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Thanks, I was able to read a copy thanks to the help of @lycaena. It's mostly about problems with the cognitive behavioural model of ME/CFS. If I understand correctly Kennedy was also one of the people who criticized the PACE trial at the very beginning. Thanks, it was already on my reading...

Thanks for the reading tip! The whole 'positive thinking is healthy' - movement also seems worth digging in to, but will probably take us a while.

I was hoping that there would be some good books on the topic that I could read and then summarize, but to my surprise, there was very little that provided a good overview. So that's when we decided to delve into the literature ourselves. We can already say that you'll always find something...

But NICE will likely not recommend ACT, so I suppose they will have to change the wording on their website. Perhaps it will look something like this: We believe that not all clinical care should have an evidence base. We therefore only offer treatment that has not been recommended by the...

In a new blog series, we will investigate how illnesses were once thought to result from stress, psychological disturbance, or deviant personality features. From the cancer-prone personality to the theory of ‘refrigerator mothers’, medicine appears to suffer from a recurrent tendency to...

Interestingly their website states: "We believe that all clinical care should have an evidence base. We therefore only offer treatment that has been recommended by the National Institute of Health and Care Excellence (NICE). NICE is reviewing its guidance which is now in draft form and users of...

I do not find it surprising that the number of cases increased over time. Underrepresentation of older people and increase of awareness of ME/CFS seem like plausible explanations for this. The decline since 2012 is probably because of a delay in diagnosis and maybe it takes a while to come into...

Twitter summary: 2) One has to take the results with a grain of salt because respondents to such surveys are not necessarily a representative reflection of ME/CFS patients as a whole. Nonetheless, almost 6000 respondents is huge: this might be approximately 1/3 of all ME patient in Norway 3)...

The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here: https://me-foreningen.no/wp-content/uploads/2021/03/Norwegian-ME-Association-2021-Report-on-the-course-of-illness-English-summary.pdf

Abstract Reports of long-lasting coronavirus disease 2019 (COVID-19) symptoms, the so-called ‘long COVID’, are rising but little is known about prevalence, risk factors or whether it is possible to predict a protracted course early in the disease. We analyzed data from 4,182 incident cases of...

Thanks for sharing your experience @Nixxy

Thought this is a good example of why what Jason Busse propose is problematic. How Covid-sceptics were duped by the “wonder drug” ivermectin (newstatesman.com) COVID-skeptics promote the drug ivermectin and claim that all studies have reported positive effects. The author of the article (Stuart...

GRADE rates each outcome separately. I think there is even an example of an unblinded trial where the subjective outcome was downgraded but the objective one (mortality) isn't.

It's interesting to get an overview of the different European countries: The situation in the Netherlands isn't adequately described - there is a decent 2018 report by the Health Council but an old guideline promoting GET and CBT is still in place. There has been an announcement that it will...

Some quotes from the paper: 2) “Serious concerns were expressed about GPs’ knowledge and understanding of ME/CFS, and, it was felt, about 60% of patients with ME/CFS went undiagnosed as a result.” 3) “Disbelief, and misleading illness attributions, were perceived to be widespread, and the...

Well said. This seems to be one of the main issues: that GRADE does not believe in a fatal flaw that makes 'evidence' totally unreliable. The only way to rate something as very low quality is if a trial suffers from several different flaws. I haven't seen any arguments why this would be the...

It's great news but Busse and colleagues have focused on the review on GET and haven't brought up CBT yet.

The Cochrane review on GET seems to be one of the main reasons why people think GET is effective. And it mustn't be flawed because Cohrane hasn't withdrawn it...

Someone referred me to this, suggesting it might be useful for ME/CFS. Don't know much more about it. Here's the link: https://covidgraph.org/