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My cognitive impairment manifests the same way as my physical impairment. I reach a certain point and can no longer move forward; it's like walking in thick heavy mud. It's full-stop until I recharge.

We shouldn't relax when we achieve low levels of cases until we eliminate. Instead, push hard into the finish line. "Living with the virus" is not the right choice. The virus will mutate and we will again have exponential growth.

@Rosie So 21 days from the first. Right on schedule :thumbup:

@Rosie My arm feels less sore from the second jab b/c I'm moving it around a bit to circulate the blood, the first shot I laid down for hours w/o movement and it became very sore. I feel sleepy too. When is your next jab?

Done! The nurses just left. Feels good to be fully vaccinated. @Rosie so glad your first dose went well! Rest and drink plenty of water :hug:

I wonder why they want men to participate?

My illness has become more challenging since menopause.

In the earlier years when I didn't have orthostatic impairment I was able to stay upright with no problems, read books, knit etc. I was even able to tolerate hot temperatures. I still needed adequate rest in between 'activities' but I wasn't as disabled as I am now with OI/ME. I feel...

The immediate pathogenesis of PEM is immune related in my case (allergies or viral) and not from going over my limits. They both cause orthostatic impairment but at different levels. Maybe immediate and delayed PEM are related in some way.

I've seen long-covid referred to an estrogen-associated autoimmune disease. It seems autoimmune is the new buzz word for post-covid syndrome too.

@Jonathan Edwards Can I ask what your views are on 'autoimmune Lyme"? thank you. This was published a few weeks ago: https://www.nature.com/articles/s41584-021-00648-5

It will be difficult to know for sure though b/c the symptoms are improving very very slowly. But I've had them come back in full force for a day or two.

I've never suspected an autoimmune disease in my case after a viral infection, but there is a high (?) percentage of pwME who suspect they have an autoimmune disease.

Pandemic insight The COVID-19 pandemic has pushed the link between viruses and autoimmunity into the spotlight. Over the past year, research suggesting that people with COVID-19 carry numerous autoantibodies in their blood has been widely reported — although the mechanism at play is as yet...

There is no mention of delayed PEM. I'm interested to know what medications the >10 years pwME took to recover from PEM? My PEM has been consistent throughout 30 years, it has always been delayed, but has worsened from exercising ie OI

I get viral re-activations continuously, I even had fever sores on my lips the day of my Pfizer and a continuing vestibular virus for over a year. I had zero reaction to the first Pfizer except a sore arm. A couple of healthy friends had a fluey/achy-type reaction for 24 hrs after...

Dr. Nancy Clancy on exercise rehab: "giving someone an exercise prescription where they get their maximum heart rate and have them walk for a period of time . . . take 60-70% of that and have them do 20 minutes a day . . . come into the PT clinic once to train them so they can have a...

Now Published: Tolerance of Covid-19 vaccination in pts with SLE(Lupus) in the international VACOLUP study: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(21)00221-6/fulltext

@MeSci You might be interested in Dr. Laurent Arnaud's study trying to identify potential side effects of COVID vaccinations in lupus patients and providing regular updated summaries. https://maladie-autoimmune.fr/vacolup/

"What happens when previously infected individuals are vaccinated? The observations in several studies, including those by Stamatatos et al. and Reynolds et al., are that an impressive synergy occurs—a “hybrid vigor immunity” resulting from a combination of natural immunity and vaccine-generated...