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In one of those weird coincidences, while NZ health authorities were circling around that cool store at the centre of our latest outbreak I was listening to an audiobook recounting several people's childhood memories from Greenland. What's the connection you might ask. Well, one of the...

Of historical but also current interest. Article based on as yet unpublished research. For context, the population back the was about 1.6 billion (according to worldometers.info), so roughly equivalent to nearly 5 million dying today...

Patients were involved in reviewing this prior to publication. One of them was Paul Garner - I don't recognise any of the other names - he may well be reponsible for the bolding of "if tolerated".

More discussion on the same topic and links to some other scales (both PEM and more general ones): https://www.s4me.info/threads/defining-and-measuring-post-exertional-malaise-a-discussion.15783/

There was an interview on NZ radio today. No mention of ME. Part of it about the long hauler phenomenon that hasn't had much media attention in NZ to date, the other part about the Survivor Corps in the US which is primarily a vehicle to encourage recovered patients to donate plasma and partly a...

Genomic epidemiology reveals transmission patterns and dynamics of SARS-CoV-2 in Aotearoa New Zealand Jemma L Geoghegan et al Preprint Aug 2020 https://www.medrxiv.org/content/10.1101/2020.08.05.20168930v2 And to mark 100 days without community transmission - how long can this lucky streak...

This may account for the fact that nearly 20% did not report PEM. At least this was recorded and it turns out that the non-PEM cases cluster in some of the subgroups. Which could possibly tell us something but what that might be isn't further analysed. Seems like a missed opportunity. I'd like...

Weird phrasing all right. Based on the article it looks like something got lost in translation between mental concept and the written expression of it. This is a Preprint. Can they still fix it? That's good to hear. This could be a useful addition to the toolkit. Of course no single device is...

The local paper has picked up on it, a rare occurrence as they usually ignore ME but with an added Covid19 twist it seems ME is interesting after all. Otago Daily Times, 3 August 2020 More at link...

Fortunately it seems likely that both were the sort of cases who get infected, recover, but then test positive again months later because their body is shedding inactive bits of virus. So, hopefully, a false alarm (crosses fingers and toes :nailbiting:). But this does worry me and as for the...

Amy Proal interviews Mike VanElzakker about his work, mainly about how neuroimaging works, what it can and cannot do. Also some discussion about their respective views on how ME should be studied and how the brain stem and vagal nerve could be playing a role, and how very different triggers...

While I don't find this hypothesis overly convincing it should be able to be easily tested. Do large numbers of vit D tests on people testing positive for corona and check in with them again 6 months later. If those with good vit D levels recovered quickly and those with deficiencies are...

The answer to the question of when do I use pacing is: always, all the time. I view pacing as a preventative measure, albeit an imperfect one. I'm one of the people who have no early signs of overdoing it. My PEM threshold is "invisible". If I keep going until I get the first hint of an...

We also discussed pacing in this members only thread: https://www.s4me.info/threads/feedback-please-draft-info-sheets-pem-pacing.13712/ This led to a pacing guide based on pwMEs' experiences and is available here: https://m.e.awareness.nz/a-guide-to-pacing-for-pwme @Hutan's shorter pacing...

Interesting study that throws up more questions than it answers. Real pity they didn't retest after a few hours or the next day. I don't think the fact that they found impaired working memory just minutes after the HUT allows for the conclusion that this impairment is due to early PEM. It may...

Trying to figure out the significance of these findings. Basically the paper shows that a lot of people have been exposed to CMV, HHV6 and EBV in the past, and there was no difference between patients and controls. But they did find significantly more patients had active EBV infection. This...

Pain made objectively visible on a scan? J Nucl Med May 1, 2020 vol. 61 no. supplement 1 399 Peter Cipriano1, Daehyun Yoon2, Ian Carroll3, Catherine Curtin4, Vivianne Tawfik5, Yingding Xu6 and Sandip Biswal7...

I'm inclined to agree with @Jonathan Edwards on this (though the language is so dense I couldn't be sure). The article looks at how the terms MUS, Somatisation, FSS, etc are used in the literature and operationalised in research. Conclusion: very inconsistently, basically everybody makes up...

The original translates as "pain in the body" but "evil in the body" is so much more apt! :rofl:

Yes, and it would be farcical if it wasn't so serious. No community transmission (that we know of) but we've had 4 escapees from isolation/quarantine centers now, all caught again within a couple of hours but still. Clearly some people are unable to cope with confinement, despite mental health...