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Fascinating and thought-provoking article. Very long and has some highly technical bits way over my head. However, well worth skimming over them to get to more interesting bits further down. If Naviaux is onto something with his theory there would be two major plusses: 1/ It would apply to...

@JenB @Jonathan Edwards Would the following idea help overcome some of the potential bias issues you're discussing? And if so, would it be technically feasible, some sort of pop up window when hovering maybe? For each study cited there should also be a brief list of some key points that...

Not commenting on the safety or otherwise of HPV vaccine, I know nothing much about that topic. Just posting this to show that it is possible to move Cochrane to review their own reviews - in an urgent fashion no less. Time will tell the quality of the review of the original review...

I have tried cricket flour, baked into chocolate cookies and similar. Flavour very strong and tends to dominate. Fine if you happen to like the taste. Not so good if, like me, you find it unpleasant. Now feeding the left-overs to my carnivorous plant which would otherwise go hungry since the...

That was my reaction, too. Thanks @Hip. I know nothing about this topic, and it's a rather complicated one, but you managed to explain it clearly. Must have been a massive amount of work!

I was tested and cleared of SIBO because my breath hydrogen levels were low. No mention of methane in the report but as I was sure I'd been tested for both I asked for the actual data from the breath tests. (This was a couple of years prior to my ME diagnosis although in hindsight I believe I...

Totally agree. An excellent and wide-ranging piece by a writer who's been ill for more than 25 years. Thoughtful and well written. Very long but can easily be read in sections due to its structure: A brief snapshot of the writer's life at a given time. A brief description of an encounter, at...

Excellent and sensitive writing by journalist Erik Haldan – a shame not all of his articles can be google-translated, they're well worth reading. Good on the newspaper Ugeavisen Esbjerg for giving so much column space to the issue, repeatedly and over a long period of time. Only one complaint...

Just to be sure it's not some serious or easily treated cardiac issue you may want to get this checked out by a doctor. While you're there you could ask about some of the medications used in POTS like beta-blockers or florinef. Some people find them good for reducing palpitations. I get the...

Yes. Fortunately it looks like nobody in my circle listens to National Radio in the afternoons, at least this time round I didn't get a flood of well-meaning but unhelpful texts and emails asking have you tried this or that? But I always worry about the newly-diagnosed or less well-informed...

Good point. This actually may be a more important issue than the word malaise, however annoying that word is and it is annoying. But arguably the bigger problem is the confusion caused by the word exertional. Why? Because for our human brains prone to taking (faulty) shortcuts, exertional is...

I use the following: Heart rate monitor: for resting HR: The standard recommendation is to take RHR first thing in the morning but that doesn't work for me; my HR upon waking is extremely erratic and random and probably most linked to how recently I turned over in bed. So I take RHR...

A recent thread by @Andy sparked off this post: https://www.s4me.info/threads/open-letter-74-international-experts-urge-dutch-minister-of-health-to-make-substantial-long-term-investment-in-biomedical-research.5031/ Was skimming through the signatures in the open letter linked to in the above...

This morning I received an email notification of the upcoming publication of a Danish book with the very suspicious title : “Rehabiliteringspsykologi” (edited book, long list of contributors unknown to me). https://unipress.dk/udgivelser/r/rehabiliteringspsykologi/ There is no way to preview...

The definition of 'idiopathic' alone makes this worth a watch. :rofl: Also extremely informative especially if you have any suggestion of any sort of neuropathy or fibro.

NZ. So London a teensy bit impractical. Also live way out in the wop wops with even basic medical care at quite a distance. Nearest I'll ever get to having my hypos sorted is the HbA1c and a fasting glucose (both fine) and the 'helpful' advice to eat something if I'm feeling woozy. Let's just...

Article in a small, local (I think, not my region) North Island newspaper: https://www.theweekendsun.co.nz/news/4395-burning-candle-at-both-ends.html Bit of a mixed bag, here's a sample: Pointing readers to this website for more information: https://ccisupport.org.nz/ which also seems a bit of...

Excellent informative video @Ryan31337. Thanks for posting. Found this document which contains many of the slides used in the video, only an easier size to read: http://www.potsuk.org/UserFiles/File/Prof_Q_Aziz_Gut_and_PoTS.pdf Would be very interested to hear how you get on with your...

HealthRising has a number of blog posts on David Systrom (just search for Systrom). That's where I first stumbled across his idea that pyridostigmine could be potentially helpful so decided to experiment especially since I also have POTS and symptoms suggestive of small-fibre neuropathy (though...

Some very interesting posts @Ryan31337. Do you happen to have any research or other links regarding connections between POTS/dysautonomia, gastric dysmotility and/or glucose dysregulation? Have just recently been speculating about possible connections there myself. Was diagnosed some years...