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I think I have a slightly different understanding. During a sustained activity I'll experience rapid muscle fatiguability, pain and OI; if I keep going there are likely to be additional symptoms, such as nausea, dizziness, breathlessness. If I was rested beforehand, it's not PEM. But I still...

Not in the slightest. I feel like I'm wearing a lead suit, have the 'flu, am wearing something I'm allergic to, am developing cystitis, and have just found out a favourite uncle's terminally ill. I'd pay money to have sore muscles instead.

That, and protecting the herd from infection, perhaps?

Not entirely, no. I think this is saying the person either can't complete the task, or abandons it because completing it isn't worth the payback. To me, the second point's irrelevant, and—given the history of psychologisation of ME—shouldn't be highlighted. Almost everyone makes an assessment...

Just wanted to say that this is so much more interesting than the publication!

People with co-morbidities might be excluded from some trials because they have diseases with overlapping symptoms, so it's not possible to say for certain which of them is causing Symptom X or Y. This could make the results of some studies unacceptably muddy. I wasn't even sure I'd able to...

"I need to publish something, and I've already done the cranial massage, the electronic detox, and the happy app. Crystals, maybe? Oh, I know – nobody's done coloured light for ages."

He was probably mirroring the sort of language he hears from patients, as it was for a general TV audience. He might phrase things differently when speaking to fellow doctors.

This. I'm not severely ill, but I've never experienced PEM that only lasts minutes or a couple of hours. I find it worrying that something so transient is described as PEM, as it suggests a fundamental lack of understanding of what is arguably the defining phenomenon of ME. I quite understand...

Thanks and congratulations to everyone involved in this broadcast—I've only just found out about it by logging on here. What struck me most was the lack of bitterness in the contributions from the two parents. I couldn't have done that without sounding bitter and angry (which would have been...

Wasn't it. I'd assumed a good number of the exclusions could be due to comorbidities / medication / recent surgery / ongoing investigation / pregnancy or fertility treatment / etc, but it would be puzzling if that wasn't the case.

I agree, but think it's only practical to do that if they're broken down into groups of symptoms on questionnaires. For instance, I'd never describe symptoms that aren't delayed as PEM—in my mind, part of the definition of PEM is that it is delayed—but if some people are using it that way, the...

Me too, I just keep a amount for other stuff, or spot-cleaning obstinate stains on garments. My current bottle's getting a bit elderly now, but the detergent's still fine. ETA: My cat was sick on a small rug a couple of weeks ago, and I decided to try the last of a bottle of carpet shampoo...

It's brilliant for getting accumulated breath condensate out of the heads of tin whistles, too, but that's probably a less useful tip for most members... :laugh:

Nothing to add about rice, but I do have a cleaning tip for yucky pans and bowls. I discovered it when I was 17 and too disorganised to put washing up liquid on my shopping list. I'd baked a cheese dish in the oven for some friends, it had burned a bit at the edges, and I was left with a...

Yup. And DWP has confirmed today that Jobcentres will no longer issue food bank vouchers to people who can't feed themselves or their kids. Many food banks won't give out parcels without a referral...

It doesn't pretend to be, or need to be. They state clearly that their programme has nothing to do with medicine or treatment. The patients seem to be irrelevant. The scheme's income appears to be derived from offering "coaching" to mugs wiling to pay to sit and listen to them spouting...

Absolutely. And I think OI is a reasonable name for it, because it doesn't try to suggest the underlying cause—which may actually be several issues, or different ones in different people. Yes, I hadn't thought of it like that. Symptom suggests a single feature, like a headache or knee pain...

Yes, I agree. I'm not thinking very clearly, but what I'm trying to get at is whether there's a particular type of ME sleep that would look on paper like normal sleep. It's well-maintained; it might be disturbed by a toilet break or a partner coming to bed/getting up, but it's quickly...

I found this snippet interesting, because in me at least, non-restorative doesn't result in greater daytime sleepiness. It just makes me feel leaden and energy-depleted, in the usual ME way. (I occasionally get a night of normal sleep due to being unwell with a cold or something, and it's a...