Search results

My glucose levels go haywire during PEM, both too high and too low, whereas at baseline my glucose is pretty stable. So yes, it's possible yours could be linked to crashing @Dechi. Have you considered investing in a glucose meter? They're not too expensive though the cost of test strips varies...

There needs to be clarification how to handle conflicts between the existing guidelines for various conditions and ME/CFS guidelines. Highly likely existing guidelines like the “Common mental health problems” would recommend management strategies unsuitable in ME/CFS. {my Italics} This is good...

Agree with the previous comments. The text itself actually contains an excellent argument for taking the focus off fatigue: the fatigue focus is a major contributor to misdiagnosis. If the focus was on PEM instead, most of the patients referred to in the text likely would not have been...

To “celebrate” the release of the new Danish recommendation, here are several more Danish articles to raise your blood pressure further. All start out reasonable enough. Patients really are ill. They are not imagining things. They shouldn't be bounced from doctor to doctor. Etc etc - all fair...

From an announcement by the Community Health Council (CHC) - which covers the Southern District Health Board area, I don't know if other areas have similar initiatives. Not ME-specific but there may be an opportunity here for some input? Some of the stories can be seen here, all are short...

There really should be a limit to how many serious health problems one person has to suffer! Wishing you a speedy and complication-free recovery from your operation @JenB. A couple of thoughts for when you're back on deck on the Indiegogo, to consider for any future campaigns. I had a good...

Really enjoyed your interview @Trish. Your responses were thoughtful, considered and considerate – just like your posts here on the forum. Same goes for @Gary Burgess. Thanks to both of you.

Interested to hear the views of the science-literate members on this one. Patent application is for a product containing oxalic acid and derivatives, of all things. Certainly different. Reminder for all you test-it-on-yourselfers: too much oxalic acid is highly toxic and there have been...

Very impressive performance with all the courage and endurance of a true champion @Emsho, and brilliantly supported by Janet and Chris. Thanks to you all. You looked exhausted towards the end, Emma, so look after yourself. Hope the knowledge of all our appreciation for your heroic efforts will...

The article may have inadvertently given us a clue about what's really going on. One, it looks like some researchers are starting to play nicely together: Two, Wyller has not been invited to play: Conclusion: Wyller wants to be one of the in-kids but isn't; he's feeling left out. Anyone...

Where does he get this from? Have there even been any comparisons looking at differences in biomarkers in Oxford versus Canada selected patients? What biomarkers is he talking about? Why did the journalist not challenge this unsubstantiated statement, given that the other researchers claimed...

There's a lot of good stuff in here, especially how they describe PEM in the discussion section. But I do think they could have done more and better with their own study and method. They could have enrolled patients diagnosed via International consensus or Canadian criteria, not Fukuda...

Properly defining PEM is extremely important – all too often it seems to get confused with plain exercise intolerance - so I appreciate the efforts by the authors. Unfortunately the article is too long for me to read in full so can't comment on how well they have achieved this but I was puzzled...

Thanks @andypants. I use the iTunes desktop app for Windows 10 and have finally figured out that you have to select Show in Store > The ME Show > Ratings and Reviews > Write a review. Frustratingly it's then impossible to tell if your rating and review actually went through because no reviews...

Excellent podcast, Gary. Managed to subscribe to it on iTunes (which I don't otherwise use) with the intention of rating and reviewing but apart from a drop-down menu choice of "loved" or "dislike" - obviously I ticked "loved"! - I can't find any other way to rate or review it. Any tips anyone?

Thanks @Cohen for posting that second ODT article. I couldn't find it when I was looking for it yesterday. Maybe they added it later. I'm sure the “Chronic symptoms” [sic] fact box wasn't there either when I last looked, but now it has appeared at the bottom of the 'Set on a quest to treat ME'...

Whatever is happening at the Otago Daily Times? They completely ignored ME awareness day but suddenly, this week, ME gets a lot of column space. First Jean Balchin's column a couple of days ago about her own recent diagnosis and now today a big feature in the business section, of all places...

In the Otago Daily Times: Shedding light on an invisible illness by Jean Balchin Well written, as Jean's column always is, apart from a lack of consistency in terminology, a merry mix of CFS, ME and ME/CFS. Full article here: https://www.odt.co.nz/opinion/shedding-light-invisible-illness

From the May 2018 MEISS (ME Information and Support Services, Otago & Southland) newsletter: I expect there'll be a report on the meeting and talks in a future newsletter but if anybody happens to be going let us know your impressions. The research mentioned above may or may not relate to...

The mother of the teenager described in the article has co-founded a Facebook support group, NZcare4ME, including a closed group for carers of kids with ME. The open portion of the group's page looks quite good for general ME info in NZ (not just for carers) so could be worth following for Kiwis...