the importance of null results - these are as important as positive ones
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    I look forward to someone actually doing some robust research for paediatric ME. Surely it is not beyond the wit of man? Since we obtained a FITBIT type device, we have gained a valuable insight into fluctuations and exacerbations. Although I am not convinced re absolute accuracy, it provides a...
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    Whether to have a flu vaccination

    Perhaps it is not a reaction to the vaccine that is the issue for some, but the adjuvent?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    You' re welcome. I don' t know if there are others. These were the most active results from simple search
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    Presentation at EUROMENE - London, UK

    Well done - it is great that your hard work has had an outlet and may become part of any solution. Thank you
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    So the only objective measure is the school attendance records - these were not reported for SMILE ( there may be data protection issues accessing these). Or have I got something wrong- are there exercise records that are not self report? There are many Fitbit type devices that could have...
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    And accelerometers data have been dropped ?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    When was the scoping meeting for NICE relative to these dates ?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Some threads from PR https://forums.phoenixrising.me/index.php?threads/meaction-petition-stop-get-trials-stop-magenta-pace-for-children-uk-deadline-12th-march.46757/page-11#post-826850 https://forums.phoenixrising.me/index.php?threads/junior-version-of-pace-funded-pi-dr-crawley.42685/
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    Epigram: Senior Bristol researcher resigns after admitting to research misconduct

    But what other data did the fabricated data generate?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    And who will publish this ?
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    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    CBT and GET are only part of the problem.The belief system does not seem to allow any mental constructs to be moved, and for medics to know what they are supposed to be treating/ supporting. It is more basic than CBT and GET.
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    So basically questionnaires, questionnaires and more questionnaires?
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    Hypothesis from PR' s necessary8

    Necessary8 on PR had an intriguing hypothesis which developed over the course of the past year. Some was beyond me, but i i found it insightful and vety interesting. It made me want to find out more. He has a newer hypothesis ( which I will leave til tomorrow as my coffee quota is up today) ...
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    Bristol Randomised Trials Collaboration

    :banghead:
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    Unwanted Events and Side Effects in Cognitive Behavior Therapy, 2018, Schermuly-Haupt et al

    It is a self reinforcing cycle. If you can change a response to a questionnaire after a few weeks , then you can treat anything. It would be interesting to know how many responded to please the therapist, or to never have to do it again. Was there any control for bias?
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