Search results

I am usually cold since ME/CFS. Extra cold when sicker. (ETA: for example I wear 5-6 wool layers, a hat and a wind proof on a bright summer day when out and about with people wearing t-shirts and shorts). I had a course (ironically first aid) this year and we were testing thermometers and, after...

Large volumes of hot/warm drinks speed the gut. So I guess you could use that to advantage if that's the problem. I find not eating helps slow things down but obviously not sustainable. And it doesn't fix the fever etc. Rest is the only real 'solution' for me.

Yes but diarrhoea more often than constipation. ETA Not just mild but full blown, gastroenteritis symptoms

Seems far too precise to be 'the answer'. I guess it's just an attention grabber. But I am curious as I've not yet read enough to have heard about calcium channels in this context. I had hypercalcemia (blood) in my 30s which lead to discovery of a grossly enlarged parathyroid gland and a...

This might be too simple a question (in too many words), please, complier, feel free to skip or critically edit: What would be your advice to someone who fits the criteria for mild/moderate ME/CFS, is still in the first couple years, but has not identified any significant abnormalities in...

Peer review is like the quote from Churchill on democracy: It has been said that democracy is the worst form of government except all the others that have been tried. Peer review is a check and balance, one of many, not a panacea. I agree, we need to value peer reviewers, we need to find ways...

As a student I took Bliss (developed by a local university at the time though I think it's been sold to a company now - not sure how budgeting might have affected its efficacy) to reduce sore throats. Worked really well. But funnily enough I still sometimes got a cold (achy, sniffly), just...

I like the story of how the spoons thing started. I like how it relates a common broad experience of limitations that is recognised and shared in circles of people with non-ME/CFS conditions. I love being able to share something with people who have other life limiting conditions which are more...

(Um, I may be misunderstanding your question but) isn't the blue/cyan/teal colour on figure 5 the healthy controls? is that what you're asking?

most important: stop caring. Most people like you better for not showing them up. So long as you don't smell or scare small children, a smile is the most attractive accessory. Save your energy for that. (Sounds trite but is true)

I've never "dried" my hair, never have mirrors in the house (a window with light behind you suffices to check you haven't put your undies on your head or something), and never have clothes that need ironing (unless hanging them up or laying them flat suffices ... or the old trick with silk...

I have a lot of trouble with my teeth, especially since ME/CFS (ETA: tho I can't say that this means anything for any other PwME). I went to three separate new dentists (first to be closer to where I live, second because I was still in pain and we hadn't completed her whole plan but I was away...

I'm very interested in this auto inflammatory lead. Please continue. (On a purely personal note: I'd especially like to know about any blood tests that might remain at variance from the norm even when not in the middle of a crash. Would be a dream to have something that easy to check.)

I'm at my first year now. When I try to list my symptoms I always forget the most important one(s) and go on and on about any minor niggles. Sometimes, (ETA: especially on 'good' days,) I feel like I must be a hypochondriac. Surely, if you can't pin down your major symptoms?!? (edit: deleted...

I'm looking for the M.E. Moments thread on PR, or here, and can't find it anywhere. Is it my brain or is it gone? Miss it.

I take it you have the help you need. Let me know if more is needed?

I'm so glad to hear it! I need to get the nerve up to do this. I'm one step closer now. To be honest, I'm afraid of telling anyone about ME in relation to me. I tend to say very little about what's happening to me and find it easier. I thought the Maddie cartoon would be great when I first saw...

Might not be the right place to say this but I have been thinking more and more that depression is a symptom and not a diagnosis. There are various mechanisms for it to occur and one of them might be that thing people refer to as Real Clinical Depression (someone here will have the best name)...

Thank you TiredSam, I wasn't going to read it (still need to be selective on days when I have reading spoons) but, you're right, good article. Sorry @Andy I ever doubted you. Thanks.

:(:hug: