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Beth Thompson again then someone from Social Services at DCC

Break for lunch until 2:10pm Trust Rep/Lawyer - they’re finding the best way to display info re- Fludrocortisone to the inquest?

BT email to Dr Shenton read out - nutrition more impact than ME, can’t do it at home. (T) PN big risk…need to not tell Maeve about PN until agreed as team Algorithm (?) suggested PN (TPN) but PN serious risk

Well said. It’s like we’re aliens, they need to understand that we’re different “under the bonnet” than the average unwell person. They’re like a medieval blacksmith being tasked with operating a 3D printer to make a horseshoe.

SB - what was the rationale for making feeds 3 times per day and triple increasing the bolus? BT “We didn’t know what to do” and refers to eating disorders treatment SB - how many times was feeding delayed due to no pH reading (it seems “aspirate” and checking its pH has to happen before the...

Sarah Boothby refers to BT’s ward notes 9 July in her questioning “Maeve wiped out after obs (observations)” “We need to treat Maeve, not the ME” “I do think we need to change their expectations”

Sarah Boothby is questioning Beth Thompson, Dietician S- Delay of 5 days admission (in June) BT- awaiting Consultant agreement on pathway S- What is ME Crash? BT-for Maeve it was heart rate, palpitations, extreme exhaustion, couldn’t open eyes but knew she was there

23rd July Maeve wanted NG removed This was seen as progress Sarah feeding Maeve from a syringe BT says Maeve wouldn’t have coped with NJ I’ve seen a tweet that Maeve was vomiting from NG feed, BT says she’s never see that before. There’s discussion about the different preparations for the...

NG was detrimental. Dr Strain advised 12 hr slow feed, but that involves alarms, lights sitting up etc Bolus chosen as short sit-ups, but less feed

NG was tried as something had to change, weren’t meeting Maeves needs. Agreed on 9 June and fitted on 16 June Beth Thompson - with hindsight knowing things had to be paced it was unrealistic to think it would happen quickly

2 July NG didn’t seem appropriate 5 July S (Sarah? Strain?) was not hospitable to Maeve request for hospice. Beth T does not NG at hospice

I’ve seen a tweet about the time leading up to NG tube, that Maeve had to sit up 3x30 mins in the days/week before it. Can’t find tweet yet. edit - see below There’s a lot of detail in Beth Thompson evidence, dates, feeding amounts, discussions. Also comments that she’s reading her notes out...

we’re around June or July 21 edit - 3rd admission, July or Aug? Maeve requested backup plan TPN, recommended against by Beth Thompson (T)

Maeve expressed she would only start NG if there was a plan for if she crashed Beth reads from her notes “ lack of nutrition making her more tired

I’ll take a look at the twitterverse, Dr Fox wasn’t an easy one to follow, not easy to pull out anything useful.

It will be to those who have bundles/evidence I’d say. So the legal reps, Sarah, Sean

Coroner says a statement from Dr Shenton has been sent to everyone. More may be coming. Beth Thompson needs to be heard before 1pm

I don’t think so. Dr Strain tried to manage things, Dr Weir gave advice. Literally everyone involved in her care seemingly has zero knowledge of what S/VS ME actually does to you, does to your symptoms. At every turn there was a “default” to “normal practice” and consternation that Maeve...

Choosing to be vegetarian is seen as wanting to be different and special, believe me. Having anything “disagreeing” with you on top of choosing to exclude meat and fish is just asking to be judged.

Yes, maybe he could do some training on it for the NHS. He’s probably not heard of it before last week and he can better articulate it than a Consultant at a Coroner’s Inquiry.