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@rvallee Agreed, this issue should be presented carefully.

Have to mull this over for a while. Maybe the researchers were just saying stress makes ME worse. I know it does with me. This area of discussion is always a bit of a minefield as far as I'm concerned. Interesting to note, Don Staines is one of the authors of the International Consensus...

Thank you @SNT Gatchaman for this. When I start to look for gaslighting, it's everywhere. Denying one's feelings and reality. Of course it's deeply embedded in society. ETA: And, the article looks like it would be interesting to read.

Interesting article. I'm glad rhe author used these term: The cultural language of illness - relates to criminality or malingering." Very true.

Yes. Came across this back then as well. Didn't do the testing. Many of my blood draws are difficult, and I've been told my blood is thick or sticky. This despite extra hydration before blood tests. This puts me in mind of Leslie O. Simpson's research, which includes work on blood viscosity...

So, if sleep is fractured, and these kids have "Postexertional fatigue", why would they not have unrefreshing sleep? Doesn't seem to follow. And, these kids have PEF, and not PEM?

Is there scientific evidence that pwME have "disturbed mental function" in: "evaluating bodily sensations, experience of the body state, (and) pain inhibition? Do the authors mean this in a physiological sense, or just a functional somatic syndrome sense? The belief that pwME intensely focus...

Is there a risk that believing pwLC to have a functional somatic condition, ie., the BPS model, pwLC might not be screened for cardiac problems regarding rehabilitation programs? According to CBC News, two professional hockey players on one team have myocarditis from COVID. They will not be...

"PVFS...."

Ditto. LC vs. ME; gross inequities, eh?! Common sense and ethics don't seem to enter into these decisions.

Thank you @Trish for talking about est. a baseline, and then being able to expand your envelope. I have never been happy with this message. It makes me feel criticized, as in I am supposed to have accomplished this somewhere along the way. ME is not something with a simple fix. ETA: deleted...

The CCC Overview, page 1 says: "In a review study of prognosis, 5 of 6 studies indicated that 0% to 6% (the sixth study indicated 12%) of adults return to their pre-illness level of functioning....Objective postural cardiac output abnormalities correlate with symptom severity and reactive...

My experience with the CFS label, and the case definitions in the 1980s and 1990s, was that they in no way reflected, or covered many of my symptoms. I would get a polite, but puzzled look from my health care providers when I recounted symptoms not included in the thinly detailed CFS case...

I'm not sure about the continuum theory. Will consider further. My understanding is whether it was accidental or not, the term "CFS" conveys this disease as of little consequence, as well as short-lived. There were designed, and redesigned case definitions that eliminated some of the more...

@Mij Thank you.

"Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case Defintion and Guidelines for Medical Practitioners An Overview of the Canadian Consensus Document", notes on page 6, " Breathing dysregulation include breathing irregularities, sudden attacks of breathlessness, exertional...

It's my understanding progress in this area, of course as well as many others, was delayed: 2003 Aug;326(2):55-60. doi: 10.1097/00000441-200308000-00001. Abnormal impedance cardiography predicts symptom severity in chronic fatigue syndrome Arnold Peckerman 1, John J LaManca, Kristina A Dahl...

Interesting about caffeine. Although biomedical ME experts advise against caffeine. I wonder if the caffeine in tea and coffee have equivalent effects in nOH. So, what is nOH? I used to get post prandial exhaustion, to the point where it was like a mini-crash. I would feel weak, unable to...

My OI is much worse in the morning. I start off everyday with hope to accomplish goals. But before I know it I feel more ill, weak, faint etc. I have to lay down. I hate pacing. I really like to accomplish things, and keep at it until they're done. But I'm forced to break tasks down into small...

@Peter Trewhitt @Mithriel Absolutely. Three decades of over funding, and catering to the BPS model has not proven ME is psychological. Whereas, science has shown a number of physical abnormalities with researched pwME. If my recall is correct, some physical abnormalities found decades ago...